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Dry eye syndrome
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Down to 6mg but feeling it! Shall I persevere?
I went to Cape Verde on holiday at the start of December and was worried I may have a flare. I was on 7.5mg pred and I was great. Since then I’ve gone down to 6mg which I’ve now been on for about 8 days and am feeling weak. I have some pain in my upper arms but not unbearable like when diagnosed and
I went to Cape Verde on holiday at the start of December and was worried I may have a flare. I was on 7.5mg pred and I was great. Since then I’ve gone down to 6mg which I’ve now been on for about 8 days and am feeling weak. I have some pain in my upper arms but not unbearable like when diagnosed and
MiloCollie
in
PMRGCAuk
3 years ago
Is there any advantage to putting off increasing my gabapentin?
Up until about 6 weeks ago the 1500 gabapentin that I take completely controlled my restless legs. Then about once a week I got restless legs. I have exercises that I do that take about 10 minutes that allows me to go back to bed without symptoms. It seems pretty obvious to me that I will eventually
Up until about 6 weeks ago the 1500 gabapentin that I take completely controlled my restless legs. Then about once a week I got restless legs. I have exercises that I do that take about 10 minutes that allows me to go back to bed without symptoms. It seems pretty obvious to me that I will eventually
SueJohnson
in
Restless Legs Syndrome
3 years ago
When to take Questran or Colestid powder
I am taking one sachet of Questran or Colestid powder (containing colestyramine or colestipol hydrochloride respectively) per day to control suspected bile acid malabsorption (I have a cooperative doctor - but I haven't been tested for BAM) and therefore IBS D - and with some success. My question is,
I am taking one sachet of Questran or Colestid powder (containing colestyramine or colestipol hydrochloride respectively) per day to control suspected bile acid malabsorption (I have a cooperative doctor - but I haven't been tested for BAM) and therefore IBS D - and with some success. My question is,
merve1
in
IBS Network
3 years ago
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Second ablation
I am also struggling with having a second ablation. While propafenone is stopping the AFIB, it is causing causing fatigue and weakness which is affecting my qol. I can not take anticoagulants so I have had Watchman device, pacemaker, and a first ablation. It was very successful for several years.
I am also struggling with having a second ablation. While propafenone is stopping the AFIB, it is causing causing fatigue and weakness which is affecting my qol. I can not take anticoagulants so I have had Watchman device, pacemaker, and a first ablation. It was very successful for several years.
N400033
in
AF Association
3 years ago
Thyroid and Breast implant illness
Hi all-Just went through this "explant" surgery two weeks ago. The surgeons assistant told me many many patients had huge improvements with hypothyroidism. Some said Hashimotos went away, and was proven on their labs. My endo has patients where she's seen this also. Anyone experience this ? Weird but
Hi all-Just went through this "explant" surgery two weeks ago. The surgeons assistant told me many many patients had huge improvements with hypothyroidism. Some said Hashimotos went away, and was proven on their labs. My endo has patients where she's seen this also. Anyone experience this ? Weird but
abartme
in
Thyroid UK
3 years ago
Does Glaucoma always spread to other eye?
I had suspected Glaucoma in c.2014 but after 2 years of regular hospital visits I was 'discharged' as they could not diagnose and the condition seemed stable. I have myopia (borderline for driving), congenital stationary night blindness (tested & diagnosed at Moorfields), plus something called congenital
I had suspected Glaucoma in c.2014 but after 2 years of regular hospital visits I was 'discharged' as they could not diagnose and the condition seemed stable. I have myopia (borderline for driving), congenital stationary night blindness (tested & diagnosed at Moorfields), plus something called congenital
t55ddy
in
Glaucoma UK
3 years ago
Will this interfere with my underactive thyroid?
Hi I wish to start taking a collagen supplement but it contains celadrin and bromelain. Does anybody know if these Ingredients could have any negative impact on my underactive thyroid? Any help much appreciated as quite often some supplements have things in them which can do more harm or undo the good
Hi I wish to start taking a collagen supplement but it contains celadrin and bromelain. Does anybody know if these Ingredients could have any negative impact on my underactive thyroid? Any help much appreciated as quite often some supplements have things in them which can do more harm or undo the good
TrishG67
in
Thyroid UK
3 years ago
NAC for RLS?
Has anyone tried NAC N-acetylcysteine? Did it help? I accidentally found this, my first thought was how could they miss this? "Glutamate can be reduced in the brains of persons with high glutamate levels within an hour of oral ingestion of N-acetylcysteine" I am taking it at the wrong time! If your
Has anyone tried NAC N-acetylcysteine? Did it help? I accidentally found this, my first thought was how could they miss this? "Glutamate can be reduced in the brains of persons with high glutamate levels within an hour of oral ingestion of N-acetylcysteine" I am taking it at the wrong time! If your
WideBody
in
Restless Legs Syndrome
3 years ago
Relief at last from RSL
Relief at last for my hubby who has suffered with RLS for more then 30 yrs to the point of not being able to sleep or sit down for as long as 52 hours at at time sometimes. Horrible torment. But 3weeks into taking Liquid Magnesium and Liquid Iron and of course lots of prayer he has had almost total
Relief at last for my hubby who has suffered with RLS for more then 30 yrs to the point of not being able to sleep or sit down for as long as 52 hours at at time sometimes. Horrible torment. But 3weeks into taking Liquid Magnesium and Liquid Iron and of course lots of prayer he has had almost total
Nahfranz
in
Restless Legs Syndrome
3 years ago
Newbie - where to start ?
As the title says, I’m new to the forum and very new to RLS. I feel that I’ve been suffering for around 5 years, but of recent it’s getting worst. I have been referred to a chiropractor, but apart from a nice massage, this isn’t helping.. So, I’m 31 years old, 6ft 4 and ‘normal’ build. I lead a fairly
As the title says, I’m new to the forum and very new to RLS. I feel that I’ve been suffering for around 5 years, but of recent it’s getting worst. I have been referred to a chiropractor, but apart from a nice massage, this isn’t helping.. So, I’m 31 years old, 6ft 4 and ‘normal’ build. I lead a fairly
Mpdeadman
in
Restless Legs Syndrome
3 years ago
Possible sjogrens
Hi. I'm not sure if I can post about this here. I have autoimmune liver disease, PBC, AMA positive. And autoimmune inflammatory arthritis. My rheumatologist feels I may have sjogren's. I have dry eyes and mouth, sore ears, sore jaw and swollen glands under my jaw, painful joints in hands , feet, ankle
Hi. I'm not sure if I can post about this here. I have autoimmune liver disease, PBC, AMA positive. And autoimmune inflammatory arthritis. My rheumatologist feels I may have sjogren's. I have dry eyes and mouth, sore ears, sore jaw and swollen glands under my jaw, painful joints in hands , feet, ankle
Nellies47
in
NRAS
3 years ago
Lip biopsy results
Hi. I had a lip biopsy 3 weeks ago. Rheumatologist feels I've sjogrens but I'm serum neg. I have had dry eyes +mouth, mouth ulcers, sore swollen glands under my jaw, sore ears,sore joints in hands and feet and ankles and wrists,weakness in lower legs and arms , awful fatigue and restless legs. I have
Hi. I had a lip biopsy 3 weeks ago. Rheumatologist feels I've sjogrens but I'm serum neg. I have had dry eyes +mouth, mouth ulcers, sore swollen glands under my jaw, sore ears,sore joints in hands and feet and ankles and wrists,weakness in lower legs and arms , awful fatigue and restless legs. I have
Nellies47
in
The Australian Sjögren's Syndrome Association
3 years ago
Anyone had RAI or thyroidectomy for recurrent chronic thyroiditis?
Hello all and happy holidays. I don’t expect a reply as everyone will be busy but having had a 2 recent thyroid ultrasounds, the consultant radiologist said I had chronic thyroiditis which probably has been going on for quite a long time (don’t I know it- 2 months off work and still waiting for my body
Hello all and happy holidays. I don’t expect a reply as everyone will be busy but having had a 2 recent thyroid ultrasounds, the consultant radiologist said I had chronic thyroiditis which probably has been going on for quite a long time (don’t I know it- 2 months off work and still waiting for my body
Hidden
in
Thyroid UK
3 years ago
SHARING A SUCCESSFUL EXPERIENCE
I was going to answer Shumbah, but then I thought that the answer could be interesting for all RLS sufferers. Hello Shumbah and other sufferers: I´m RLS since 30 years ago , I have never taken buprenorphine or any other opioid. I used Dopamine Agonists (in pills and patches) for years, but when the
I was going to answer Shumbah, but then I thought that the answer could be interesting for all RLS sufferers. Hello Shumbah and other sufferers: I´m RLS since 30 years ago , I have never taken buprenorphine or any other opioid. I used Dopamine Agonists (in pills and patches) for years, but when the
Arjiji
in
Restless Legs Syndrome
3 years ago
pramipexole withdrawal
Hi, Will someone give me a good slap for being an old fool ,still off the 0.180 micrograms so halved the o.350 micrograms 2 nights ago and managed to cope ,then last night I thought I wold be smart Alec and took no pramipexole ,was up all night legs doing the highland fling calmed down now ,will not
Hi, Will someone give me a good slap for being an old fool ,still off the 0.180 micrograms so halved the o.350 micrograms 2 nights ago and managed to cope ,then last night I thought I wold be smart Alec and took no pramipexole ,was up all night legs doing the highland fling calmed down now ,will not
auldreekie18
in
Restless Legs Syndrome
3 years ago
Artificial Sweetener +=insomnia and RLS
I thought I would share my christmas discovery The perils of being a woman always thinking about of waistline. Over the party season , I inceasead my artificial sweetner intake to approximately 6 sachets mostly at night. Most unusual for me I was having nights of being wide awake then resorting to taking
I thought I would share my christmas discovery The perils of being a woman always thinking about of waistline. Over the party season , I inceasead my artificial sweetner intake to approximately 6 sachets mostly at night. Most unusual for me I was having nights of being wide awake then resorting to taking
Shumbah
in
Restless Legs Syndrome
3 years ago
what is Ovarian hyperstimulation syndrome (OHSS)
Hi everyone! I had my First IVF app today! we start our fertility meds on 18th jan!! can't wait. Long story short.. I got told I have Ovarian hyper-stimulation syndrome (OHSS) has anyone ever suffered with this? the consultant said a normal percentage is 19.8 but mines 178. iv read up on google (I know
Hi everyone! I had my First IVF app today! we start our fertility meds on 18th jan!! can't wait. Long story short.. I got told I have Ovarian hyper-stimulation syndrome (OHSS) has anyone ever suffered with this? the consultant said a normal percentage is 19.8 but mines 178. iv read up on google (I know
TTC1994
in
Fertility Network UK
3 years ago
Omg Prednisolone
I was diagnosed with PMR approx 18 months and for the last 6 weeks have been on 0mg Pred after following a very slow tapering plan ( advice given on this forum). I had a couple of set backs and had to increase the dose and start tapering again . I was very keen to get off the Pred but soon realised
I was diagnosed with PMR approx 18 months and for the last 6 weeks have been on 0mg Pred after following a very slow tapering plan ( advice given on this forum). I had a couple of set backs and had to increase the dose and start tapering again . I was very keen to get off the Pred but soon realised
Liby57
in
PMRGCAuk
3 years ago
New lens in my glasses when they come. xx
Afternoon everyone and how are we all. I am here in my pjs now and resting, I have been and got my eyes tested now it has been four weeks since my cataract surgery. I am having a new lens in my right eye and they have ordered me a new lens for my regular glasses. Then it was a coffee and home as i
Afternoon everyone and how are we all. I am here in my pjs now and resting, I have been and got my eyes tested now it has been four weeks since my cataract surgery. I am having a new lens in my right eye and they have ordered me a new lens for my regular glasses. Then it was a coffee and home as i
sylvi
in
NRAS
3 years ago
JAK2 and TET2
Does anyone else here have this double mutation? After nearly three years of Pegasys my JAK2 has dropped from over 80% to c. 14% but my TET2 has only dropped from 55% to 40%. Got results of my recent BMB and no change in fibrosis, still ‘an increase in thin reticulin, especially in areas of focal clustering
Does anyone else here have this double mutation? After nearly three years of Pegasys my JAK2 has dropped from over 80% to c. 14% but my TET2 has only dropped from 55% to 40%. Got results of my recent BMB and no change in fibrosis, still ‘an increase in thin reticulin, especially in areas of focal clustering
Paul123456
in
MPN Voice
3 years ago
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