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Dry eye syndrome
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Eye infection every 3-4 Weeks - PA link?
I am now having my 4th eye (both eyes) infection in 5 months. I have been using Chloramphenical 0.5% eye drops for 5 days (4 times a day) it gets rid of it but it recurs approx every 3-4 weeks. Contacted the Drs today who arranged for both eyes to be swapped this afternoon. Could this be linked to PA
I am now having my 4th eye (both eyes) infection in 5 months. I have been using Chloramphenical 0.5% eye drops for 5 days (4 times a day) it gets rid of it but it recurs approx every 3-4 weeks. Contacted the Drs today who arranged for both eyes to be swapped this afternoon. Could this be linked to PA
LJH50
in
Pernicious Anaemia Society
3 years ago
What are your opinions on the case of George Lopez from 2020?
Could the PD community benefit from such cases? I liked the fact that they used a new type of syringe. "“You can’t teleport cells into a brain,” Schweitzer said. You need a needle that delivers the cells to a precise spot and does so without squeezing them. Yet in some previous cell therapies, “more
Could the PD community benefit from such cases? I liked the fact that they used a new type of syringe. "“You can’t teleport cells into a brain,” Schweitzer said. You need a needle that delivers the cells to a precise spot and does so without squeezing them. Yet in some previous cell therapies, “more
Hidden
in
Cure Parkinson's
3 years ago
4th Transfer BFN 💔
Absolutely broken today after our 4th transfer result. It's also 4 months to the day from our surgery for our MMC in August (transfer #3) 😔 That bright white FRER stick is quite terrifying. I think the next step is to take a look at immunes. I assume I don't need an ERA as we did achieve implantation
Absolutely broken today after our 4th transfer result. It's also 4 months to the day from our surgery for our MMC in August (transfer #3) 😔 That bright white FRER stick is quite terrifying. I think the next step is to take a look at immunes. I assume I don't need an ERA as we did achieve implantation
Hoop123
in
Fertility Network UK
3 years ago
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No support from GP - need to change meds
Hi everyone and Merry Christmas! This is my first post to the forum and I'm sorry it's quite a long one. I'm hoping that someone can advise me about a change of medication. I've had RLS since a teenager (now in my 50s). I augmented on Pramipexole about 5 years ago and went through hell to stop. I tried
Hi everyone and Merry Christmas! This is my first post to the forum and I'm sorry it's quite a long one. I'm hoping that someone can advise me about a change of medication. I've had RLS since a teenager (now in my 50s). I augmented on Pramipexole about 5 years ago and went through hell to stop. I tried
Night_raven
in
Restless Legs Syndrome
3 years ago
Erosion of a historically good marriage due to my FND
After a year’s onset of various symptoms, I was diagnosed with FND July 2021. Thanks be to God that I live near a world renown hospital and have a cutting-edge neurologist who is a movement specialist My husband is not responding well to this. He refuses to read any of the literature and doctor notes
After a year’s onset of various symptoms, I was diagnosed with FND July 2021. Thanks be to God that I live near a world renown hospital and have a cutting-edge neurologist who is a movement specialist My husband is not responding well to this. He refuses to read any of the literature and doctor notes
HenriettaPoultryfoot
in
Functional Neurological Disorder - FND Hope
3 years ago
I’m back
Hi everyone, Sorry I’ve not been around for some time, I’ve been feeling very poorly just lately. I’ve now got a condition called uveitis, I’ve been feeling very ill, unable to eat much and generally unwell. Yesterday due to severe eye pain I went to emergency eye hospital and it turns out I’ve got uveitis
Hi everyone, Sorry I’ve not been around for some time, I’ve been feeling very poorly just lately. I’ve now got a condition called uveitis, I’ve been feeling very ill, unable to eat much and generally unwell. Yesterday due to severe eye pain I went to emergency eye hospital and it turns out I’ve got uveitis
2013mayo
in
PMRGCAuk
3 years ago
tramadol does it work
Hi , Merry Xmas to everyone another year of hell survived with this curse ,on pramipexole for years not working well now thinking of going on tramadol whats your views ,what difference if it is addictive at 83 not long to go so make them better. tried Gabapenton not for me as well as pregabelon appreiate
Hi , Merry Xmas to everyone another year of hell survived with this curse ,on pramipexole for years not working well now thinking of going on tramadol whats your views ,what difference if it is addictive at 83 not long to go so make them better. tried Gabapenton not for me as well as pregabelon appreiate
auldreekie18
in
Restless Legs Syndrome
3 years ago
Sore eyes and light sensitivity
Hi there, So quick (ish) back story. I have Hashimotos, diagnosed late 2019. Treated with levo slowly increasing to 150mcg daily by March 2021 with various ups and downs in fatigue, dizziness and foot pain in between. Around this time i started experience photosensitivity and sore eyes (my eyes have
Hi there, So quick (ish) back story. I have Hashimotos, diagnosed late 2019. Treated with levo slowly increasing to 150mcg daily by March 2021 with various ups and downs in fatigue, dizziness and foot pain in between. Around this time i started experience photosensitivity and sore eyes (my eyes have
pandacat2
in
Thyroid UK
3 years ago
Pegasys and insomnia
I’m now on a maintenance dose of pegasys. Started pegasys in 2016. In the Early years within 30mins of injecting I felt very tired and experienced a good deep sleep on my injection nights. Over the last year - not every time - maybe 50% of the injections I have difficulty sleeping. I feel relaxed but
I’m now on a maintenance dose of pegasys. Started pegasys in 2016. In the Early years within 30mins of injecting I felt very tired and experienced a good deep sleep on my injection nights. Over the last year - not every time - maybe 50% of the injections I have difficulty sleeping. I feel relaxed but
EleanorPV
in
MPN Voice
3 years ago
Support group in the US?
Hello Everyone! Is there a support group for the US? I’ve been diagnosed with hyper mobility spectrum disorder and in July I see a geneticist for EDS testing. Thank you!
Hello Everyone! Is there a support group for the US? I’ve been diagnosed with hyper mobility spectrum disorder and in July I see a geneticist for EDS testing. Thank you!
TurquoiseTime
in
Ehlers-Danlos Support UK
3 years ago
How long to wait for a tracheotomy
Hello. So my brother has been weaned off sedation abit. However he has been becoming distressed- not surprising as he has a tube down his throat and the nurses have told him where he is. He is still not fully unsedated - his partner is struggling as she showed him a picture of their daughter but he was
Hello. So my brother has been weaned off sedation abit. However he has been becoming distressed- not surprising as he has a tube down his throat and the nurses have told him where he is. He is still not fully unsedated - his partner is struggling as she showed him a picture of their daughter but he was
paris2021
in
ICUsteps
3 years ago
Raynaudscand swollen Herbens nodes
I am 53 years old but started having Raynauds at age 51. My mom has Lupus and systemic vasculitis plus RA. After I have my Raynauds attacks once the. Blood returns my Herbecens nodes on all fingers get really red and swollen. Does this favor scleroderma?
I am 53 years old but started having Raynauds at age 51. My mom has Lupus and systemic vasculitis plus RA. After I have my Raynauds attacks once the. Blood returns my Herbecens nodes on all fingers get really red and swollen. Does this favor scleroderma?
Stormy911
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Chronic fatigue
Hi There. Just a random question. Before I was diagnosed with endometriosis one of the symptoms I suffered with chronic fatigue. In November 2021 I had my laparoscopic surgery, all went well. After two months I am still suffering with chronic fatigue, no energy whatsoever. Can you still suffer with chronic
Hi There. Just a random question. Before I was diagnosed with endometriosis one of the symptoms I suffered with chronic fatigue. In November 2021 I had my laparoscopic surgery, all went well. After two months I am still suffering with chronic fatigue, no energy whatsoever. Can you still suffer with chronic
Cockapoo-2016
in
Endometriosis UK
3 years ago
Accessing Neuropsychology and trauma therapy
I’m after recommendations please. So we had a neuropsychology report prepared for the criminal case injuries claim which recommends he needs EMDR trauma therapy for PTSD followed by further neuropsychology before he can consider returning to work. He has been on the waiting list for EMDR with a local
I’m after recommendations please. So we had a neuropsychology report prepared for the criminal case injuries claim which recommends he needs EMDR trauma therapy for PTSD followed by further neuropsychology before he can consider returning to work. He has been on the waiting list for EMDR with a local
Hidden
in
Headway
2 years ago
Sjogren's diagnosis
I've finally been given a diagnosis of Sjogren's at last after being referred to rheumatology in 2019 Rheumatology are starting me on hydroxychloroquine to see how I go.It was nice to be listened to and get some answers
I've finally been given a diagnosis of Sjogren's at last after being referred to rheumatology in 2019 Rheumatology are starting me on hydroxychloroquine to see how I go.It was nice to be listened to and get some answers
Kels1974
in
NRAS
3 years ago
Zinc deficiency
Hi all, I found out i have a zinc deficiency. I have PA and also exocrine pancreatic insufficiency. I am also currently suffering from chronic sinusitis and tinitus. Do any of you have any experience of zinc deficiency? I had a commercial genetic dna test a few years ago and i think the raw data says
Hi all, I found out i have a zinc deficiency. I have PA and also exocrine pancreatic insufficiency. I am also currently suffering from chronic sinusitis and tinitus. Do any of you have any experience of zinc deficiency? I had a commercial genetic dna test a few years ago and i think the raw data says
Luac
in
Pernicious Anaemia Society
3 years ago
New guy with old RLS
70 year-old Vietnam veteran… AND Jazz guitar player ;-) Tramadol times eight years, (hellish withdrawal x 14 mos), 12 years to present on hydrocodone 10 mg 4 x a day. My doctor is going to switch me to Suboxone because I’m going through opioid withdrawal 4 x a day. Besides refractory RLS, I have chronic
70 year-old Vietnam veteran… AND Jazz guitar player ;-) Tramadol times eight years, (hellish withdrawal x 14 mos), 12 years to present on hydrocodone 10 mg 4 x a day. My doctor is going to switch me to Suboxone because I’m going through opioid withdrawal 4 x a day. Besides refractory RLS, I have chronic
OudisCool
in
Restless Legs Syndrome
3 years ago
RLS-ROPINOLE
Thanks for all your help. i have been off ropinirole for 7 days. it has took me over 9 months to reduce dosage down. still not able to sleep for first 4 hrs at nite. getting 3 to 4 hrs of sleep at night. this miracle for me whith out taking any meds. i believe longer i go with out better i will get.i
Thanks for all your help. i have been off ropinirole for 7 days. it has took me over 9 months to reduce dosage down. still not able to sleep for first 4 hrs at nite. getting 3 to 4 hrs of sleep at night. this miracle for me whith out taking any meds. i believe longer i go with out better i will get.i
help3
in
Restless Legs Syndrome
3 years ago
Efficacy of methadone for refractory RLS
Fellow RLS sufferers, For a short bio, if you don't mind, you can skip to the second paragraph: I'm in my early 30s. Suffered mild RLS as long as I can remember I (didn't know it was RLS at the time). RLS increased in intensity and frequency during my 20s. It became a nightly thing around the time I
Fellow RLS sufferers, For a short bio, if you don't mind, you can skip to the second paragraph: I'm in my early 30s. Suffered mild RLS as long as I can remember I (didn't know it was RLS at the time). RLS increased in intensity and frequency during my 20s. It became a nightly thing around the time I
GuillaumeL
in
Restless Legs Syndrome
3 years ago
Weird symptoms
After megaloblastic anemia experience, I started to take B12 pills and three cyanocobalamin injection after sux months my symptoms for megaloblastic anemia improved but since I switched just to cyanocobalamin injection and stopped taking methylcobalamine sublingual and timed release pills I experienced
After megaloblastic anemia experience, I started to take B12 pills and three cyanocobalamin injection after sux months my symptoms for megaloblastic anemia improved but since I switched just to cyanocobalamin injection and stopped taking methylcobalamine sublingual and timed release pills I experienced
Hamayeshguy
in
Pernicious Anaemia Society
3 years ago
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