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I share concerns, I'm sharing some good news!!
I'd been on 40 mg of prednisone and dropped 10mg in October and restarted Actemra. I sure didn't feel great but in early November, my rheumatologist thought we should drop another 10mg....I was nervous and just felt lousy. BUT, the last 3-4 days I have really felt good, I've walked in the house more
I'd been on 40 mg of prednisone and dropped 10mg in October and restarted Actemra. I sure didn't feel great but in early November, my rheumatologist thought we should drop another 10mg....I was nervous and just felt lousy. BUT, the last 3-4 days I have really felt good, I've walked in the house more
Grammy80
in
PMRGCAuk
3 years ago
Charles Bonnet .. Has anyone been diagnosed with Charles bonnet syndrome with relatively good eyesight?
It all started each time I woke up I would see a huge black blob.. Blind spot in my vision which quickly disappeared upon blinking. This can also be bright white as it fades. Few months later again in the night.. Alongside the usual blob I started to see letters! Numbers! Patterns! I thought I was
It all started each time I woke up I would see a huge black blob.. Blind spot in my vision which quickly disappeared upon blinking. This can also be bright white as it fades. Few months later again in the night.. Alongside the usual blob I started to see letters! Numbers! Patterns! I thought I was
Giro26
in
Macular Society
3 years ago
Devastating end to my pregnancy
I am heartbroken This last 3 weeks have been awful. We discovered at our 12 week scan that our baby had a large amount of fluid on the back of the neck, a clear indicator of a problem. We were supposed to have the CVS test to confirm what the issue with but that was not able to go ahead due to difficulties
I am heartbroken This last 3 weeks have been awful. We discovered at our 12 week scan that our baby had a large amount of fluid on the back of the neck, a clear indicator of a problem. We were supposed to have the CVS test to confirm what the issue with but that was not able to go ahead due to difficulties
Skittles11
in
Fertility Network UK
3 years ago
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Has anyone else experienced olfactory hallucinations? Phantosmia?
Im wondering if anyone else has experienced this. I’m really struggling to deal with this FND or whatever it is. Tonight I was laying in bed falling asleep to a Netflix show and I kept getting, in my right nostril, a really foul sewage like smell. I obviously got up smelled my bedding smelled my clothes
Im wondering if anyone else has experienced this. I’m really struggling to deal with this FND or whatever it is. Tonight I was laying in bed falling asleep to a Netflix show and I kept getting, in my right nostril, a really foul sewage like smell. I obviously got up smelled my bedding smelled my clothes
seamuspg
in
Functional Neurological Disorder - FND Hope
3 years ago
Restless legss
Edoxaban 60mg Bisoprolol 2.5mg Lercanidipine10mg Dr put me on these tablets for irregular heartbeat would they agree with restless legs only I've had terrible nights since I started them
Edoxaban 60mg Bisoprolol 2.5mg Lercanidipine10mg Dr put me on these tablets for irregular heartbeat would they agree with restless legs only I've had terrible nights since I started them
ALDK79ey
in
Restless Legs Syndrome
3 years ago
Opinions on Hemp creams.
Hello everyone, I've recently decided to purchase some compression gloves for my hands and this cream called Hemp Active cream by 5kind popped up on my screen. It has a lot of good reviews but they also have a stronger version. I'm posting this because I've used Voltarol in the past and it doesn't really
Hello everyone, I've recently decided to purchase some compression gloves for my hands and this cream called Hemp Active cream by 5kind popped up on my screen. It has a lot of good reviews but they also have a stronger version. I'm posting this because I've used Voltarol in the past and it doesn't really
Bunnzillah
in
LUPUS UK
3 years ago
Feeling despondent - cataract surgery after trab
My partner developed steroid-induced glaucoma (another and long story) in his left eye and had trab surgery last December. He also developed a cataract while on this journey. Last Friday he had cataract surgery. The next day he could read the eye chart after having very little vision in that eye all
My partner developed steroid-induced glaucoma (another and long story) in his left eye and had trab surgery last December. He also developed a cataract while on this journey. Last Friday he had cataract surgery. The next day he could read the eye chart after having very little vision in that eye all
Calam1ty
in
Glaucoma UK
3 years ago
Any experience/advice re drug storage (TCZ) when electricity off & no fridge due to power cut please?
My first post, be kind, I’m maybe just overthinking…. Does anyone have experience/advice on Drug storage when Electricity goes off so that biological injections aren’t rendered unusable please? Power cuts happen regularly during winter as we live in a village ‘in the sticks’ or the ‘wilds of wannee’
My first post, be kind, I’m maybe just overthinking…. Does anyone have experience/advice on Drug storage when Electricity goes off so that biological injections aren’t rendered unusable please? Power cuts happen regularly during winter as we live in a village ‘in the sticks’ or the ‘wilds of wannee’
Erikaknitssocks
in
NRAS
3 years ago
Besremi versus Pegasys
This question was raised by Flynn2107 months ago. I looked into it and replied there but it seems worth a new post with the recent FDA approval. PEG and Ropeg (Besremi) use polyethylene glycol (PEG) to control the release of the INF molecule. The earliest INFs had less of a control element and more
This question was raised by Flynn2107 months ago. I looked into it and replied there but it seems worth a new post with the recent FDA approval. PEG and Ropeg (Besremi) use polyethylene glycol (PEG) to control the release of the INF molecule. The earliest INFs had less of a control element and more
EPguy
in
MPN Voice
3 years ago
Myopic Degeneration
26 years old Diagnosed with Myopic Degneration, I was told that I have Mild Posterior Staphylomas I tend to see flashes a lot and have constant floaters (which I was seeing those for 2 years but I gotten worst) what I really want to know is what to expect? My retina Specialist tells me it’s rare that
26 years old Diagnosed with Myopic Degneration, I was told that I have Mild Posterior Staphylomas I tend to see flashes a lot and have constant floaters (which I was seeing those for 2 years but I gotten worst) what I really want to know is what to expect? My retina Specialist tells me it’s rare that
myopiaisdangerous
in
Macular Society
3 years ago
HSP and alport syndrome
Hello, I was diagnosed 5 years ago as an adult with HSP and associated kidney damage (I was sick for a good 5 years prior to this). I've recently moved house and got a.new consultant who on reviewing my file wants me tested for alport syndrome. Has anyone else with HSP had this done? I'm not sure if
Hello, I was diagnosed 5 years ago as an adult with HSP and associated kidney damage (I was sick for a good 5 years prior to this). I've recently moved house and got a.new consultant who on reviewing my file wants me tested for alport syndrome. Has anyone else with HSP had this done? I'm not sure if
kc4t
in
Vasculitis UK
3 years ago
Vitamin advice
I know from here that multi vitamins are generally no good I wondered what the experts think to these Alive woman’s energy vitamins please? I currently take vitamins D, K, C, magnesium and selenium, but wouldn’t mind trying something for an extra energy boost! In addition to the photo, they also contain
I know from here that multi vitamins are generally no good I wondered what the experts think to these Alive woman’s energy vitamins please? I currently take vitamins D, K, C, magnesium and selenium, but wouldn’t mind trying something for an extra energy boost! In addition to the photo, they also contain
CornishChick
in
Thyroid UK
3 years ago
Gabapentin and Ropinirole please .....
1. I came across an old post on here with someone saying that if you take Gabapentin with Ropinirole, then the Ropinirole does not cause augmentation. Am guessing this is not true, but I thought I would put it out there to see if anyone has anyone definitive research on this. 2. Also read that it
1. I came across an old post on here with someone saying that if you take Gabapentin with Ropinirole, then the Ropinirole does not cause augmentation. Am guessing this is not true, but I thought I would put it out there to see if anyone has anyone definitive research on this. 2. Also read that it
67Waterman
in
Restless Legs Syndrome
3 years ago
Pre surgery question - thanks
Hey! Has anyone been asked to inject themselves with Dalteparin the day before their surgery? Were you taught how to do it by a nurse? Thanks ❤
Hey! Has anyone been asked to inject themselves with Dalteparin the day before their surgery? Were you taught how to do it by a nurse? Thanks ❤
TennisAM
in
Endometriosis UK
3 years ago
Doing the best with what we have
I've really enjoyed reading some of these posts written by people that deal with CMT and overcoming obstacles. You all are very courageous and I admire you all. It was a huge disappointment to be diagnosed with CMT when I was 11 years old but even worse when I lost my vision at the age of 12 and had
I've really enjoyed reading some of these posts written by people that deal with CMT and overcoming obstacles. You all are very courageous and I admire you all. It was a huge disappointment to be diagnosed with CMT when I was 11 years old but even worse when I lost my vision at the age of 12 and had
Samson360
in
Charcot-Marie-Tooth UK
3 years ago
Loose suture 7 months after eye surgery
Following implantation of a Preserflo micro shunt in my Left eye last March the eye has not been any trouble. Three weeks ago I began having dry eye symptoms and it was a little red. This did not improve despite my flooding the eye with lubricating drops and now it is still aching, sore, watering and
Following implantation of a Preserflo micro shunt in my Left eye last March the eye has not been any trouble. Three weeks ago I began having dry eye symptoms and it was a little red. This did not improve despite my flooding the eye with lubricating drops and now it is still aching, sore, watering and
muddledme
in
Glaucoma UK
3 years ago
5dp5dt testing too early again I'm sure :(
Here we go again I say every time I won't test but 5dp5dt and I'm certain if I squint and hold it to the light I can see a little line. I'm on double pessary cyclogest. Lubion injections. Dalteparin and prednisolone for the first time really hoping I have a sticky one I've been pregnant 8 times but still
Here we go again I say every time I won't test but 5dp5dt and I'm certain if I squint and hold it to the light I can see a little line. I'm on double pessary cyclogest. Lubion injections. Dalteparin and prednisolone for the first time really hoping I have a sticky one I've been pregnant 8 times but still
Kieneyl
in
Fertility Network UK
3 years ago
My Life with CMT type 1a
So I thought it was time to give a little bit about living with CMT. My mother noticed that at about eight or nine years old that I was walking differently and took me to the doctor. It took a couple of years of being in and out of hospital and having every test imaginable. Finally a neurologist diagnosed
So I thought it was time to give a little bit about living with CMT. My mother noticed that at about eight or nine years old that I was walking differently and took me to the doctor. It took a couple of years of being in and out of hospital and having every test imaginable. Finally a neurologist diagnosed
Samson360
in
Charcot-Marie-Tooth UK
3 years ago
SARS-CoV-2 virus-trapping chewing gum
This is not science fiction. It is from University of Pennsylvania researchers. Transform plant cells with a gene targeted to the chloroplast that codes for the SARS-CoV-2 virus spike-binding ACE2 receptor. Incorporate the transformed plant cells into chewing gum. When the gum is chewed, the ACE2
This is not science fiction. It is from University of Pennsylvania researchers. Transform plant cells with a gene targeted to the chloroplast that codes for the SARS-CoV-2 virus spike-binding ACE2 receptor. Incorporate the transformed plant cells into chewing gum. When the gum is chewed, the ACE2
gardening-girl
in
CLL Support
3 years ago
scratched cornea after lucentis getting injection
I have been getting lucentis injections to treat diabetic macular odema for the past 3-4 years. On the past 2 occasions , I’ve gotten a scratched cornea from it on my left eye. At the same time, I’ve gotten injections in my right eye and there’s been no problem at all. The consultant appears to not want
I have been getting lucentis injections to treat diabetic macular odema for the past 3-4 years. On the past 2 occasions , I’ve gotten a scratched cornea from it on my left eye. At the same time, I’ve gotten injections in my right eye and there’s been no problem at all. The consultant appears to not want
D_omeara
in
Macular Society
3 years ago
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