Found out on Friday that my two rounds of Caelyx have not worked. My CA125 is now a little over 23,000. So glad I pushed for a review before I had the 3rd infusion.
Have had carbo/taxol and then weekly taxol over last 2 years with regrowth happening quickly or in case of taxol before the cycle had finished.
Had to ask for Caelyx and was offered letrozole as kinder option in November. I chose chemo in hope it might work and then could revert to hormone if not. Imagine my surprise when I was only offered best palliative care. I asked for letrozole and (I paraphrase) was told well you could do it is well tolerated. You might as well take it as not. We will try and keep you out of hospital for as long as possible.
Came out of that meeting very depressed haven been given no hope. My husband was furious at the delivery and lack of options.
He starts his second round of chemo on Wed for stage 4 prostate cancer. Gulp.
I have already been to RM for second opinion last year and was told no trial suitable, in fact they were more depressing than local onc.
It is all so depressing