Search
Search
About
Log in
Join
Experiences with
Colonic polyps
Posts
Communities
2,351 public posts
Filter results
New compendium of quality CLL resources for patients + your hematologist
I am sharing a collection of high quality CLL resources for both patients and hematologists. First, the patient resources which include: patient checklist doctor visit checklist building your CLL team financial support tracking lab reports. These important resources are from leading
I am sharing a collection of high quality CLL resources for both patients and hematologists. First, the patient resources which include: patient checklist doctor visit checklist building your CLL team financial support tracking lab reports. These important resources are from leading
GlennSabin
in
CLL Support
5 years ago
Looking for CLL specialist in Denver, CO
Hi, so my hematologist has said I need to start chemo , undergoing lymph node biopsy tomorrow to make sure its CLL and not lymphoma since I was dx only on blood work, but before I actually start chemo was thinking I should see a CLL specialist (esp. because you all have recommended it). Does anyone
Hi, so my hematologist has said I need to start chemo , undergoing lymph node biopsy tomorrow to make sure its CLL and not lymphoma since I was dx only on blood work, but before I actually start chemo was thinking I should see a CLL specialist (esp. because you all have recommended it). Does anyone
jgamberg
in
CLL Support
5 years ago
Post Liver Transplant
My name is Iskandar, from Tajikistan post liver transplant patient. I was under treatment from march 2018 until January 2019. My transplant surgery was done in April 2018.. Now I am on recovery period, I feel weak with Osteoporosis because of much steroids and kidney stones. Any Transplant Doctor Reco
My name is Iskandar, from Tajikistan post liver transplant patient. I was under treatment from march 2018 until January 2019. My transplant surgery was done in April 2018.. Now I am on recovery period, I feel weak with Osteoporosis because of much steroids and kidney stones. Any Transplant Doctor Reco
Jazzy_Jazz
in
British Liver Trust
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Anniversary QEH Hospital Visit
Just a quick message to express relief after my first anniversary visit, all is still going really well and my anti immune drugs have been stopped, so down to just 3 prograf a day, plus asprin. I feel so lucky and will have some thoughts and thanks to my donor, and make sure I take advantage of the precious
Just a quick message to express relief after my first anniversary visit, all is still going really well and my anti immune drugs have been stopped, so down to just 3 prograf a day, plus asprin. I feel so lucky and will have some thoughts and thanks to my donor, and make sure I take advantage of the precious
Hidden
in
British Liver Trust
5 years ago
Article linking ME/CFS to Thyroid issues
Anyone seen this? I was particularly interested in the HHV-6 virus, which I haven't heard about before. I'm also interested in a possible link between ME/CFS as 3 of my kid's friends have it. It makes me so cross that none of them are getting any better after years! A New Thyroid Subset For Chronic
Anyone seen this? I was particularly interested in the HHV-6 virus, which I haven't heard about before. I'm also interested in a possible link between ME/CFS as 3 of my kid's friends have it. It makes me so cross that none of them are getting any better after years! A New Thyroid Subset For Chronic
Winegum2
in
Thyroid UK
5 years ago
CG-806... starts the long trek..
Aptose Biosciences announced that it has submitted an Investigational New Drug (IND) application for CG-806 to the U.S. Food and Drug Administration (FDA) requesting approval to initiate its Phase 1 clinical trial program. CG-806 is an oral, first-in-class small molecule inhibitor of all known forms
Aptose Biosciences announced that it has submitted an Investigational New Drug (IND) application for CG-806 to the U.S. Food and Drug Administration (FDA) requesting approval to initiate its Phase 1 clinical trial program. CG-806 is an oral, first-in-class small molecule inhibitor of all known forms
Cllcanada
Top Poster CURE Hero
in
CLL Support
5 years ago
Diet recommendation!!
Hello everyone! Sorry for a long Post. As I posted earlier my husband is suffering from CKD3 with GRF 50 and creatinine 1.4. Cause: long term hypertension but well controlled with medication. Eating routine! Breakfast: Fresh juice of beetroot, carrot, apples, pomegranate and strawberries. He takes two
Hello everyone! Sorry for a long Post. As I posted earlier my husband is suffering from CKD3 with GRF 50 and creatinine 1.4. Cause: long term hypertension but well controlled with medication. Eating routine! Breakfast: Fresh juice of beetroot, carrot, apples, pomegranate and strawberries. He takes two
Fatiooi
in
Early CKD Support
5 years ago
Feeling Worried
I posted on here 10 days ago regarding my eGFR dropping from 52 to 36 since October. I had a lot of helpful information for which I am grateful but I had another U&E test last week (18 days after the previous test) and the results came back as Urea 23.9, Creatinine 187 and eGFR 24 with an AKI 1 warning
I posted on here 10 days ago regarding my eGFR dropping from 52 to 36 since October. I had a lot of helpful information for which I am grateful but I had another U&E test last week (18 days after the previous test) and the results came back as Urea 23.9, Creatinine 187 and eGFR 24 with an AKI 1 warning
angedogs
in
Early CKD Support
5 years ago
Appt with consultant
Hi everyone. I don’t often post but like to read all yours. I was told 8 yrs ago I had mild emphysema and given Tiotropium I have been fine all this time. 6/8 months ago I started getting more breathless until now going up stairs or uphill is a bit of a nightmare. I have a blue inhaler but it doesn’t
Hi everyone. I don’t often post but like to read all yours. I was told 8 yrs ago I had mild emphysema and given Tiotropium I have been fine all this time. 6/8 months ago I started getting more breathless until now going up stairs or uphill is a bit of a nightmare. I have a blue inhaler but it doesn’t
Looseloafers
in
Lung Conditions Community Forum
5 years ago
CLL Tracker - Patient Data
In 2011 CLL Tracker www.clltracker.co.uk was introduced to share patient specific data on their CLL experiences. This international website provides detailed information, in graphical form, relating to: • Demographics • Diagnosis and staging • Prognostic markers • Blood results • Treatments • Complications
In 2011 CLL Tracker www.clltracker.co.uk was introduced to share patient specific data on their CLL experiences. This international website provides detailed information, in graphical form, relating to: • Demographics • Diagnosis and staging • Prognostic markers • Blood results • Treatments • Complications
RobertCLL
in
CLL Support
5 years ago
New to Site Imbruvica & Rituxan how are they tolerated together.
I’m new to the site but not new to CLL. I was diagnosed in 2003 and was watch and wait. Had treatment with fludarabine.. Was in remission for 10 years. Then back to watch and wait. Started imbruvica Jan 2019..first two weeks WBC came down...last two weeks the number went higher than when I started
I’m new to the site but not new to CLL. I was diagnosed in 2003 and was watch and wait. Had treatment with fludarabine.. Was in remission for 10 years. Then back to watch and wait. Started imbruvica Jan 2019..first two weeks WBC came down...last two weeks the number went higher than when I started
Bobbietf
in
CLL Support
5 years ago
Is Bone marrow flow test is necessary every year?
I had bone marrow biopsy and flow test when I was diagnosed with CLL. But now I came to know that it is necessary to have BM flow test every year. Please share some information. Thanks
I had bone marrow biopsy and flow test when I was diagnosed with CLL. But now I came to know that it is necessary to have BM flow test every year. Please share some information. Thanks
Supratim
in
CLL Support
5 years ago
New Oxford-developed tool reads the life histories of cancer cells - how subclones develop
[i]"..a team of Oxford researchers has developed a way to track the genetic "life histories" of thousands of individual cancer cells at once, which may lead to more effective and personalized cancer treatments. Cancer cells are basically just normal cells that have accumulated certain mutations that
[i]"..a team of Oxford researchers has developed a way to track the genetic "life histories" of thousands of individual cancer cells at once, which may lead to more effective and personalized cancer treatments. Cancer cells are basically just normal cells that have accumulated certain mutations that
AussieNeil
Partner
in
CLL Support
5 years ago
Question - how many different varieties of antibodies can B-cells make? Hint - it's hypermutation (IGHV mutation) that makes it possible
Answer, 1 quintillion or 1,000,000,000,000,000,000 or 10^18 according to[i] a team led by Drs. Bryan Briney and Dennis R. Burton at Scripps Research examined antibody-producing B cells isolated from blood samples of 10 people between the ages of 18 and 30. ... Additional studies are needed to more accurately
Answer, 1 quintillion or 1,000,000,000,000,000,000 or 10^18 according to[i] a team led by Drs. Bryan Briney and Dennis R. Burton at Scripps Research examined antibody-producing B cells isolated from blood samples of 10 people between the ages of 18 and 30. ... Additional studies are needed to more accurately
AussieNeil
Partner
in
CLL Support
5 years ago
Holy Tired
Hello, 50 year old male. Diagnosed with cll nearly 2 years ago. I see cll specialist every 3 months. 13q deleted. W and W. Dr. Not concerned about my blood numbers or my symtom. I have complained about one symptom since acquiring cll and that is fatigue. The fatigue can get so bad that it is affecting
Hello, 50 year old male. Diagnosed with cll nearly 2 years ago. I see cll specialist every 3 months. 13q deleted. W and W. Dr. Not concerned about my blood numbers or my symtom. I have complained about one symptom since acquiring cll and that is fatigue. The fatigue can get so bad that it is affecting
Dew77
in
CLL Support
5 years ago
Vitafusion (gorgeous hair, skin & nails) multivitamin pkus biotin & antioxidants
Hello I just bought this vitamins last night and just started my second dose and just like last night i got really sleepy after taking them... I felt tired and relaxed and didnt wanna do anything but sleep and it recommended taking 3 gummies daily... Anyone tired gummy vitamins or any other multivitamin
Hello I just bought this vitamins last night and just started my second dose and just like last night i got really sleepy after taking them... I felt tired and relaxed and didnt wanna do anything but sleep and it recommended taking 3 gummies daily... Anyone tired gummy vitamins or any other multivitamin
Destinyweathers
in
Healthy Evidence
5 years ago
Laymen’s genetic markers, fish test etc
Wondering where or maybe here someone can enlighten me about genetic markers involved in cll! Plan on starting treatment next month after almost 11 years W/W. I called the dr.s office this am 5:45 to be exact and asked to have a fish panel added. So I guess I’d also like to know what Genetic maker
Wondering where or maybe here someone can enlighten me about genetic markers involved in cll! Plan on starting treatment next month after almost 11 years W/W. I called the dr.s office this am 5:45 to be exact and asked to have a fish panel added. So I guess I’d also like to know what Genetic maker
haposwald
in
CLL Support
5 years ago
CLL Counts Reducing.
Hi, I am new to this site. I was diagnosed with CLL about 5yrs ago. I am watch and wait, with no signs of any symptoms. On 3/04/2017 my white cell count was 86.9, Units 10^9/L, Range (4.0-11.0). My Lymphocytes where 79.1, Units 10^9/L, Range (1.0-4.0). Since the 3/04/2017 I have had blood tests every
Hi, I am new to this site. I was diagnosed with CLL about 5yrs ago. I am watch and wait, with no signs of any symptoms. On 3/04/2017 my white cell count was 86.9, Units 10^9/L, Range (4.0-11.0). My Lymphocytes where 79.1, Units 10^9/L, Range (1.0-4.0). Since the 3/04/2017 I have had blood tests every
cartnpeg
in
CLL Support
5 years ago
Lymph node biopsy to rule out Richtors
So I got the shock of my life. My hematologist wants to have me undergo a fine needle biopsy to rule out RS. They will biopsy the largest node. It’s 5 cm. Well that was a kick to the stomach.
So I got the shock of my life. My hematologist wants to have me undergo a fine needle biopsy to rule out RS. They will biopsy the largest node. It’s 5 cm. Well that was a kick to the stomach.
Lola69
in
CLL Support
5 years ago
CLL Society Alert (newsletter for USA patients)- Video Interviews with Dr. Furman, Dr. Koffman- Educational Forums & Support Groups - USA
To read the full details with live HTML links go here: https://cllsociety.org/2019/01/january-29-2019/ or here: https://cllsociety.org/Alerts/January-29-Alert.pdf - Dear Friends and Supporters of the CLL Society, I interviewed Dr. Rick Furman to set the stage for how to best consider some of the new
To read the full details with live HTML links go here: https://cllsociety.org/2019/01/january-29-2019/ or here: https://cllsociety.org/Alerts/January-29-Alert.pdf - Dear Friends and Supporters of the CLL Society, I interviewed Dr. Rick Furman to set the stage for how to best consider some of the new
lankisterguy
Volunteer
in
CLL Support
5 years ago
1
...
49
50
51
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1441 results
Lung Conditions Community Forum
217 results
Diabetes India
81 results
View top 10 communities
Sort by
Most Relevant
Newest