Search
Search
About
Log in
Join
Experiences with
Giant axonal neuropathy
Posts
Communities
4,000 public posts
Filter results
Has anyone tried oxymorphone?
Hi, has anyone here tried oxymorphone for RLS? oxymorphone is similar to oxycodone but with much less sleeping difficulties in comparison with oxycodone. I have been doing extensive research for an opioid which exerts less sleeping difficulties because the oxycodone I am taking gives me severe insomnia
Hi, has anyone here tried oxymorphone for RLS? oxymorphone is similar to oxycodone but with much less sleeping difficulties in comparison with oxycodone. I have been doing extensive research for an opioid which exerts less sleeping difficulties because the oxycodone I am taking gives me severe insomnia
halperinchen
in
Restless Legs Syndrome
3 years ago
Memorial Sloan Kettering, NYC
Met w Dr Deaglin McHugh, Oncologist, and Dr Jonathon Coleman, Surgeon. Both said my numbers (PSA down to .56 and full blood panel) look good. Nano Knife not the answer (yet) for Advanced Stage PCa, but May work well for some sensitive hard to get at areas. Phase 1 Trial underway w Nano Knife for Intermediate
Met w Dr Deaglin McHugh, Oncologist, and Dr Jonathon Coleman, Surgeon. Both said my numbers (PSA down to .56 and full blood panel) look good. Nano Knife not the answer (yet) for Advanced Stage PCa, but May work well for some sensitive hard to get at areas. Phase 1 Trial underway w Nano Knife for Intermediate
Spyder54
in
Advanced Prostate Cancer
3 years ago
Neurologic vs physical symptoms of PD
Is it possible to have no physical symptoms but have neurologic symptoms? I don't have bradykinesia or balance problems or freezing. I take rytary daily. I spend hours jogging or using a treadmill in bad weather. I use a motorcycle to get around. How can I convince others that my mind still
Is it possible to have no physical symptoms but have neurologic symptoms? I don't have bradykinesia or balance problems or freezing. I take rytary daily. I spend hours jogging or using a treadmill in bad weather. I use a motorcycle to get around. How can I convince others that my mind still
kaypeeoh
in
Cure Parkinson's
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Acupuncture to Manage Pain?
Hi everyone! I am just wondering if anyone has tried acupuncture therapy for managing abdominal issues/pain and how it worked out for you? I have read that some oncologists do suggest acupuncture to their patients who have had gynecological surgery and curious about any real life examples of success.
Hi everyone! I am just wondering if anyone has tried acupuncture therapy for managing abdominal issues/pain and how it worked out for you? I have read that some oncologists do suggest acupuncture to their patients who have had gynecological surgery and curious about any real life examples of success.
Stuee01
in
My Ovacome
3 years ago
NHS app health record says my GCA is minor!
I've just downloaded the NHS app and looked at my health record. I am somewhat disturbed to see this: 29 October 2021 Giant cell arteritis without polymyalgia rheumatica Significance: Minor Status: Active I was diagnosed around 4th October after a diagnosis of PMR a week earlier. This entry is after
I've just downloaded the NHS app and looked at my health record. I am somewhat disturbed to see this: 29 October 2021 Giant cell arteritis without polymyalgia rheumatica Significance: Minor Status: Active I was diagnosed around 4th October after a diagnosis of PMR a week earlier. This entry is after
Broseley
in
PMRGCAuk
3 years ago
Piles
Following the serve constipation and staining I now have horrendous external piles. Very painful, does anyone have any advice on what’s best to use to help?
Following the serve constipation and staining I now have horrendous external piles. Very painful, does anyone have any advice on what’s best to use to help?
Bassem1979
in
IBS Network
2 years ago
Anyone else have soft brittle bones?
Once again I’ve been out of commission for a while. I was working in the garden the latter part of July, and my right femur about 4 inches (10 centimeters) above my knee literally just crumbled. I have just in the last couple of weeks started to be able to walk again. I was in the hospital for 3 weeks
Once again I’ve been out of commission for a while. I was working in the garden the latter part of July, and my right femur about 4 inches (10 centimeters) above my knee literally just crumbled. I have just in the last couple of weeks started to be able to walk again. I was in the hospital for 3 weeks
Tiras
in
LUPUS UK
3 years ago
Horizant for RLS
Does anyone here have experience of taking Horizant for RLS? After taking oxycodone 5 mg for many years, I have developed serious insomnia, therefore I'd like to switch to non-opioid to relieve my RLS symptoms. I'd like to know if anyone here have tried Horizant and if it is effective to relieve RLS
Does anyone here have experience of taking Horizant for RLS? After taking oxycodone 5 mg for many years, I have developed serious insomnia, therefore I'd like to switch to non-opioid to relieve my RLS symptoms. I'd like to know if anyone here have tried Horizant and if it is effective to relieve RLS
halperinchen
in
Restless Legs Syndrome
3 years ago
Day8 stims only 3 follicles
Hi I had my baseline scan which showed AFC 12… then my day 6 scan showed 8 follicles brewing and now day 8 scan only showed 3 and the test all the rest still small. Nurse said they may trigger early as don’t want to loose the 3. I’m 43.8 amh 14.7… doing low dose gonal-f due to oestrogen cancers in family
Hi I had my baseline scan which showed AFC 12… then my day 6 scan showed 8 follicles brewing and now day 8 scan only showed 3 and the test all the rest still small. Nurse said they may trigger early as don’t want to loose the 3. I’m 43.8 amh 14.7… doing low dose gonal-f due to oestrogen cancers in family
Gemstone78
in
Fertility Network UK
2 years ago
Pfizer Pill
I received this news via the New York Times which, if true, will be helpful as we learn to live with this wretched disease. A Covid pill developed by Pfizer cuts the risk of hospitalisation or death in vulnerable adults by 89 per cent, according to a clinical trial carried out by the US company. Incidentally
I received this news via the New York Times which, if true, will be helpful as we learn to live with this wretched disease. A Covid pill developed by Pfizer cuts the risk of hospitalisation or death in vulnerable adults by 89 per cent, according to a clinical trial carried out by the US company. Incidentally
Thelmarina
in
PMRGCAuk
3 years ago
Can this be due to B12 I.
My daughter has been having loading B12 for the last week. Her bloods showed B12 169 and Hb 10, ferritin 15 and other tests all skewed. Prior to this being discovered She has had neuropathy in one leg thought to be due to a back problem ( prolapsed disc). Since starting the B12 shots the neuropathy
My daughter has been having loading B12 for the last week. Her bloods showed B12 169 and Hb 10, ferritin 15 and other tests all skewed. Prior to this being discovered She has had neuropathy in one leg thought to be due to a back problem ( prolapsed disc). Since starting the B12 shots the neuropathy
Lunadoo
in
Pernicious Anaemia Society
3 years ago
Lack of symptoms during egg/follicle stimulation
This is hopefully a stupid question but I’m currently taking gonal-f and menopur at the start of a short cycle. I’ve not really had any side effects other than a slight ache/cold feeling in my lower abdomen. Does the lack of symptoms suggest follicle / egg stimulation is not working?
This is hopefully a stupid question but I’m currently taking gonal-f and menopur at the start of a short cycle. I’ve not really had any side effects other than a slight ache/cold feeling in my lower abdomen. Does the lack of symptoms suggest follicle / egg stimulation is not working?
Fertility_journey
in
Fertility Network UK
3 years ago
Management of functional gastrointestinal disorders (IBS & Dyspepsia)
Hi everyone .Happy New Year. Posted a number of times and thank you for your supportive posts. Like most of you I have struggled with IBS-C for a number of years. Towards the end of last year i was so fedup decided to 'take the bull by the horns' and to have my piles (prolapsed and bleeding) removed
Hi everyone .Happy New Year. Posted a number of times and thank you for your supportive posts. Like most of you I have struggled with IBS-C for a number of years. Towards the end of last year i was so fedup decided to 'take the bull by the horns' and to have my piles (prolapsed and bleeding) removed
guitarman49
in
IBS Network
2 years ago
Peripheral Neuropathy and Hashis?
Hi all I’m just wondering if anyone else experiences sharp stabby pains in feet and toes especially evening and night? Ive been noticing these more and more over the past few months. I’m worried it might be a sign of peripheral neuropathy. I’m probably going to have to see the GP about it but keep hoping
Hi all I’m just wondering if anyone else experiences sharp stabby pains in feet and toes especially evening and night? Ive been noticing these more and more over the past few months. I’m worried it might be a sign of peripheral neuropathy. I’m probably going to have to see the GP about it but keep hoping
Josephineinamachine
in
Thyroid UK
3 years ago
Nifedipine
Hi All, Earlier this year I told I have Raynauds and they think it's primary. Last winter my fingers were really painful and my toes went numb and had cramps if outside for too long. My consultant said this winter, if required, I could try a blood pressure tablet called Nifedipine. Has anyone on here
Hi All, Earlier this year I told I have Raynauds and they think it's primary. Last winter my fingers were really painful and my toes went numb and had cramps if outside for too long. My consultant said this winter, if required, I could try a blood pressure tablet called Nifedipine. Has anyone on here
NewBloom
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Calprotectin question
Hello everyone. Hope your bowels don't feel much festive and you all had pleasant and symptoms free Christmas! I'm 36y female with terrible IBS-M, have this for 20y and still learning to live with it. Life wasn't easy and stress is my main trigger. After my child came from school with stomach bug and
Hello everyone. Hope your bowels don't feel much festive and you all had pleasant and symptoms free Christmas! I'm 36y female with terrible IBS-M, have this for 20y and still learning to live with it. Life wasn't easy and stress is my main trigger. After my child came from school with stomach bug and
Wacca
in
Bowel Disease Support
2 years ago
Who do you talk to?
Hey All, So my ranula turned into a plunging ranula (I think) but the GP has referred me for an expedited cancer check as the gland beneath is swollen too and he wants to make sure it's not cancer. I'm telling myself it's a plunging ranula for now as there is a tail and the gland hurts so all the symptoms
Hey All, So my ranula turned into a plunging ranula (I think) but the GP has referred me for an expedited cancer check as the gland beneath is swollen too and he wants to make sure it's not cancer. I'm telling myself it's a plunging ranula for now as there is a tail and the gland hurts so all the symptoms
Insomniacette
in
LUPUS UK
3 years ago
Anal fissures
Have been having severe pain with anal fissures for well over a year. Has anyone had surgery for this? I’m being told the surgery is even more painful and that anal fissures can just return. My quality of life is definitely suffering. Anyone have any experiences to share?
Have been having severe pain with anal fissures for well over a year. Has anyone had surgery for this? I’m being told the surgery is even more painful and that anal fissures can just return. My quality of life is definitely suffering. Anyone have any experiences to share?
Greenwithpain
in
IBS Network
2 years ago
Gym?
I’m at a point where my gym membership is about to lapse. I’d fallen out of habit with it the last few weeks (work being chaos) and I’ll be honest I’ve missed it. I haven’t been advised not to exercise and I’m on my feet most of the day so I’m not exactly inactive. However, I'm due to start my gonal
I’m at a point where my gym membership is about to lapse. I’d fallen out of habit with it the last few weeks (work being chaos) and I’ll be honest I’ve missed it. I haven’t been advised not to exercise and I’m on my feet most of the day so I’m not exactly inactive. However, I'm due to start my gonal
Westcoastwestie
in
Fertility Network UK
3 years ago
Is Magnesium glycinate available in smaller caps/tabs?
I bought a bottle called "doctor's best high absorption magnesium 100% chelated" 100mg tablets (ingredient says from magnesium lysinate glycinate chelate) to help with sleep, but the tablets r too huge for me to swallow, n when I tried to crush them n mix with water, the taste was so horrible I vomited
I bought a bottle called "doctor's best high absorption magnesium 100% chelated" 100mg tablets (ingredient says from magnesium lysinate glycinate chelate) to help with sleep, but the tablets r too huge for me to swallow, n when I tried to crush them n mix with water, the taste was so horrible I vomited
ejaji
in
Restless Legs Syndrome
3 years ago
1
...
38
39
40
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Fertility Network UK
694 results
Fibromyalgia Action UK
318 results
Pernicious Anaemia Society
262 results
View top 10 communities
Sort by
Most Relevant
Newest