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Is exercise always beneficial??
Hello there. After a lazy holiday away and a few housebound rainy days lately, I have come to the startling conclusion that my brisk daily dog walks (2 x 1 hours) are actually making my chest very much worse. My diagnosis is Lupus/UCTD with resp muscle weakness & small Airways Disease. I'm 50, slim
Hello there. After a lazy holiday away and a few housebound rainy days lately, I have come to the startling conclusion that my brisk daily dog walks (2 x 1 hours) are actually making my chest very much worse. My diagnosis is Lupus/UCTD with resp muscle weakness & small Airways Disease. I'm 50, slim
Fennella02
in
Lung Conditions Community Forum
7 years ago
COPD advice please...
Hello everyone, I was diagnosed with COPD when I was 58 and gave up smoking 3 years ago I am 66 now and in Stage 4. Although I am still fairly active, walking, shopping etc., I have slowed down dramatically, can no longer hurry or run and normal household chores are a real chore now, frequently getting
Hello everyone, I was diagnosed with COPD when I was 58 and gave up smoking 3 years ago I am 66 now and in Stage 4. Although I am still fairly active, walking, shopping etc., I have slowed down dramatically, can no longer hurry or run and normal household chores are a real chore now, frequently getting
SteveHill
in
Lung Conditions Community Forum
7 years ago
Question on Complete Stem Cell Transplant
Has anyone out there ever had a complete stem cell transplant? I will be going with my sister in law this coming week to Emory Hospital in Atlanta to find out the details. Would like to hear the good and the bad if you or if you know anyone who has had this done. She has CLL but has the P17 deletion
Has anyone out there ever had a complete stem cell transplant? I will be going with my sister in law this coming week to Emory Hospital in Atlanta to find out the details. Would like to hear the good and the bad if you or if you know anyone who has had this done. She has CLL but has the P17 deletion
evetom
in
CLL Support
7 years ago
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What meds. are okay to take with Copd?
I know I have posted about the bad affects of antidepressants. However, I also know that I need something to help me have a better outlook these days. I have heard Celexa is bad, and that is what I currently take. :o It helps me some, but I heard/read it's bad with all of our breathing issues, and
I know I have posted about the bad affects of antidepressants. However, I also know that I need something to help me have a better outlook these days. I have heard Celexa is bad, and that is what I currently take. :o It helps me some, but I heard/read it's bad with all of our breathing issues, and
phyllis_liberty
in
COPD Friends
7 years ago
CLL and Low estrogen treatments
Does anyone have any information about CLL and taking either Black Cohosh or Estrovera for low estrogen? Or any other insights into managing low estrogen and CLL? Thanks.
Does anyone have any information about CLL and taking either Black Cohosh or Estrovera for low estrogen? Or any other insights into managing low estrogen and CLL? Thanks.
cjspolyar
in
CLL Support
7 years ago
A great success by approaching things from the other direction!
I will keep this short, so if any one wants to ask me more about this they can do so. I posted some time ago about approaching RLS from the viewpoint of fixing my sleep problems first, not the RLS. And that is what I have been doing. After more than 6 years of having great difficulty sleeping, with
I will keep this short, so if any one wants to ask me more about this they can do so. I posted some time ago about approaching RLS from the viewpoint of fixing my sleep problems first, not the RLS. And that is what I have been doing. After more than 6 years of having great difficulty sleeping, with
lauraflora
in
Restless Legs Syndrome
7 years ago
CLL in stage zero.
Hello, I am new to this group and wanted to introduce myself. I was diagnosed with CLL two years ago and remain in stage zero. I am 57 years old and they found it by chance when I was having stomach problems. My could go up and down a little but not enough for treatment. The only thing that concerns
Hello, I am new to this group and wanted to introduce myself. I was diagnosed with CLL two years ago and remain in stage zero. I am 57 years old and they found it by chance when I was having stomach problems. My could go up and down a little but not enough for treatment. The only thing that concerns
noeagaman
in
CLL Support
7 years ago
Unmutated Newbie
Hello, all ~ First off, thanks to everyone for sharing information and personal experiences with CLL! I was diagnosed in March of this year, am stage 0, normal karyotype, just barely over the cutoff between mutated/unmutated. My CLL doc considers me intermediate risk due to being unmutated (and positive
Hello, all ~ First off, thanks to everyone for sharing information and personal experiences with CLL! I was diagnosed in March of this year, am stage 0, normal karyotype, just barely over the cutoff between mutated/unmutated. My CLL doc considers me intermediate risk due to being unmutated (and positive
yazbe
in
CLL Support
7 years ago
what is the time period for take insulin in same place in the body ?
Hi, what is the time period for take insulin in same place in body. can we continue same place everyday? my doc. suggested to take insulin 4 times a day rapid 3 time and lantuas at before bed? present i am taking rapid insulin to stomach and lantus on legs. But i found it's not affecting. can you please
Hi, what is the time period for take insulin in same place in body. can we continue same place everyday? my doc. suggested to take insulin 4 times a day rapid 3 time and lantuas at before bed? present i am taking rapid insulin to stomach and lantus on legs. But i found it's not affecting. can you please
RajpsChai
in
Diabetes India
7 years ago
Over nine years of blogging since transplant for CLL (chronic lymphocytic leukemia) on July 1, 2008
Hi, What a long strange trip it’s been. I just posted one of my old school blog post about my CLL journey: http://bkoffman.blogspot.com Some of you have been along for most of my almost 12 year CLL/ITP/ HSCT/ clinical trial journey and the last 9+ years of blogging about it, and the last 2 + years of
Hi, What a long strange trip it’s been. I just posted one of my old school blog post about my CLL journey: http://bkoffman.blogspot.com Some of you have been along for most of my almost 12 year CLL/ITP/ HSCT/ clinical trial journey and the last 9+ years of blogging about it, and the last 2 + years of
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
The CLL Tribune is full of articles written by CLL experts and fellow patients.
Hi, Last week we proudly published the latest issue of The CLL Tribune (http://www.cllsociety.org/newsletter/). We're so grateful to the patients and physicians who share their experiences and expertise to enrich our CLL Society community. If you would like to share your story, or have ideas for future
Hi, Last week we proudly published the latest issue of The CLL Tribune (http://www.cllsociety.org/newsletter/). We're so grateful to the patients and physicians who share their experiences and expertise to enrich our CLL Society community. If you would like to share your story, or have ideas for future
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
2nd kidney
Hello all, I'm new to this app and wanted to see what it's all about.. I'm about to receive my second kidney transplant, in which the first one lasted me 15 years. Don't really have a lot of energy but trying to think of things I could do while at home since I'm not working and on disability. Any ideas
Hello all, I'm new to this app and wanted to see what it's all about.. I'm about to receive my second kidney transplant, in which the first one lasted me 15 years. Don't really have a lot of energy but trying to think of things I could do while at home since I'm not working and on disability. Any ideas
AlexysB
in
Kidney Dialysis
7 years ago
up date
hello again , ok Had a go at the doctor about not hearing me and what I was saying to him , He still saying that I'm not right about the B12 but he has put me in for more tests but can not work out what this is for , Can you help ?? Serum sodium level (XE2q0) 139 mmol/L [133.0-146.0] Serum potassium
hello again , ok Had a go at the doctor about not hearing me and what I was saying to him , He still saying that I'm not right about the B12 but he has put me in for more tests but can not work out what this is for , Can you help ?? Serum sodium level (XE2q0) 139 mmol/L [133.0-146.0] Serum potassium
nicky-nicky159
in
Thyroid UK
7 years ago
Upper left abdomen pain (ibs and ibs-d)
Hi there, I'm 17 and just over a year ago I was diagnosed with IBS. Just recently I've been having quite severe pain under my left breast in the abdomen area near the upper ribs. I do take colofac and buscopan and they don't seem to be helping. Also, for the past month i have been having IBSD non-stop
Hi there, I'm 17 and just over a year ago I was diagnosed with IBS. Just recently I've been having quite severe pain under my left breast in the abdomen area near the upper ribs. I do take colofac and buscopan and they don't seem to be helping. Also, for the past month i have been having IBSD non-stop
Convey
in
IBS Network
7 years ago
"New blood cancer study announces 'outstanding' results"
This discusses the results from trials over the last three years, carried out by a group headed by my former consultant: http://www2.le.ac.uk/news/blog/2017-archive/april/outstanding-results-announce-from-new-blood-cancer-study Some funding is from Gilead, as disclosed in this interview: https://medicalresearch.com
This discusses the results from trials over the last three years, carried out by a group headed by my former consultant: http://www2.le.ac.uk/news/blog/2017-archive/april/outstanding-results-announce-from-new-blood-cancer-study Some funding is from Gilead, as disclosed in this interview: https://medicalresearch.com
deveritt
in
CLL Support
7 years ago
Chest infection
Hi everyone, Just getting over a chest infection on antibiotics and steroids. This time the nurse gave me (Braltus) tiotropium to take I don't understand why I'm on this now and have to take it for life... didn't really say why just cause I keep getting chest infections... I hadn't had one for 6 months
Hi everyone, Just getting over a chest infection on antibiotics and steroids. This time the nurse gave me (Braltus) tiotropium to take I don't understand why I'm on this now and have to take it for life... didn't really say why just cause I keep getting chest infections... I hadn't had one for 6 months
GayleM
in
Lung Conditions Community Forum
7 years ago
Need advice on treatment options for relapsed SLL
I will be going for a follow-up visit with my specialist at UPENN after new blood work to check for mutations and to discuss treatment options. My questions is: Based upon my SLL parameters what drugs other than ibrutinib may be an option? I am a female 63, diagnosed in 2008 with SLL. I was treated
I will be going for a follow-up visit with my specialist at UPENN after new blood work to check for mutations and to discuss treatment options. My questions is: Based upon my SLL parameters what drugs other than ibrutinib may be an option? I am a female 63, diagnosed in 2008 with SLL. I was treated
ReneeSusan
in
CLL Support
7 years ago
The Ambulatory club-Delivery day
Hooray,after a 10 day delay because respiratory nurse forgot to send in Hoof form,the official club cylinders have been delivered. The nice young man from Air Liquide proudly advised me that it was his last day of service with the company and he was leaving to be a self employed electrician.Great thought
Hooray,after a 10 day delay because respiratory nurse forgot to send in Hoof form,the official club cylinders have been delivered. The nice young man from Air Liquide proudly advised me that it was his last day of service with the company and he was leaving to be a self employed electrician.Great thought
skischool
in
Lung Conditions Community Forum
7 years ago
I've just reviewed treatments and am more confused!
The range of medical opinions and videos, combined with and problems reading long posts at the moment (various reasons) are beginning to cause me some degree of anxiety, and adding to my confusion. So I'd like some straight, simple information, if possible. I'm failing to understand this completely despite
The range of medical opinions and videos, combined with and problems reading long posts at the moment (various reasons) are beginning to cause me some degree of anxiety, and adding to my confusion. So I'd like some straight, simple information, if possible. I'm failing to understand this completely despite
deveritt
in
CLL Support
7 years ago
Out of no where
Hi there, new to the community, suffered with IBS for over 4 years now and had taken Colofac Mebeverine.. I stopped taking this around 2 years ago and take a daily peppermint oil tab, up until around 2 months ago I have been mostly ibs free for over a year and one day around a couple of months ago the
Hi there, new to the community, suffered with IBS for over 4 years now and had taken Colofac Mebeverine.. I stopped taking this around 2 years ago and take a daily peppermint oil tab, up until around 2 months ago I have been mostly ibs free for over a year and one day around a couple of months ago the
Sk1nnerB
in
IBS Network
7 years ago
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