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polyps
hi all, Ive had 2 polyps removed from the womb but im still spotting brown goey blood 3 weeks post op... its mainly during the day... i also had a lap which diagnosed extensive endo but they didnt remove as it needs to be done via laproctomy. Does anyone know how long the spotting should be going on
hi all, Ive had 2 polyps removed from the womb but im still spotting brown goey blood 3 weeks post op... its mainly during the day... i also had a lap which diagnosed extensive endo but they didnt remove as it needs to be done via laproctomy. Does anyone know how long the spotting should be going on
rajsam
in
Endometriosis UK
8 years ago
FCR vs imbruvica first line
I was wondering what people's opinion was for FCR vs imbruvica first line for moderate risk (unmutated, +Zap70, normal FISH for me) patients. With my genetics, I should expect a average response ~5 years with FCR which is the recommended standard treatment per current guidelines. I feel
I was wondering what people's opinion was for FCR vs imbruvica first line for moderate risk (unmutated, +Zap70, normal FISH for me) patients. With my genetics, I should expect a average response ~5 years with FCR which is the recommended standard treatment per current guidelines. I feel
nkferg
in
CLL Support
8 years ago
Ibrutinib / Imbruvica?
Hi all, I'm a CLL and ITP patient and have had many different treatments in the past number of years. Following a recent CT scan and an increase in the size of my lymph nodes, my consultant is proposing that I start the new drug Ibrutinib. My history of treatments hasn't always been successful and
Hi all, I'm a CLL and ITP patient and have had many different treatments in the past number of years. Following a recent CT scan and an increase in the size of my lymph nodes, my consultant is proposing that I start the new drug Ibrutinib. My history of treatments hasn't always been successful and
Jimimajimbob
in
CLL Support
8 years ago
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Oh so tired
Probably just being over the top, but once again I am feeling very tired and unable to concentrate, has anyone ever thought they may have Myalgic Encephalomyelitis? (Chronic Fatigue Syndrome) someone at work mentioned it to me the other day? How would you differentiate this from just anxiety and depression
Probably just being over the top, but once again I am feeling very tired and unable to concentrate, has anyone ever thought they may have Myalgic Encephalomyelitis? (Chronic Fatigue Syndrome) someone at work mentioned it to me the other day? How would you differentiate this from just anxiety and depression
Sandy1710
in
Anxiety Support
8 years ago
3rd round egg collection done - the horse scale
So ladies, we had our third cycle of egg collection today - 4 eggs recovered. I thought I'd share my experience for anyone who hasn't been through this yet. My right ovary seems to be quite hard to reach which means they've needed to apply external pressure to ensure they could get to it a couple of
So ladies, we had our third cycle of egg collection today - 4 eggs recovered. I thought I'd share my experience for anyone who hasn't been through this yet. My right ovary seems to be quite hard to reach which means they've needed to apply external pressure to ensure they could get to it a couple of
sipidania
in
Fertility Network UK
8 years ago
ASCO 2016: Dr. Susan O’Brien on GDC-0853, a novel BTK inhibitor for CLL
Hi, Well, I’m packing my bags again in preparation to speak at the European School of Hematology meeting being held in Portugal in front of 400 hematologists on what American patients need and want this coming weekend. Then I will take a few days R&R before heading back to what looks to be a really
Hi, Well, I’m packing my bags again in preparation to speak at the European School of Hematology meeting being held in Portugal in front of 400 hematologists on what American patients need and want this coming weekend. Then I will take a few days R&R before heading back to what looks to be a really
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
watch & wait - immunizations....how long to treatment ?
Hello, I was dx in Jan this year and am still on W & W. My ALC in July was at 9.5, WBC.. 16 down from 19 at dx.... ANC..5.7 HGB...15...PLT .... 201 RBC .... 4.76 all seem to be stable for now. I want to stay healthy especially with my 3 kids still in school, lots of germs coming into my home. What
Hello, I was dx in Jan this year and am still on W & W. My ALC in July was at 9.5, WBC.. 16 down from 19 at dx.... ANC..5.7 HGB...15...PLT .... 201 RBC .... 4.76 all seem to be stable for now. I want to stay healthy especially with my 3 kids still in school, lots of germs coming into my home. What
garrick66
in
CLL Support
8 years ago
Cold sweats ?
K after feeling 100 percent for 4 days well ! Today I bin feeling great yes jus bin overheating all day like cold sweats :D!?? Im in B.C and its the end of summer cold and so I have had the windows open all day had a cold shower it stopped it awhile ago but im cold with a blanket on wile sweating tho
K after feeling 100 percent for 4 days well ! Today I bin feeling great yes jus bin overheating all day like cold sweats :D!?? Im in B.C and its the end of summer cold and so I have had the windows open all day had a cold shower it stopped it awhile ago but im cold with a blanket on wile sweating tho
Dylon19
in
Anxiety Support
8 years ago
Chronic kidney disease and vitamin d deficiency
Ckd 3 has anyone been on vitamin d medication for severe deficiency ? I've been taking 20,000 once a week now for a year but my gfr has gone from 50 to 40 !! Is this the medication , diet or just decline? I also have endometriosis and adymyosis so concerned they may be damaging my kidneys!
Ckd 3 has anyone been on vitamin d medication for severe deficiency ? I've been taking 20,000 once a week now for a year but my gfr has gone from 50 to 40 !! Is this the medication , diet or just decline? I also have endometriosis and adymyosis so concerned they may be damaging my kidneys!
meg06
in
Early CKD Support
8 years ago
Expert advice needed
I am suffering from diabetes for the last 3 years. I take Lantus insulin (10 units ) daily, Diamicron XR MEX 500 and Janumet 50/500. Still my blood sugar levels don't come down to normal.
I am suffering from diabetes for the last 3 years. I take Lantus insulin (10 units ) daily, Diamicron XR MEX 500 and Janumet 50/500. Still my blood sugar levels don't come down to normal.
shyamal75
in
Diabetes India
8 years ago
inPractice Oncology CLL resource updated
Clinical Care Options inPractice chapter on CLL, authored by Jacqueline Barrientos, MD and Kanti Rai, MD, was updated earlier this month (8th August 2016). Key additions include: * Availability of an online decision aid for CLL * Updated guidance on the expanded use of ibrutinib in frontline treatment
Clinical Care Options inPractice chapter on CLL, authored by Jacqueline Barrientos, MD and Kanti Rai, MD, was updated earlier this month (8th August 2016). Key additions include: * Availability of an online decision aid for CLL * Updated guidance on the expanded use of ibrutinib in frontline treatment
AussieNeil
Partner
in
CLL Support
8 years ago
Dr, Jeff Jones on venetoclax after failing ibrutinib or idelalisib
Hi, I’m sorta back in the swing of things and have partially caught up on sleep finally. This week in the Conference Coverage section, we’ve posted an interview with Dr. Jeff Jones from ASH 2015 where we discussed the use of venetoclax for those who relapse after ibrutinib and idelalisib. You can view
Hi, I’m sorta back in the swing of things and have partially caught up on sleep finally. This week in the Conference Coverage section, we’ve posted an interview with Dr. Jeff Jones from ASH 2015 where we discussed the use of venetoclax for those who relapse after ibrutinib and idelalisib. You can view
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Leukemia CLL
Hi, I am 65 years old and have known about my Pelger-Huet Syndrome since 1992 (copie of Leukemia) and about my real Leukemia since 2006, but till now I was without treatment. 2011 though I had breast cancer. It was treated with chemo and radiation. So far so good. 3 months ago they tested me through
Hi, I am 65 years old and have known about my Pelger-Huet Syndrome since 1992 (copie of Leukemia) and about my real Leukemia since 2006, but till now I was without treatment. 2011 though I had breast cancer. It was treated with chemo and radiation. So far so good. 3 months ago they tested me through
vrenmul
in
CLL Support
8 years ago
Copd and electronic cigarettes
Does anyone have any info on this subject hubby stopped smoking after being on icu in induced coma and on life support in Feb he stopped smoking but now wants to go on e cigs I am not happy about this but is it better than tobacco
Does anyone have any info on this subject hubby stopped smoking after being on icu in induced coma and on life support in Feb he stopped smoking but now wants to go on e cigs I am not happy about this but is it better than tobacco
Me1953
in
Lung Conditions Community Forum
8 years ago
Support group meeting for those in Cardiff (UK) and the South Wales area affected by a chronic blood cancer like CLL - Weds 14th September
Hello friends Earlier in the summer a local Chronic Blood Cancer Support Group for people in Cardiff and surrounding areas was launched. The support group is being supported jointly by Leukaemia CARE and CLLSA The next meeting is on
Wednesday September 14th at Cardiff Central Library.
It has
Hello friends Earlier in the summer a local Chronic Blood Cancer Support Group for people in Cardiff and surrounding areas was launched. The support group is being supported jointly by Leukaemia CARE and CLLSA The next meeting is on
Wednesday September 14th at Cardiff Central Library.
It has
HAIRBEAR_UK
Administrator
in
CLL Support
8 years ago
Terry Evans Discusses his Evolution as a CLL Patient and Advocate
It has been incredibly busy since I returned stateside at LAX late last Monday after leaving Nairobi on Sunday. Between the jet lag and catching up with work and upcoming activities for the CLL Society, I’m in desperate need of sleep! But I have some very good news. My lab tests done the morning after
It has been incredibly busy since I returned stateside at LAX late last Monday after leaving Nairobi on Sunday. Between the jet lag and catching up with work and upcoming activities for the CLL Society, I’m in desperate need of sleep! But I have some very good news. My lab tests done the morning after
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
copd b12 definitely
good afternoon everone ..iv been very poorly last 4 weeks and just found got low b12 low folic acid kow iron .just wounder if anyone else have the same conditions and if so any advice with anything would gratefully recived .has no explanation or support from gp ..and if one condition effects the other
good afternoon everone ..iv been very poorly last 4 weeks and just found got low b12 low folic acid kow iron .just wounder if anyone else have the same conditions and if so any advice with anything would gratefully recived .has no explanation or support from gp ..and if one condition effects the other
pinkrainbows
in
Lung Conditions Community Forum
8 years ago
Common lumps and bumps on and under the skin: what are they?
With a diagnosis of SLL/CLL comes a heightened awareness of any new lumps and bumps; is our CLL becoming aggressive, do we have Richter's Transformation, or is the latest bump due to something innocuous that everyone can experience? H. Peter Soyer, Professor of Dermatology and Katie Lee, Study coordinator
With a diagnosis of SLL/CLL comes a heightened awareness of any new lumps and bumps; is our CLL becoming aggressive, do we have Richter's Transformation, or is the latest bump due to something innocuous that everyone can experience? H. Peter Soyer, Professor of Dermatology and Katie Lee, Study coordinator
AussieNeil
Partner
in
CLL Support
8 years ago
Adding additional chemo
I am being treated for CLL for the second time after being in remission for 9 years...which is a blessing. I am currently taking oral Imbruvica... My most recent bone marrow biopsy showed little change after 3 months. If there is still no change in November, my Oncologist will add either .bendamustine
I am being treated for CLL for the second time after being in remission for 9 years...which is a blessing. I am currently taking oral Imbruvica... My most recent bone marrow biopsy showed little change after 3 months. If there is still no change in November, my Oncologist will add either .bendamustine
lyn26041
in
CLL Support
8 years ago
new to this forum
Hi, I'm Babskatz - pensioner with various problems.. suffer with IBSD and anxiety. Also have angina if that's relevant Am gluten and dairy intolerant and have problems with IBS if I overdo the fat, so a bag of chips is a luxury that I can no longer happily eat. On medication for angina, take Colofac
Hi, I'm Babskatz - pensioner with various problems.. suffer with IBSD and anxiety. Also have angina if that's relevant Am gluten and dairy intolerant and have problems with IBS if I overdo the fat, so a bag of chips is a luxury that I can no longer happily eat. On medication for angina, take Colofac
babskatz
in
IBS Network
8 years ago
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