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Dry eye syndrome
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Pegasys Dosage Waste
I am starting Pegasys next week to treat my polycythemia vera. HU was discussed, but not a great choice for me to start on. My dosage is 90mcg from a 180mcg vial, the remainder is thrown away. At approximately $1,000 a vial I will be flushing $500 down the drain a week! Truly disgusting. Do your specialty
I am starting Pegasys next week to treat my polycythemia vera. HU was discussed, but not a great choice for me to start on. My dosage is 90mcg from a 180mcg vial, the remainder is thrown away. At approximately $1,000 a vial I will be flushing $500 down the drain a week! Truly disgusting. Do your specialty
BadgerPV
in
MPN Voice
1 year ago
Cetrotide injections - tips needed for drawing up the solution!
Hi all, I've had a bit of a wobble today (more like full on meltdown if I am being completely honest). It's my second day taking cetrotide and I am really struggling with drawing the meds up into the syringe after mixing. I've tried it so many different ways... slowly pushing out the air bubbles, holding
Hi all, I've had a bit of a wobble today (more like full on meltdown if I am being completely honest). It's my second day taking cetrotide and I am really struggling with drawing the meds up into the syringe after mixing. I've tried it so many different ways... slowly pushing out the air bubbles, holding
Minniemouse88
in
Fertility Network UK
1 year ago
Ropinirole
I’ve been on 3.5 milligrams of Ropinirole for about 4 years now but my RLS is getting much worse- legs and arms. Even though I take it throughout the day and am very active I cannot sit down and take a rest without the RLS kicking in. I am fortunately getting some sleep. Should I switch to pregabalin
I’ve been on 3.5 milligrams of Ropinirole for about 4 years now but my RLS is getting much worse- legs and arms. Even though I take it throughout the day and am very active I cannot sit down and take a rest without the RLS kicking in. I am fortunately getting some sleep. Should I switch to pregabalin
milly-22
in
Restless Legs Syndrome
1 year ago
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Hi IOP after eye injury.
Hi, new to the forum and Glaucoma in general. I'll tell you my story in the hope of a bit of reassurance.Exactly 6 days ago I had a pretty severe blunt injury in the left eye. Resulting in an internal bleed, partial iris detachment, abrasion and now pretty high eye pressure. I'll be honest I'm pretty
Hi, new to the forum and Glaucoma in general. I'll tell you my story in the hope of a bit of reassurance.Exactly 6 days ago I had a pretty severe blunt injury in the left eye. Resulting in an internal bleed, partial iris detachment, abrasion and now pretty high eye pressure. I'll be honest I'm pretty
Sim_L
in
Glaucoma UK
1 year ago
Recommendations for a good selenium supplement?
That's not expensive? Selenomethionine is the type I'm after. I currently take Viridian which is around £8/9 for 30 capsules. It doesn't last long as I take 2 capsules daily. Previously I used solgar but I didn't feel it was as effective. There's so many different supplement sellers on Amazon now
That's not expensive? Selenomethionine is the type I'm after. I currently take Viridian which is around £8/9 for 30 capsules. It doesn't last long as I take 2 capsules daily. Previously I used solgar but I didn't feel it was as effective. There's so many different supplement sellers on Amazon now
Alanna012
in
Thyroid UK
1 year ago
Happy Cutie Christmas
Hello everyoneJust popping by to wish you all a Happy and Healthy Christmas as possible. Thought i'd show you these cute 'woolly jumpers' as their newborn lambs on a farm in Surrey. Early ones hence the pullovers!. Its a lovely thought though that Spring is soon as we've just had the shortest day.
Hello everyoneJust popping by to wish you all a Happy and Healthy Christmas as possible. Thought i'd show you these cute 'woolly jumpers' as their newborn lambs on a farm in Surrey. Early ones hence the pullovers!. Its a lovely thought though that Spring is soon as we've just had the shortest day.
misty14
in
LUPUS UK
1 year ago
shock - fight or flight response.
sometimes I wonder weather restless leg syndrome is induced by a traumatic experience in earlier life. The fight or flight response that is constantly on overdrive! Never being able to relax…. I’ve had the disorder for most of my life. Contrary to belief my symptoms stated at a very early age. Practitioners
sometimes I wonder weather restless leg syndrome is induced by a traumatic experience in earlier life. The fight or flight response that is constantly on overdrive! Never being able to relax…. I’ve had the disorder for most of my life. Contrary to belief my symptoms stated at a very early age. Practitioners
Dark71
in
Restless Legs Syndrome
1 year ago
Sore, dry mouth
Hi, I have Fibromyalgia and ME/CFS and I suffer terribly with sore mouth, tongue and also dry mouth and throat. I’ve just been putting up with it for ages but it seems to be more constant now. I also have no idea what toothpaste or toothbrush to use as they keep making my sores worse. If anyone has
Hi, I have Fibromyalgia and ME/CFS and I suffer terribly with sore mouth, tongue and also dry mouth and throat. I’ve just been putting up with it for ages but it seems to be more constant now. I also have no idea what toothpaste or toothbrush to use as they keep making my sores worse. If anyone has
Keswick73
in
Fibromyalgia Action UK
1 year ago
Food for thought
So...I have been on high dose prednisone for almost 6 months, along with my 4th shot of Actemra..for PMR and GCA....I started at 60 mg pred., and have been on 35 mg for the last two weeks. Next week I start on 30 mg. So, today I decided to forgo my veggie breakfast and go out with my spouse to a restaurant
So...I have been on high dose prednisone for almost 6 months, along with my 4th shot of Actemra..for PMR and GCA....I started at 60 mg pred., and have been on 35 mg for the last two weeks. Next week I start on 30 mg. So, today I decided to forgo my veggie breakfast and go out with my spouse to a restaurant
Joseph14612
in
PMRGCAuk
1 year ago
Statins & Steroids
I’ve been advised to take statins due to high cholesterol levels of 7.0, Serum triglycerides 2.3, HDL 2.5, HDL ratio 2.8, LDL 3.4, non HDL 4.5. I’m reluctant to take more meds but I’m unclear of the meaning of all the results and if I should take statins or not. I’ve read some articles stating that
I’ve been advised to take statins due to high cholesterol levels of 7.0, Serum triglycerides 2.3, HDL 2.5, HDL ratio 2.8, LDL 3.4, non HDL 4.5. I’m reluctant to take more meds but I’m unclear of the meaning of all the results and if I should take statins or not. I’ve read some articles stating that
Griggser
in
PMRGCAuk
1 year ago
Surgery
I an soon to have cataract surgery and because of arthritis problems I am having a General, but I am worried about this because of my AF. I am on warfarin and have been for several. Does anyone know how long I will need to be asleep, thank you.
I an soon to have cataract surgery and because of arthritis problems I am having a General, but I am worried about this because of my AF. I am on warfarin and have been for several. Does anyone know how long I will need to be asleep, thank you.
nemisis2
in
AF Association
1 year ago
Eye problems
Hello everyone, I had a brain hemorrhage September 2021. I have been home about a year. Does anyone else have eye problems since brain injury. In my case the sight has changed alot. I had horizontal double vision before the bleed and by having prisms in my glasses my sight was fine. However after the
Hello everyone, I had a brain hemorrhage September 2021. I have been home about a year. Does anyone else have eye problems since brain injury. In my case the sight has changed alot. I had horizontal double vision before the bleed and by having prisms in my glasses my sight was fine. However after the
Notts22
in
Headway
1 year ago
Re Hydroxy & referral to eye dept, Great News!
Went for appt this morning & the great news is I,m ok to keep taking hydroxy!! What a relief as I,m doing fine on it right now :) He said there is some deposits somewhere (I was on my own in the testing room so didnt take it all in) but it,s not caused by the drug so I,m ok to continue with it & I,m
Went for appt this morning & the great news is I,m ok to keep taking hydroxy!! What a relief as I,m doing fine on it right now :) He said there is some deposits somewhere (I was on my own in the testing room so didnt take it all in) but it,s not caused by the drug so I,m ok to continue with it & I,m
Chrt
in
NRAS
1 year ago
Help! Depression interrupted my parenting.. I am so so sad.
I have a particular problem these last few years well 6 years now. I raised my daughter as a single mother for 14 years I did a very good job I gave my daughter a lot of the things that my parents weren't able to provide for me emotionally. I know I did a really good job.. considering my parents were
I have a particular problem these last few years well 6 years now. I raised my daughter as a single mother for 14 years I did a very good job I gave my daughter a lot of the things that my parents weren't able to provide for me emotionally. I know I did a really good job.. considering my parents were
Montana136
in
Anxiety and Depression Support
1 year ago
Buprenorphine patch failure. Now very few med options left.
I have PLMD only. It wakes me 3 to 4 times a night and continues until I walk it off. As with many (most?) of you, my sleep architecture is wrecked. In my case I haven't had a continuous night's sleep for 13 years.So, after regimes of Clonazepam, Baclofen, Ropinirole, Gabapentin (twice) and Pregabalin
I have PLMD only. It wakes me 3 to 4 times a night and continues until I walk it off. As with many (most?) of you, my sleep architecture is wrecked. In my case I haven't had a continuous night's sleep for 13 years.So, after regimes of Clonazepam, Baclofen, Ropinirole, Gabapentin (twice) and Pregabalin
dickJones
in
Restless Legs Syndrome
1 year ago
Pregabalin/ropinirole
Hello there i haven't posted for a long time on this forum but I do read and keep an interest in other people's posts/views. I find it helps, sadly, knowing that other people are also experiencing what you are going through. so Ii have been taking Ropinirole for 18+ years. Drs decided I needed to
Hello there i haven't posted for a long time on this forum but I do read and keep an interest in other people's posts/views. I find it helps, sadly, knowing that other people are also experiencing what you are going through. so Ii have been taking Ropinirole for 18+ years. Drs decided I needed to
SilverEvie
in
Restless Legs Syndrome
1 year ago
Cataract/I-stent post op blurriness
Hello all, I had cataract/I-stent surgery on my right eye November 22nd and it went great. Vision greatly improved and was clear within a few days. I then had the same thing on my left eye on December 13th and my vision has been cloudy/foggy sense then. My doctor says it could take up to 2 - 3 weeks
Hello all, I had cataract/I-stent surgery on my right eye November 22nd and it went great. Vision greatly improved and was clear within a few days. I then had the same thing on my left eye on December 13th and my vision has been cloudy/foggy sense then. My doctor says it could take up to 2 - 3 weeks
designguy
in
Glaucoma UK
1 year ago
Waiting times in hospital dreadful for mum
Hi friends hope you are all keeping strong and hugs to you all. I know I need a big hug. I just wanted to say that mum is due cataracts surgery now in February. Before then we have been going to hospital so they can take images of her eyes. The appointments have been for half ten and eleven in the mornings
Hi friends hope you are all keeping strong and hugs to you all. I know I need a big hug. I just wanted to say that mum is due cataracts surgery now in February. Before then we have been going to hospital so they can take images of her eyes. The appointments have been for half ten and eleven in the mornings
Cinderella80
in
PSP Association
1 year ago
Blurred vision with Zanubrutinib (Brukinsa)
I wonder whether anybody who has been taking the recently-approved drug Zanubrutinib (Brukinsa) has experienced blurred vision? I started on the drug two months ago after having been obliged to stop Ibrutinib because it caused an ocular edema, the symptom of which was blurred vision. Now, two months
I wonder whether anybody who has been taking the recently-approved drug Zanubrutinib (Brukinsa) has experienced blurred vision? I started on the drug two months ago after having been obliged to stop Ibrutinib because it caused an ocular edema, the symptom of which was blurred vision. Now, two months
Snoopy234
in
CLL Support
1 year ago
Paying for Horizant
Arbor Pharmaceuticals, the maker of Horizant, has a patient assistance program. If you're in the US you could be paying $55 a month (plus shipping) by applying to them directly. You can be on Medicare and still get this benefit. None of the cost is reimbursable by Medicare or any other insurance program
Arbor Pharmaceuticals, the maker of Horizant, has a patient assistance program. If you're in the US you could be paying $55 a month (plus shipping) by applying to them directly. You can be on Medicare and still get this benefit. None of the cost is reimbursable by Medicare or any other insurance program
grassgree
in
Restless Legs Syndrome
1 year ago
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