Weird symptoms

[Hamayeshguy]

After megaloblastic anemia experience, I started to take B12 pills and three cyanocobalamin injection after sux months my symptoms for megaloblastic anemia improved but since I switched just to cyanocobalamin injection and stopped taking methylcobalamine sublingual and timed release pills I experienced severe muscle weakness and pain . Because I was started to exercise. This weakness severity stopped me even stand in my feet. Then I found feritin vis also surging then I stopped any physical activity and started to take Iron pills and methyl folate and b complex along with mega doses of methylcobalamine timed release and tried to raise my injection tolerance. I found my muscle weakness improved so fast as it was developed fast before and my pain also almost gone. But my double vision and blurry vision still is in there. I think muscle itself also needs B12 because symptoms shouldn't come and go that much fast if it's just nerve damage was involved. Really this symptoms change scares me. Please let me know what was the reason of this symptoms change so fast. My blurry vision a little improved but I think double vision is muscle related issue since both eyes muscle should work in coordination with each other since brain interpret biths eyes together and just a little bit change in muscle tightness could change interpretation. The reason of my muscles largely involvement is due to high physical activity that I had during b12 deficiency period and my main issue of injection intolerance is execerbation of my muscle symptoms after injection. But after taking mega doses pills my tolerance improved and now I inject weekly.. No doctor could figure out what's wrong and it really scares me if those symptoms return back again. I don't have access to hydroxycobal and I can inject just cyanocobalamin for now. But I don't know what was the reason of that much muscle weakness.Niw I have daily walking for long time every day and I see fast improvement in muscles. I'm so worried my symptoms returns back again because I didn't know what was it's worsening reason.

[Nackapan]

I often find no rhyme or reason for symptoms at times I'm trying to go with the flow as I do know stress makes everything worse .

So try not to worry about symptoms returning and keep to the regime you have set.

[Hamayeshguy in reply to Nackapan]

I'm trying but my muscle weakness was so bad and why in protocols just emphasize on injection while timed release also work for muscles. Cyanocobalamin injection didn't work for me in comparison with timed release methylcobalamine. I think iron is also important to take on and off. It seems to me people with extensive muscle involvement should take timed release methylcobalamine along with hydroxocobalamin injection and a good b complex which is mostly active. Methyl cobalamin injection should also work well.

[Litatamon]

Muscle weakness in legs can also be vitamin d deficiency, which - if you live in a certain climate - you might have improved somewhat with your daily walks.

Obviously your body takes to methylcobalamin more than cyanocobalamin. Wonderful to know that. Unfortunately some of us are overly sensitive to methylcobalamin and do not do well on it - even with pills and sprays.

All the best to you.

[Hamayeshguy in reply to Litatamon]

I have ake vitamin d every day 3000 to4000UI. Hopefully methyl cobalamin pills work for me but cyanocobalamin injection I think required at least twice a day frequency. I do inject cyanocobalamin every seven days since I have intolerance fir injection but it's getting improved. I have to do my daily task so I have to walk alot. But Im surprised why pills work for me . May I switch another type of injection work for me?

[Litatamon in reply to Hamayeshguy]

Well then, the vitamin d could have played a part. I did not get my legs back until I started aggressive supplementation.

Do you have access to methylcobalamin injections? Since you do well with that form. But then again you seem to be doing well on pills.

[Hamayeshguy in reply to Litatamon]

Yes methylcobalamine timed release works for me but mostly on my muscles. My vision improved but in muscle part it was more effective. Actually I'm trying to get extended insurance in order to get access to methylcobalamine vial for injection. But it takes some time, since it needs prescription for that and should be covered by insurance and even natural path doctors should be covered since it's not affordable for me. But the other problem is injection in muscle and for any probable allergies should be done by doctor at the first time and I can't find any doctor to do so since my b12 reading in my bloodwork was high. I asked some friends how to test for anaphylactic test but no one knew that. Also some financial hurdles should be eradicated first as I can't work due to physical problem and it takes time. Unfortunately Canada's healthcare system is broken when it comes to PA and B12 deficiency. I couldn't find any knowledgeable doctor regarding this problem yet. I'm on my own. This system even failed in diagnosis of my megaloblastic anemia and I found it by myself. Since then I just rely on my own knowledge and finding way to get improved. Couple if weeks ago I couldn't even stand on my feet and my muscle pain was unbearable. I found that MCV in pa when feritin is low shows normal! And IFab is not accurate. Or iron pills is necessary in pa and B12 deficiency and feritin should be at least 45 to 50 otherwise all pains get escalated million times. And iron pills work right away after taking them in medical textbook saying takes one weak! I have no idea why there are so many differences but health care system needs better educated doctors. They don't update themselves properly since most of the time they are working.

[Litatamon in reply to Hamayeshguy]

Listen, I am Canadian and just happened to see my gynaecologist today. He is a good man and a wonderful doctor. He has climbed way up the ladder, and travels extensively around the world to speak to other doctors ie. Is in a powerful position.

I told him people are suffering, doctors from GPs to gastroenterologists know so little. And people are falling through the cracks. He knows I used to teach but can barely type a sentence without a mistake and that I say left -right - left - right in my head to walk. I tell him health care money is being wasted while people are being sent to a boatload of specialists and scans when they just need b12 injected.

He listened. Because he is a good man. When it had nothing to do with why I was there. And he is busy as anything in his own specialty but does know we are one body, not specialties.

Because he is a chief of his specialty he KNOWS and sees weekly roadblocks to a better system. Sometimes in human form.

--------'

As far as switching types and being safe, I understand with the first injection. I have done it but made sure there was a second person right there to make a phone call just in case.

All the best to you. When I win the lottery I will send you some methylcobalamin and naturopathic moulah. (I too have been affected by work and income challenges)

[Hamayeshguy in reply to Litatamon]

I hope this healthcare system get fixed as soon as possible. For couple of years I'm suffering and visited many doctors, and now I inject cyanocobalamin every week and take methylcobalamine timed release roughly 12500 mcg a day. It works but is so slow. Now about nine months I inject and had some improvement but I need hydroxocobalamin or methyl cobalamin injection in order to get symptoms improved faster. Couple of weeks ago I couldn't stand on my feet I was in severe muscle pain. These doctors they don't have any information regarding this issue as you live in Canada. I think the best way is to get disability and buy extended insurance to cover methyl cobalamin and naturopath doctor. But I have no idea how to get disability since there is no way to prove it.