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Now on Gabapentin, not sure about it.
I have had rls for over 30 years, and many years ago I was given Pramipexole. I refused to increase the dose, so my GP begrudgingly gave me Tramadol. Like the Prami it worked for a while, then stopped working. GP offered my Ropinerole, I declined, he said there was no other option. Long story short
I have had rls for over 30 years, and many years ago I was given Pramipexole. I refused to increase the dose, so my GP begrudgingly gave me Tramadol. Like the Prami it worked for a while, then stopped working. GP offered my Ropinerole, I declined, he said there was no other option. Long story short
Gmc54
in
Restless Legs Syndrome
2 years ago
sjogrens
Hi, I have RA. and Sjögren’s syndrome was wondering if anyone is taking any medication for this, mainly dry mouth , I read somewhere that Hydroxychloroquine helps, any advise would be grateful , thankyou x
Hi, I have RA. and Sjögren’s syndrome was wondering if anyone is taking any medication for this, mainly dry mouth , I read somewhere that Hydroxychloroquine helps, any advise would be grateful , thankyou x
Swanfull
in
NRAS
2 years ago
Acai, Quercetin, and Ashwagandha promote Nrf2. Do Not Overdose!
Acai has received a positive report, in a study using a mouse model of Parkinson's: Açai Berry Mitigates Parkinson’s Disease Progression Showing Dopaminergic Neuroprotection via Nrf2 HO1 Pathways https://link.springer.com/content/pdf/10.1007/s12035-022-02982-5.pdf In this study, treatment with açai
Acai has received a positive report, in a study using a mouse model of Parkinson's: Açai Berry Mitigates Parkinson’s Disease Progression Showing Dopaminergic Neuroprotection via Nrf2 HO1 Pathways https://link.springer.com/content/pdf/10.1007/s12035-022-02982-5.pdf In this study, treatment with açai
park_bear
in
Cure Parkinson's
2 years ago
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polymyalgia and brachytherapy
I am 63 diabetic and recently diagnosed with pmr and prostate cancer. I am waiting for brachytherapy treatment for the cancer but the doc is uncertain about doing this while I am on pred / any ideas?
I am 63 diabetic and recently diagnosed with pmr and prostate cancer. I am waiting for brachytherapy treatment for the cancer but the doc is uncertain about doing this while I am on pred / any ideas?
Limes123
in
PMRGCAuk
2 years ago
symptoms of pmr returning have managed on 2mg for 2 months have asked for gp phone consultation tomorrow just wanted to talk to you folks fi
Hi I have had pmr for nearly 2 years . Because inflammation was high initially gp put me on 30 mg . I was able to reduce to lower quite quickly and felt well though experienced side effects of poor sleep being hot , being very active probably a bit elated, constipated and my face made me look in my
Hi I have had pmr for nearly 2 years . Because inflammation was high initially gp put me on 30 mg . I was able to reduce to lower quite quickly and felt well though experienced side effects of poor sleep being hot , being very active probably a bit elated, constipated and my face made me look in my
Mofred
in
PMRGCAuk
2 years ago
Who here have the same problems with their legs?
More than 20 years ago I was awakened by the worst pain I have ever had and it’s been hell ever since then. As long as I’m standing, I’m fine. But as soon as I lay down it feels like I’m laying next to the devil. To give you an idea how intense the pain is, it will wake me up even if I’m sedated.
More than 20 years ago I was awakened by the worst pain I have ever had and it’s been hell ever since then. As long as I’m standing, I’m fine. But as soon as I lay down it feels like I’m laying next to the devil. To give you an idea how intense the pain is, it will wake me up even if I’m sedated.
Pain_in_the_legs
in
Restless Legs Syndrome
2 years ago
Restless legs or Periodic limb movement
Hi everyone , I think I have restless legs but not been diagnosed, doctor has treated it as restless legs , my legs don’t just move around they intensely kick or jerk out at force in the air , but I do have the sensation before that happens , like my leg is getting ready to fire! Which it does then builds
Hi everyone , I think I have restless legs but not been diagnosed, doctor has treated it as restless legs , my legs don’t just move around they intensely kick or jerk out at force in the air , but I do have the sensation before that happens , like my leg is getting ready to fire! Which it does then builds
Catslover-1
in
Restless Legs Syndrome
2 years ago
GP suggesting alternative to citalopram to reduce PMR pain??
My GP has just suggested that I consider changing from 20mg daily citalopram (that I’ve been taking for last 3.5 years to combat menopause symptoms) to Duloxerine because “it will help reduce some of PMR pain”. I’m confused. I know she is concerned because I’m having trouble reducing from 17-20mg
My GP has just suggested that I consider changing from 20mg daily citalopram (that I’ve been taking for last 3.5 years to combat menopause symptoms) to Duloxerine because “it will help reduce some of PMR pain”. I’m confused. I know she is concerned because I’m having trouble reducing from 17-20mg
Lyra42
in
PMRGCAuk
2 years ago
Gabapentin for RLS
I was diagnosed with RLS around three weeks ago and have now been prescribed Gabapentin by my GP having rejected his initial prescription of Ropinirole. My RLS symptoms were initially very severe at night but I was generally symptom free during the day. This has now altered and I am now experiencing
I was diagnosed with RLS around three weeks ago and have now been prescribed Gabapentin by my GP having rejected his initial prescription of Ropinirole. My RLS symptoms were initially very severe at night but I was generally symptom free during the day. This has now altered and I am now experiencing
DonWilliams
in
Restless Legs Syndrome
2 years ago
anxious
hi all Im looking for stories of people who took ages to get pregnant but then had a normal pregnancy and birth please. From their first bfp. I’ve finally (after 5 long years) got my first ever BFP. (Could barely believe it but nearly 2 weeks and 5 tests later it’s slowly sinking in) I just can’
hi all Im looking for stories of people who took ages to get pregnant but then had a normal pregnancy and birth please. From their first bfp. I’ve finally (after 5 long years) got my first ever BFP. (Could barely believe it but nearly 2 weeks and 5 tests later it’s slowly sinking in) I just can’
Lily4yrttc
in
Fertility Network UK
2 years ago
Ocular hypertension and insomnia
My glaucoma consultant is concerned that the IOP in my left eye is too high. I’ve already had a trab on my right eye and she says that if the left one doesn’t go down I will need to have a trab on that eye too. I’ve been suffering with insomnia since I got Covid about a month ago and haven’t had a good
My glaucoma consultant is concerned that the IOP in my left eye is too high. I’ve already had a trab on my right eye and she says that if the left one doesn’t go down I will need to have a trab on that eye too. I’ve been suffering with insomnia since I got Covid about a month ago and haven’t had a good
YoungontheOutside
in
Glaucoma UK
2 years ago
Depressed, hopeless and sleep deprived with RLS. HELP??
I’ve had RLS for 40 years and have been on almost every medicine out there. I’ve been in Requip for 6 years - 2 mg XL, 2 2mg Requip along with clonopin & methadone. My neurologist of 15 years has given up on me. I saw another one a few weeks ago and she said everything she’d prescribe, I’ve already
I’ve had RLS for 40 years and have been on almost every medicine out there. I’ve been in Requip for 6 years - 2 mg XL, 2 2mg Requip along with clonopin & methadone. My neurologist of 15 years has given up on me. I saw another one a few weeks ago and she said everything she’d prescribe, I’ve already
SleeplessinDenver
in
Restless Legs Syndrome
2 years ago
Anyone with ET use Besremi?
Pegasys is causing me significant liver enzyme increases. I have high risk ET, CALR-1 and resistant to Hydrea. Pegasys has worked well for past 8 years but now liver can no longer tolerate. Just wondering if anyone else has had this happen and what the change in cytoreductive management strategy was
Pegasys is causing me significant liver enzyme increases. I have high risk ET, CALR-1 and resistant to Hydrea. Pegasys has worked well for past 8 years but now liver can no longer tolerate. Just wondering if anyone else has had this happen and what the change in cytoreductive management strategy was
Mountainbiker12
in
MPN Voice
2 years ago
Flying with flareup of GCA
I have planned a trip to England from the United States to England for several Months now. I am supposed to leave the U.S. on Monday 26th September. Now my right temporal vein has started to protrude and aches. Ihave had an ESR test nd CRP test but both are normal.I have been on a maintenance level of
I have planned a trip to England from the United States to England for several Months now. I am supposed to leave the U.S. on Monday 26th September. Now my right temporal vein has started to protrude and aches. Ihave had an ESR test nd CRP test but both are normal.I have been on a maintenance level of
DeliaGray
in
PMRGCAuk
2 years ago
Trab Positivity
I had a trab 4 weeks ago and a complete rework 1 week later due to very low pressure. It hasnt been easy. I went in high risk as my pressure was 50 so I guess I wasnt going to have an easy ride of it. We are now getting somewhere but Im not there yet. Yesterday a member of my family who I rarely see
I had a trab 4 weeks ago and a complete rework 1 week later due to very low pressure. It hasnt been easy. I went in high risk as my pressure was 50 so I guess I wasnt going to have an easy ride of it. We are now getting somewhere but Im not there yet. Yesterday a member of my family who I rarely see
Beaudidily
in
Glaucoma UK
2 years ago
Insomnia add CBD oil
CBD oil acts on different receptors than Opioids and THC . If you are taking low dose CBD with THC or medical marijuana and you still suffer insomnia add extra pure CBD oil. If you suffer from opioid insomnia add PURE CBD OIL always sublingual it has some many health benefits a great nights sleep
CBD oil acts on different receptors than Opioids and THC . If you are taking low dose CBD with THC or medical marijuana and you still suffer insomnia add extra pure CBD oil. If you suffer from opioid insomnia add PURE CBD OIL always sublingual it has some many health benefits a great nights sleep
Shumbah
in
Restless Legs Syndrome
2 years ago
Thalassemia and PA
Hello, I've been telling everyone I know about PA, and so far two friends quite possibly have it. One definitely. But my nieces husband and daughter have Thalassemia. A very rare genetic blood disorder. When i googled it, I was surprised to see it can be linked to b12d and PA. Does anyone here have this
Hello, I've been telling everyone I know about PA, and so far two friends quite possibly have it. One definitely. But my nieces husband and daughter have Thalassemia. A very rare genetic blood disorder. When i googled it, I was surprised to see it can be linked to b12d and PA. Does anyone here have this
EllaNore
in
Pernicious Anaemia Society
2 years ago
Does half dose of sertraline make any difference?
I’ve spoken to a GP this morning (not my usual one, sadly) about my restless legs having returned since taking sertraline. She mentioned other antidepressants as an alternative but all of them are listed as having restless legs as side effects. She suggested halving the dose. As I’m only on the lowest
I’ve spoken to a GP this morning (not my usual one, sadly) about my restless legs having returned since taking sertraline. She mentioned other antidepressants as an alternative but all of them are listed as having restless legs as side effects. She suggested halving the dose. As I’m only on the lowest
NJB71
in
Restless Legs Syndrome
2 years ago
Ptosis following Trabeculectomy
I’m on week 8 following my first Trabeculectomy and still have a droopy eyelid (ptosis) - I know this is a very common factor and was expecting it but just wondering (praying) that this will resolve and go back to normal on its own? I think roughly the 3 month point is what I’ve read in terms of full
I’m on week 8 following my first Trabeculectomy and still have a droopy eyelid (ptosis) - I know this is a very common factor and was expecting it but just wondering (praying) that this will resolve and go back to normal on its own? I think roughly the 3 month point is what I’ve read in terms of full
Eyehelp5
in
Glaucoma UK
2 years ago
3 years Buprenorphine Success.
BUPRENORPHINE Hi everyone as you know know October 29th will be 3rd anniversary for 2mg Buprenorphine. Although the Buprenorphine worked from night one what I did not expect was the PTSD . I did struggled with PTSD I continued on helping other access buprenorphine in as many countries as possible
BUPRENORPHINE Hi everyone as you know know October 29th will be 3rd anniversary for 2mg Buprenorphine. Although the Buprenorphine worked from night one what I did not expect was the PTSD . I did struggled with PTSD I continued on helping other access buprenorphine in as many countries as possible
Shumbah
in
Restless Legs Syndrome
2 years ago
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