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WORRIED: SORE TEETH
Hi Folks, Has anyone else had sore or achy teeth? I’m ET jak+ and on HU. My dose hasn’t changed but for the past few weeks my teeth have been aching, similar to how they’ve felt after having extensive work done on my teeth-like getting a crown out on, etc. Except it’s a lot of my teeth aching at the
Hi Folks, Has anyone else had sore or achy teeth? I’m ET jak+ and on HU. My dose hasn’t changed but for the past few weeks my teeth have been aching, similar to how they’ve felt after having extensive work done on my teeth-like getting a crown out on, etc. Except it’s a lot of my teeth aching at the
katiewalsh
in
MPN Voice
6 years ago
Filling in PIP form
Hi Everyone New here just received forms for pip, totally lost on how to fill it in, my condition is NSIP a lung disease, just completed chemo to suppress this condition and going onto Mycophenolate, which acts the same as chemo to stop this disease progression? The pip form is mind boggling cannot
Hi Everyone New here just received forms for pip, totally lost on how to fill it in, my condition is NSIP a lung disease, just completed chemo to suppress this condition and going onto Mycophenolate, which acts the same as chemo to stop this disease progression? The pip form is mind boggling cannot
TBush
in
Fibromyalgia Action UK
6 years ago
ONE YEAR POST RADIOTHERAPY
Just wanted to let you know that at my last check one year post radiotherapy my PSA is now undetectable. I am doing OK too. A few late onset side effects after 6 months which may or may not be radiation proctitis - gastroenterologist says it is but onc says it isn't. Am hoping they will sort something
Just wanted to let you know that at my last check one year post radiotherapy my PSA is now undetectable. I am doing OK too. A few late onset side effects after 6 months which may or may not be radiation proctitis - gastroenterologist says it is but onc says it isn't. Am hoping they will sort something
Desanthony
in
Fight Prostate Cancer
6 years ago
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Palmoplantar Pustulosis
I have just been told that I have another AI disease - Palmoplantar on my hands. It’s very unpleasant and is blisters on the palms and fingers. Does anyone know of any useful treatment for this? Thank you 😬
I have just been told that I have another AI disease - Palmoplantar on my hands. It’s very unpleasant and is blisters on the palms and fingers. Does anyone know of any useful treatment for this? Thank you 😬
Twinkle_12
in
LUPUS UK
6 years ago
Thrush - it’s a killer!
Ever since I was diagnosed with endo I’ve had recurring thrush - no treatments have helped. It’ll clear for a few weeks and then without fail come back again! It’s getting so depressing now and completely coming between my sex life with my long-term boyfriend. I wear cotton underwear, I don’t use fragranced
Ever since I was diagnosed with endo I’ve had recurring thrush - no treatments have helped. It’ll clear for a few weeks and then without fail come back again! It’s getting so depressing now and completely coming between my sex life with my long-term boyfriend. I wear cotton underwear, I don’t use fragranced
sophkemp96
in
Endometriosis UK
6 years ago
Caelyx not worked
Found out on Friday that my two rounds of Caelyx have not worked. My CA125 is now a little over 23,000. So glad I pushed for a review before I had the 3rd infusion. Have had carbo/taxol and then weekly taxol over last 2 years with regrowth happening quickly or in case of taxol before the cycle had
Found out on Friday that my two rounds of Caelyx have not worked. My CA125 is now a little over 23,000. So glad I pushed for a review before I had the 3rd infusion. Have had carbo/taxol and then weekly taxol over last 2 years with regrowth happening quickly or in case of taxol before the cycle had
Teresa_K
in
My Ovacome
6 years ago
Can’t retract foreskin when erect
Hi am 24 yrs old. Recently (3 months ago) I had an extraction of my right testicle due to a t1 seminoma. Now I want to know if I’m experiencing Phimosis or Paraphimosis as my foreskin can’t fully pull back when erect. I don’t feel pain at all or difficulties when making love. The attached picture shows
Hi am 24 yrs old. Recently (3 months ago) I had an extraction of my right testicle due to a t1 seminoma. Now I want to know if I’m experiencing Phimosis or Paraphimosis as my foreskin can’t fully pull back when erect. I don’t feel pain at all or difficulties when making love. The attached picture shows
Chico23
in
Men's Health Forum
6 years ago
Warning about dental treatment
I very rarely post on the site but tap in now and again to see what everyone is up to. In September I had a crown shear off in my lower right hand jaw and found that the underside of it was rotten (the dentist put this down to various chemos I have had over the past 6 years). Whilst preparing for the
I very rarely post on the site but tap in now and again to see what everyone is up to. In September I had a crown shear off in my lower right hand jaw and found that the underside of it was rotten (the dentist put this down to various chemos I have had over the past 6 years). Whilst preparing for the
riverside
in
My Ovacome
7 years ago
Solution
It's been three weeks and my head is still sensitive after circumcision I had a tight foreskin problem so I have only seen my head in three weeks. When will I be able to wear underwear without feeling discomfort
It's been three weeks and my head is still sensitive after circumcision I had a tight foreskin problem so I have only seen my head in three weeks. When will I be able to wear underwear without feeling discomfort
Seand
in
Men's Health Forum
6 years ago
Mucositis
I have Systemic Sclerosis (no skin involvement- all internal), I also have Sjogrens. After almost 3 years of a permanently sore mouth I have a diagnosis of Mucositis - I do NOT have cancer nor have I had chemotherapy or radiotherapy. Everything I have found so far is that it is caused as a side effect
I have Systemic Sclerosis (no skin involvement- all internal), I also have Sjogrens. After almost 3 years of a permanently sore mouth I have a diagnosis of Mucositis - I do NOT have cancer nor have I had chemotherapy or radiotherapy. Everything I have found so far is that it is caused as a side effect
janetfmauk
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Blurred periphial vision with CMT....?
Hiya, I have CMT, Type 1a as well as my 3 children, my sister and my dad. Question: have any of you ever experienced periods of blurred vision in your periphial areas with both eyes? I have had 3 bouts of this periphial blurriness lasting approximately 15 minutes, then back to normal vision. I saw an
Hiya, I have CMT, Type 1a as well as my 3 children, my sister and my dad. Question: have any of you ever experienced periods of blurred vision in your periphial areas with both eyes? I have had 3 bouts of this periphial blurriness lasting approximately 15 minutes, then back to normal vision. I saw an
Cindyyb
in
Charcot-Marie-Tooth UK
6 years ago
is there a cure for MC?
So back in September 2017 I went to see my GP complaining about small bumps in the pelvic area. They were quick to diagnose it as Molluscum contagiosum (MC) and said there's no treatment for it, just leave it. However I first noticed them back in February 2017 and still have them now. There are more
So back in September 2017 I went to see my GP complaining about small bumps in the pelvic area. They were quick to diagnose it as Molluscum contagiosum (MC) and said there's no treatment for it, just leave it. However I first noticed them back in February 2017 and still have them now. There are more
anonymoos
in
BASHH
6 years ago
Me Your Kidney & I - New Podcast
Hi, Hope it is OK to leave this message here. I am in the process of launching a podcast based on interviews with people involved with kidney transplantation, including pre and post transplant patients, donors, doctors, specialists etc. As a kidney transplant recipient myself I am hoping to meet people
Hi, Hope it is OK to leave this message here. I am in the process of launching a podcast based on interviews with people involved with kidney transplantation, including pre and post transplant patients, donors, doctors, specialists etc. As a kidney transplant recipient myself I am hoping to meet people
MeYourKidneyI
in
Kidney Transplant Patient Support
6 years ago
Metal like taste
This is my second day of not smoking but I’m using the blu pro vapour but getting a metal taste like blood taste in my mouth and also I can smell my nasty breath like sick smell hope it goes away and I hope I don’t put more weight on wish someone could tell me why
This is my second day of not smoking but I’m using the blu pro vapour but getting a metal taste like blood taste in my mouth and also I can smell my nasty breath like sick smell hope it goes away and I hope I don’t put more weight on wish someone could tell me why
Simbalianne09
1 Year Smoke Free
in
No Smoking Day
7 years ago
Life can be an arse...
Well it’s been nearly a month since I had my transplant. I am eternally grateful to my donor and wish only the very best for their family. My new liver has settled in very well. I’m feeling better with every passing day. My specialists have all been very pleased with my progress. However... Life
Well it’s been nearly a month since I had my transplant. I am eternally grateful to my donor and wish only the very best for their family. My new liver has settled in very well. I’m feeling better with every passing day. My specialists have all been very pleased with my progress. However... Life
Identity75
in
British Liver Trust
6 years ago
Tonsillitis
Feel like I spend my life poorly. Need some advice from anyone who’s suffered from tonsillitis as my doctors are rubbish and won’t see me in person. They’ve diagnosed me with tonsillitis over the phone even though I’ve never had it before! So I’ve had a really sore throat since Sunday, I sweat every
Feel like I spend my life poorly. Need some advice from anyone who’s suffered from tonsillitis as my doctors are rubbish and won’t see me in person. They’ve diagnosed me with tonsillitis over the phone even though I’ve never had it before! So I’ve had a really sore throat since Sunday, I sweat every
Morgjt
in
Anxiety Support
7 years ago
Chemo
Hi anyone on chemo know how to get rid of the taste in mouth and bloated belly nothing taste right so don’t want to eat or drink
Hi anyone on chemo know how to get rid of the taste in mouth and bloated belly nothing taste right so don’t want to eat or drink
Jenny1410
in
Thyroid UK
7 years ago
ONJ treatment
I am interested in the experiences of those with ONJ—osteonecrosis of the jaw. This was caused by a dental extraction despite following the protocol of discontinuing Xegeva. My husband has stage 4 prostrate cancer diagnosed in December 2014. There is not a lot of information and most dentists do not
I am interested in the experiences of those with ONJ—osteonecrosis of the jaw. This was caused by a dental extraction despite following the protocol of discontinuing Xegeva. My husband has stage 4 prostrate cancer diagnosed in December 2014. There is not a lot of information and most dentists do not
Snowbird1
in
Advanced Prostate Cancer
6 years ago
Coughed blood.
I just coughed up a little bit of blood. I do not smoke. I do have very sore tooth, could it be that. I’m going to be put to sleep so I can get dental treatment at clinic,cos I’m agoraphobic and haven’t left my house in 5 years. I’m really concerned 😟.
I just coughed up a little bit of blood. I do not smoke. I do have very sore tooth, could it be that. I’m going to be put to sleep so I can get dental treatment at clinic,cos I’m agoraphobic and haven’t left my house in 5 years. I’m really concerned 😟.
kensteel12
in
Anxiety Support
7 years ago
Interferon alpha frequency
I have been on interferon for about 6 months. Now down to two a week. Finding fatigue day after injection becoming much much worse. I know some people at Liverpool have a weekly injection. At what stage was that started. My behcet is under better control although still got eye problems😕
I have been on interferon for about 6 months. Now down to two a week. Finding fatigue day after injection becoming much much worse. I know some people at Liverpool have a weekly injection. At what stage was that started. My behcet is under better control although still got eye problems😕
sian35
in
Behçet's UK
6 years ago
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