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Mother-in-law with EDS has very low Potassium readings
We thought Mum had dementia and the EDS (diagnosed) means she lives with pain and is unsteady. It just transpired that she has had a long term kidney infection and really low Potassium and has been hospitalised and put on a drip for this twice this week, its possible that this and not just the EDS has
We thought Mum had dementia and the EDS (diagnosed) means she lives with pain and is unsteady. It just transpired that she has had a long term kidney infection and really low Potassium and has been hospitalised and put on a drip for this twice this week, its possible that this and not just the EDS has
liverish
in
Ehlers-Danlos Support UK
1 year ago
Carnivore diet and ketogenic diet is reportedly reversing many conditions. Can we heal our bodies with our diets.
I do not know if I actually have restless legs syn drome, but for years I have had involuntary leg movements every day, all day. I have jerking and muscle tension that is very uncomfortable and exhausting. I am not certain if it is the side effects of restoril, I take to sleep, or temazapam, that was
I do not know if I actually have restless legs syn drome, but for years I have had involuntary leg movements every day, all day. I have jerking and muscle tension that is very uncomfortable and exhausting. I am not certain if it is the side effects of restoril, I take to sleep, or temazapam, that was
Yecam1949
in
Restless Legs Syndrome
2 years ago
Can anyone relate
Hello everybody, this is my first post, I've been busy reading lots of posts on here and finding my way around. I'm recently diagnosed with sle lupus and sjogrens syndrome, I've got my 2nd rheumatology appointment on Wednesday, apart from all the usual debilitating symptoms I also feel really anxious
Hello everybody, this is my first post, I've been busy reading lots of posts on here and finding my way around. I'm recently diagnosed with sle lupus and sjogrens syndrome, I've got my 2nd rheumatology appointment on Wednesday, apart from all the usual debilitating symptoms I also feel really anxious
Lucylou72
in
LUPUS UK
2 years ago
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Eye infection & cold - Sick Day Rules?
I have a nasty eye infection and the doctor has given me antibiotic eye drops and pills, which I have been on for a few days now but they haven’t worked yet. I also have a streaming cold. I was on 4 mg of Pred but following SDR I have been on 10 mg for a few days now. But I am just wondering, if I do
I have a nasty eye infection and the doctor has given me antibiotic eye drops and pills, which I have been on for a few days now but they haven’t worked yet. I also have a streaming cold. I was on 4 mg of Pred but following SDR I have been on 10 mg for a few days now. But I am just wondering, if I do
SusyTe
in
PMRGCAuk
2 years ago
Pregnancy
Hi, I have pigment dispersion syndrome with a small amount damage to my right optic nerve but no change on visual fields on either eye. My pressures are relatively well controlled on latanoprost and dorzolamide. I am planning on trying to get pregnant next year and wondered how others managed their eyes
Hi, I have pigment dispersion syndrome with a small amount damage to my right optic nerve but no change on visual fields on either eye. My pressures are relatively well controlled on latanoprost and dorzolamide. I am planning on trying to get pregnant next year and wondered how others managed their eyes
CWS89
in
Glaucoma UK
2 years ago
AHMED Implant coming up Dec 14, 2022 my first, need advice
I have surgery set up for Dec 14, 2022 to get AHMED shunt implant and my first experience. This is my left eye I depend on sight and I know the recovery will be a while. My right eye is recovering now from surgery Dec 7, 2022 using Micropulse Transscleral Cyclophotocoagulation (MP-TSCPC) that did not
I have surgery set up for Dec 14, 2022 to get AHMED shunt implant and my first experience. This is my left eye I depend on sight and I know the recovery will be a while. My right eye is recovering now from surgery Dec 7, 2022 using Micropulse Transscleral Cyclophotocoagulation (MP-TSCPC) that did not
eyesong
in
Glaucoma UK
2 years ago
Eyes water during field test
Hi. I'm new here and joined on behalf of my elderly father. He has had glaucoma for a few years and every time he is called for an eye test he goes to pieces. His eyesight is fine - he can airplane spot and has no issues with any aspect of reading or distances. His only issue is doing the field test
Hi. I'm new here and joined on behalf of my elderly father. He has had glaucoma for a few years and every time he is called for an eye test he goes to pieces. His eyesight is fine - he can airplane spot and has no issues with any aspect of reading or distances. His only issue is doing the field test
E853
in
Glaucoma UK
2 years ago
High Eye Pressure After Eylea Injection
I had my 5th Eylea injection yesterday, for Diabetic Retinopathy. I always feel pain with the injections, sometimes stinging, but worse when it is a feeling of heavy pressure. Yesterday I lost my vision in my left eye immediately after the injection. My Ophthalmologist explain it was a reaction
I had my 5th Eylea injection yesterday, for Diabetic Retinopathy. I always feel pain with the injections, sometimes stinging, but worse when it is a feeling of heavy pressure. Yesterday I lost my vision in my left eye immediately after the injection. My Ophthalmologist explain it was a reaction
AustralianNightOwl
in
Macular Society
2 years ago
recent pressure check not good news
so my specialist is referring me onto a glaucoma expert in high pressures ( surgery on the cards ) I’m literally 40 years old like what is happening to my life my health is going down the toilet. I’m scared of the burden of this surgery I’m a single mum to a 9 year old like right on top of Christmas
so my specialist is referring me onto a glaucoma expert in high pressures ( surgery on the cards ) I’m literally 40 years old like what is happening to my life my health is going down the toilet. I’m scared of the burden of this surgery I’m a single mum to a 9 year old like right on top of Christmas
pinks223
in
Glaucoma UK
2 years ago
sport n Glaucoma need help
53 yo male , 2018 diagnosed glaucoma . may you share your experince and your suggestions please ? 1 - can i swim ? 2- do push ups n sit ups? 3- weight lifting 4- play tennis ? 5-pilates ? i need to hear your exercises routine also. thank you for your shaings .
53 yo male , 2018 diagnosed glaucoma . may you share your experince and your suggestions please ? 1 - can i swim ? 2- do push ups n sit ups? 3- weight lifting 4- play tennis ? 5-pilates ? i need to hear your exercises routine also. thank you for your shaings .
Eralal
in
Glaucoma UK
2 years ago
discomfort but only at night
using Fybergel and one small scoop of flaxseed daily has cured my constipation But I still have stomach discomfort but only ever at night, never daytime, I have cut out gas making foods but the problems persist any one suffered this way and solved the problem?
using Fybergel and one small scoop of flaxseed daily has cured my constipation But I still have stomach discomfort but only ever at night, never daytime, I have cut out gas making foods but the problems persist any one suffered this way and solved the problem?
brown1688
in
IBS Network
1 year ago
COPD and RLS
I have emphysema and have tried many inhalers and every one of them aggravated the restless legs. I am on Ropinirole, but still and all it got impossible for me to take. Are there any inhalers for COPD that would not aggravate the legs. My doctor feels it necessary to use inhalers, but I refuse as
I have emphysema and have tried many inhalers and every one of them aggravated the restless legs. I am on Ropinirole, but still and all it got impossible for me to take. Are there any inhalers for COPD that would not aggravate the legs. My doctor feels it necessary to use inhalers, but I refuse as
hscarangella
in
Restless Legs Syndrome
2 years ago
Would appreciate any support❤
Hi all im going through a really tough time now, and I would appreciate any support.The last few months have been really difficult for me. I developed severe ptsd as a result of a traumatic situation at work. I have always had social anxiety but my social anxiety has reached an all time high. When I
Hi all im going through a really tough time now, and I would appreciate any support.The last few months have been really difficult for me. I developed severe ptsd as a result of a traumatic situation at work. I have always had social anxiety but my social anxiety has reached an all time high. When I
Rose23456
in
Anxiety and Depression Support
1 year ago
Gift idea
I cannot recommend this enough! I consider it part of my durable medical equipment. 🤣 I bought one more than a year ago, "just in case", and it has been a lifesaver. For those of you who don't have easy access to a second car to jump your dead battery or a gas station on every corner to put air
I cannot recommend this enough! I consider it part of my durable medical equipment. 🤣 I bought one more than a year ago, "just in case", and it has been a lifesaver. For those of you who don't have easy access to a second car to jump your dead battery or a gas station on every corner to put air
NorasMom
in
My MSAA Community
2 years ago
Laver84
I have had eylea injections for Macular in the right eye for wet for 6 years. It continues to be "still active". The left eye is the dry Macular and is not treated at all yet. . But, just last week after a consultation I was informed that this left eye has a cataract and can be operated on to resolve
I have had eylea injections for Macular in the right eye for wet for 6 years. It continues to be "still active". The left eye is the dry Macular and is not treated at all yet. . But, just last week after a consultation I was informed that this left eye has a cataract and can be operated on to resolve
driedflower20
in
Macular Society
2 years ago
cloudiness/blurriness after Eylea injection
I had my first eylea injection Tuesday after experiencing a CRVO. I continue to experience cloudiness and blurriness and some floaters. I’ve been in contact with the ophthalmology team, who’ve suggested that this can continue for days to weeks depending on the patient. Also, there are no other signs
I had my first eylea injection Tuesday after experiencing a CRVO. I continue to experience cloudiness and blurriness and some floaters. I’ve been in contact with the ophthalmology team, who’ve suggested that this can continue for days to weeks depending on the patient. Also, there are no other signs
Smilemiser
in
Macular Society
2 years ago
Polyhydramnios. Blood test fine, GTT fine. What will happen with my baby?
Everything looks fine. Told I have polyhydramnios. What will happend with my baby?
Everything looks fine. Told I have polyhydramnios. What will happend with my baby?
Hidden
in
Pregnancy and Parenting Support
2 years ago
Successful Eye Exam
Dear All, Today I had an Eye Exam at my local Boots Opticians, it should have been Yesterday but 'They' had Staff Training, As always The Optician was Very Thorough, checking both my Vision and- most important to me- my left eye for signs of Vasculitis, which was 'Clear'. Apart from a slight 'change
Dear All, Today I had an Eye Exam at my local Boots Opticians, it should have been Yesterday but 'They' had Staff Training, As always The Optician was Very Thorough, checking both my Vision and- most important to me- my left eye for signs of Vasculitis, which was 'Clear'. Apart from a slight 'change
AndrewT
in
Vasculitis UK
2 years ago
RA, Sjogrens desease, Cataracts in both eyes, now Lupus?
Hi All, Can anyone tell me if there is any medication that can help with Lupus? I’m taking Hydroxychloroquine, + several pain killers. The Sjogrens is causing a lot of problems with my eyes, now Lupus is showing it’s ugly head. It would be nice if anyone has any help they can offer.
Hi All, Can anyone tell me if there is any medication that can help with Lupus? I’m taking Hydroxychloroquine, + several pain killers. The Sjogrens is causing a lot of problems with my eyes, now Lupus is showing it’s ugly head. It would be nice if anyone has any help they can offer.
wakeham
in
NRAS
2 years ago
DVLA- Lost Licence due to VF
HI, I was wondering if anyone has any advice or experience in getting a driver's licence back! Quick background- diagnosed with well-developed Glaucoma a few days after birth in left eye (plus cataract, nystagmus, squint and a fixed iris) Lost sight completely by age 13/14. Glaucoma was identified
HI, I was wondering if anyone has any advice or experience in getting a driver's licence back! Quick background- diagnosed with well-developed Glaucoma a few days after birth in left eye (plus cataract, nystagmus, squint and a fixed iris) Lost sight completely by age 13/14. Glaucoma was identified
ToeJam
in
Glaucoma UK
2 years ago
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