I'm a CLL and ITP patient and have had many different treatments in the past number of years. Following a recent CT scan and an increase in the size of my lymph nodes, my consultant is proposing that I start the new drug Ibrutinib.
My history of treatments hasn't always been successful and I have been hospitalised several times due to bad reactions and/or infections, so naturally I'm very cautious and concerned about starting this new drug.
As far as I am aware, Ibrutinib is for people whose CLL has relapsed after treatment and who have certain genetic changes (17p deletion, where some genes are missing) in their lymphoma cells that make their condition harder to treat.
I would love to hear from other members who have experienced this new drug, or perhaps who know someone who is going through treatment with it. I've read and re-read the clinical information but some human experience would be much welcomed.
Thanks in advance.