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EHA 2016: Dr. George Follows talks about the changing management of CLL
Today in the Conference Coverage section of the CLL Society website, we’ve posted an interview with Dr. George Follows where he talks about the changing management of CLL and what the patient’s role is to get the best possible care. Dr. Follows chaired the session I spoke at at the European Hematology
Today in the Conference Coverage section of the CLL Society website, we’ve posted an interview with Dr. George Follows where he talks about the changing management of CLL and what the patient’s role is to get the best possible care. Dr. Follows chaired the session I spoke at at the European Hematology
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Neutropenia again
My husband had a bad pneumonia and admitted to the hospital. He has been having neutropenia and low WBC at 1.7 for several months. The heme-onc physician was scheduled to see him in November but because of the bad fever and tremors, we went to the ER. They admitted him and loaded him with antibiotics
My husband had a bad pneumonia and admitted to the hospital. He has been having neutropenia and low WBC at 1.7 for several months. The heme-onc physician was scheduled to see him in November but because of the bad fever and tremors, we went to the ER. They admitted him and loaded him with antibiotics
Jani14
in
CLL Support
8 years ago
Australian Government has committed to new reforms aimed at streamlining access to medicines including novel and life-saving therapies
[i]'A number of reforms recommended by the Medicines and Medical Devices Review address key recommendations the Leukaemia Foundation has made in multiple submissions to the Australian Government. These highlight the impact of drug availability for people with blood cancer and their families'[/i] Leukaemia
[i]'A number of reforms recommended by the Medicines and Medical Devices Review address key recommendations the Leukaemia Foundation has made in multiple submissions to the Australian Government. These highlight the impact of drug availability for people with blood cancer and their families'[/i] Leukaemia
AussieNeil
Partner
in
CLL Support
8 years ago
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Melbourne Australia CLL Education Day - Thurs 10th November, Prof Peter Hillmen from Leeds UK and chairman of BNCI CLL Trials subgroup
Peter Hillmen from Leeds, UK will be joining local experts to give us the latest information for the treatment of CLL. Time: Thursday 10th of November 1:30 to 3PM Venue: Victorian Comprehensive Cancer Centre, Level 7, 305 Grattan Street, Melbourne Patients, Carers and Interested Health Professionals
Peter Hillmen from Leeds, UK will be joining local experts to give us the latest information for the treatment of CLL. Time: Thursday 10th of November 1:30 to 3PM Venue: Victorian Comprehensive Cancer Centre, Level 7, 305 Grattan Street, Melbourne Patients, Carers and Interested Health Professionals
AussieNeil
Partner
in
CLL Support
8 years ago
Low EGFR
Hi guys, I'm new to this kidney blog but have come on here as I am at a bit lost with it all. My EGFR is usually around the 40 mark with Creatinine around 160. Unfortunately I also have a couple of fractured vertebrae from my osteoporosis so I have recently been taking Amitriptylin for the pain. Now
Hi guys, I'm new to this kidney blog but have come on here as I am at a bit lost with it all. My EGFR is usually around the 40 mark with Creatinine around 160. Unfortunately I also have a couple of fractured vertebrae from my osteoporosis so I have recently been taking Amitriptylin for the pain. Now
Hidden
in
Early CKD Support
8 years ago
First post
Hi there everyone, i am a 56 year old man who has COPD and liver cirrhosis caused by being hepatitis c positive for 35 years. I have just recently cleared the hepatitis with a 12 week course of the new drugs that are out for it. That leaves my COPD!. I was hospitalised with a pretty bad excaberation
Hi there everyone, i am a 56 year old man who has COPD and liver cirrhosis caused by being hepatitis c positive for 35 years. I have just recently cleared the hepatitis with a 12 week course of the new drugs that are out for it. That leaves my COPD!. I was hospitalised with a pretty bad excaberation
Sykesy01
in
Lung Conditions Community Forum
8 years ago
Hysteroscopy,Polypectomy and Mirena Insertion
Hello, I started having problems in my lower abdomen in April and I visited the gynecologist and she suspected endometriosis since my periods were pretty heavy and painful. She referred me to a specialist and she discovered that I had a polyp in uterus. On Tuesday morning I went in for hysteroscopy
Hello, I started having problems in my lower abdomen in April and I visited the gynecologist and she suspected endometriosis since my periods were pretty heavy and painful. She referred me to a specialist and she discovered that I had a polyp in uterus. On Tuesday morning I went in for hysteroscopy
Fah1234
in
Endometriosis UK
8 years ago
CLL and Tooth Decay
Has anyone ever had tooth decay due to neutropenia and/or low immunoglobulins? Thanks!
Has anyone ever had tooth decay due to neutropenia and/or low immunoglobulins? Thanks!
Nutcake
in
CLL Support
8 years ago
ASCO 2016: Dr. Susan O’Brien where she discusses frontline data on Acalabrutinib in CLL
We are 8 weeks out from the 2016 annual meeting of the American Society of Hematology and realize that we have quite a few interviews from the ASCO and EHA meetings that have not yet been posted, so we’ll be posting twice a week until they are all out the door on the CLL Society's website. If you have
We are 8 weeks out from the 2016 annual meeting of the American Society of Hematology and realize that we have quite a few interviews from the ASCO and EHA meetings that have not yet been posted, so we’ll be posting twice a week until they are all out the door on the CLL Society's website. If you have
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Newsletter and Our Survey on What Patients Want was Accepted or Publication at ASH 2016
Hi, Last week we published the latest issue of The CLL Tribune. We’re so grateful to the patients, and physicians and others who share their experience and expertise to enrich our CLL Society community. If you would like to share your story, or have ideas for future articles, please reach out to us.
Hi, Last week we published the latest issue of The CLL Tribune. We’re so grateful to the patients, and physicians and others who share their experience and expertise to enrich our CLL Society community. If you would like to share your story, or have ideas for future articles, please reach out to us.
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
My first post.
I was diagnosed with CLL a little over a year ago. And what a strange emotional ride it has been. The watch and wait, feeling tired when you do the things you normally had no trouble doing. But feeling blessed at the same time that it isn't worse. I have good support with my husband and son, but it's
I was diagnosed with CLL a little over a year ago. And what a strange emotional ride it has been. The watch and wait, feeling tired when you do the things you normally had no trouble doing. But feeling blessed at the same time that it isn't worse. I have good support with my husband and son, but it's
fxdx1
in
CLL Support
8 years ago
MTHFR and EBV results
Good Morning, It wasn't difficult to convince my Dr. to continue shots weekly instead of monthly when he witnessed my deteriorating condition. The tiredness would not go away and at times was fearful of driving if you recall in my last post. Along with a high homocysteine on previous lab he decided
Good Morning, It wasn't difficult to convince my Dr. to continue shots weekly instead of monthly when he witnessed my deteriorating condition. The tiredness would not go away and at times was fearful of driving if you recall in my last post. Along with a high homocysteine on previous lab he decided
mislauren
in
Pernicious Anaemia Society
8 years ago
mum in hospital with kidney failure...new member
Hi I hope you don't mind me writing on here as its about my mum and her recent episode of illness that has left her in hospital. mum has had heart failure and kidney disease for many years on top of a number of smaller ailments. last week we thought we had lost her as she was taken to hospital by
Hi I hope you don't mind me writing on here as its about my mum and her recent episode of illness that has left her in hospital. mum has had heart failure and kidney disease for many years on top of a number of smaller ailments. last week we thought we had lost her as she was taken to hospital by
snowygirl
in
Early CKD Support
8 years ago
Starting Montelukast tonight
Collected my prescription from the pharmacy ,the pharmacist asked if I'd taken it before and I said no ,so he said take it an hour before bed ,any signs of allergic reaction to stop it immediately and phone the GP ,,,,,other than that he will ring me after seven days to see how I'm getting on with it
Collected my prescription from the pharmacy ,the pharmacist asked if I'd taken it before and I said no ,so he said take it an hour before bed ,any signs of allergic reaction to stop it immediately and phone the GP ,,,,,other than that he will ring me after seven days to see how I'm getting on with it
Nanny1086
in
Lung Conditions Community Forum
8 years ago
10 ways tech is improving cancer research
A Techrepublic article has just highlighted some exciting technological developments, with the following probably more relevant to CLL than the other items, which are more relevant to solid tumours: 1. Microsoft Project Hanover: Maximizing research 2. NASA: Using space technology to find cancer markers
A Techrepublic article has just highlighted some exciting technological developments, with the following probably more relevant to CLL than the other items, which are more relevant to solid tumours: 1. Microsoft Project Hanover: Maximizing research 2. NASA: Using space technology to find cancer markers
AussieNeil
Partner
in
CLL Support
8 years ago
Hi all
Hi folks Hope you're all well as can be expected. I've been to the respiratory clinic today. I haven't got my fev readings yet they will post a report out to me. However they said my lung age 76. I'm only 48. I've been prescribed formoterol fumarate and cetirizine, I'm already taking monteleukast and
Hi folks Hope you're all well as can be expected. I've been to the respiratory clinic today. I haven't got my fev readings yet they will post a report out to me. However they said my lung age 76. I'm only 48. I've been prescribed formoterol fumarate and cetirizine, I'm already taking monteleukast and
LaurieRose
in
Lung Conditions Community Forum
8 years ago
Newly Diagnosed CLL plus CTCL
I celebrated my 60th birthday last May by being diagnosed with CTCL (cutaneous T-cell lymphoma) and CLL (Stage 0, all genetic markers in my favor). Initially I had a surprising sense of relief, as I swim for exercise and was getting frustrated with my performance. A year an a half before my diagnosis
I celebrated my 60th birthday last May by being diagnosed with CTCL (cutaneous T-cell lymphoma) and CLL (Stage 0, all genetic markers in my favor). Initially I had a surprising sense of relief, as I swim for exercise and was getting frustrated with my performance. A year an a half before my diagnosis
prhamann
in
CLL Support
8 years ago
Liver Transplant - 2 Years On
New to the site & only found it because I was looking for some travel advice (found that ). I had my transplant on 18 Aug 2014 and am now feeling a whole lot better than I did before the op. The first year was 'different' - taking all those medications, keeping a close eye on diet and coping with a
New to the site & only found it because I was looking for some travel advice (found that ). I had my transplant on 18 Aug 2014 and am now feeling a whole lot better than I did before the op. The first year was 'different' - taking all those medications, keeping a close eye on diet and coping with a
Hidden
in
British Liver Trust
8 years ago
Upper left spasms
Hi... Sorry I'm new here so hope I'm doing this right ! Iv had IBS off and on for years last bad flare up over a year ago I was put on colofac mr which worked with spasm and IBS -D, but I also had a camera to check my stomach as I had tightness in my tummy all was fine But last couple of weeks Iv had
Hi... Sorry I'm new here so hope I'm doing this right ! Iv had IBS off and on for years last bad flare up over a year ago I was put on colofac mr which worked with spasm and IBS -D, but I also had a camera to check my stomach as I had tightness in my tummy all was fine But last couple of weeks Iv had
Sweepy13
in
IBS Network
8 years ago
Morning Gang!!!,
Can anyone tell me the difference between chronic fatigue syndrome and fibromyalgia please??
Can anyone tell me the difference between chronic fatigue syndrome and fibromyalgia please??
Littlestar82
in
Fibromyalgia Action UK
8 years ago
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