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HCL patient seminar London September 20th
The Royal Marsden in Partnership with the Hairy Cell Leukaemia Foundation is hosting the first hairy cell leukaemia (HCL) patient seminar in Europe. September 20, 2014 The Royal Marsden Education & Conference Centre Julian Bloom Lecture Theatre Stewart’s Grove, London SW3 6JJ Contact For further
The Royal Marsden in Partnership with the Hairy Cell Leukaemia Foundation is hosting the first hairy cell leukaemia (HCL) patient seminar in Europe. September 20, 2014 The Royal Marsden Education & Conference Centre Julian Bloom Lecture Theatre Stewart’s Grove, London SW3 6JJ Contact For further
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
Spirometry result
I had my spirometry test on Tuesday and it has come back as normal, I think it's FEV 77 and FVC 79 from what I can see. My lung age is 64, I'm 51, so that's not too good. So apparently I don't yet have COPD, but at high risk of developing it, so def need to stop smoking. The nurse gave me some champix
I had my spirometry test on Tuesday and it has come back as normal, I think it's FEV 77 and FVC 79 from what I can see. My lung age is 64, I'm 51, so that's not too good. So apparently I don't yet have COPD, but at high risk of developing it, so def need to stop smoking. The nurse gave me some champix
Poppin
in
Lung Conditions Community Forum
10 years ago
Had enough now!
Went to JCP as requested as l am in Work related group, feel l should be in Support Group now what with recent diagnosis of COPD as well as the Fibromyalgia which was diagnosed in 2009. JCP said l must get a letter from my dr to confirm the Copd and send this to DWP requesting a change to Support Group.My
Went to JCP as requested as l am in Work related group, feel l should be in Support Group now what with recent diagnosis of COPD as well as the Fibromyalgia which was diagnosed in 2009. JCP said l must get a letter from my dr to confirm the Copd and send this to DWP requesting a change to Support Group.My
sue930
in
Lung Conditions Community Forum
10 years ago
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I'm up for it
This sunday,13th July , I am taking part in the London 10k to raise funds for CLLSA. I have been on watch and wait for almost 20 years and at almost 70 years old feel to take part is great, last year I raised £720 before gift aid .Only problem slowing me down this year is the secondary cancer diagnosed
This sunday,13th July , I am taking part in the London 10k to raise funds for CLLSA. I have been on watch and wait for almost 20 years and at almost 70 years old feel to take part is great, last year I raised £720 before gift aid .Only problem slowing me down this year is the secondary cancer diagnosed
william1945
CLLSA
in
CLL Support
10 years ago
Two complete opposite opinions
I have been seeing two different CLL people because I couldn't decide between the two, overall they both have agreed for the past ~18 months Watch & Wait. Well things have progressed a lot this past year for me. The fatigue has gotten really bad, many drs. have commented on the glands in my neck being
I have been seeing two different CLL people because I couldn't decide between the two, overall they both have agreed for the past ~18 months Watch & Wait. Well things have progressed a lot this past year for me. The fatigue has gotten really bad, many drs. have commented on the glands in my neck being
rlyndecker
in
CLL Support
10 years ago
Does anyone have Cold agglutinin disease that has CLL/SLL
Cold agglutinin is a rare autioimmunine disease that is seem with people with a lymphoma or leukemia. My husband has SLL with is very similar to CLL but has secondary cold Agglutinin .I have not seen many people with this rare disease and need to get to talk to others.. Many seem to live in Norway with
Cold agglutinin is a rare autioimmunine disease that is seem with people with a lymphoma or leukemia. My husband has SLL with is very similar to CLL but has secondary cold Agglutinin .I have not seen many people with this rare disease and need to get to talk to others.. Many seem to live in Norway with
Saratoga
in
CLL Support
10 years ago
SEVERE COPD
Hi I've just been diagnosed with severe copd. I am 44. I was a smoker but I'm on nicotine replacement now. I also work as a fragrance consultant. I was shocked to be told I had it as I always thought it affected older people .
Hi I've just been diagnosed with severe copd. I am 44. I was a smoker but I'm on nicotine replacement now. I also work as a fragrance consultant. I was shocked to be told I had it as I always thought it affected older people .
Cath3rin3
in
Lung Conditions Community Forum
10 years ago
Is Galvus met 50/500 harmful
I am insulin dependent diabities patient my doctor has advised to take Galvus met 50/500 is it safe drug a k sachan
I am insulin dependent diabities patient my doctor has advised to take Galvus met 50/500 is it safe drug a k sachan
sachanak
in
Diabetes India
10 years ago
CLL specialists in the US
I was diagnosed with CLL 13q14.3 deletion December 2012 at age 59. ALC stable since that time at 10-18 so on W&W and followed by a local community oncologist in the US. When the time comes for treatment, hopefully a long way off, I want to be seen by a leukemia specialist, preferably someone who deals
I was diagnosed with CLL 13q14.3 deletion December 2012 at age 59. ALC stable since that time at 10-18 so on W&W and followed by a local community oncologist in the US. When the time comes for treatment, hopefully a long way off, I want to be seen by a leukemia specialist, preferably someone who deals
MelioraDay
in
CLL Support
10 years ago
Giving up caffeine and chocolate
I have just been advised that caffeine and chocolate do not suit panic attacks and I assume copd. Has anyone else been made aware of this?
I have just been advised that caffeine and chocolate do not suit panic attacks and I assume copd. Has anyone else been made aware of this?
Jen2505
in
Lung Conditions Community Forum
10 years ago
CLLSA in Cambridge, June 20-21st, 2014
The solstice weekend marks the end of the academic year in Cambridge, and the city buzzes with end-of-term hope and excitement as students celebrate their results in style before heading off into the long summer. This year saw a perfect backdrop of blue skies and sunshine to the honeyed university buildings
The solstice weekend marks the end of the academic year in Cambridge, and the city buzzes with end-of-term hope and excitement as students celebrate their results in style before heading off into the long summer. This year saw a perfect backdrop of blue skies and sunshine to the honeyed university buildings
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
My husband, 62, was diag. with chronic lymphocytic leukemia w/13q deletion and significant adenopathy/severe autoimmune hemolytic anemia.
Diag'd on 3/26/14. He was two young for the Allibutrim(sp/) trial. Had three chemo treatments since with "Retuximab/Bendamustine (Trenda)" combination. After the second treatment, fevers- he ended up in the hospital for a week (low wbcs-4). Neutropenic I believe. They gave him a shot daily in his
Diag'd on 3/26/14. He was two young for the Allibutrim(sp/) trial. Had three chemo treatments since with "Retuximab/Bendamustine (Trenda)" combination. After the second treatment, fevers- he ended up in the hospital for a week (low wbcs-4). Neutropenic I believe. They gave him a shot daily in his
deb1610
in
CLL Support
10 years ago
Mid month bleeding
In April I had a laparoscopy, polyp removal and a cyst drained. When my next perio came I started on time as I generally do every month at 34 days. So iv been monitoring for ovulation this month and iv started to bleed, was spotted it at first which I thought may be signs of ovulation, but am bleeding
In April I had a laparoscopy, polyp removal and a cyst drained. When my next perio came I started on time as I generally do every month at 34 days. So iv been monitoring for ovulation this month and iv started to bleed, was spotted it at first which I thought may be signs of ovulation, but am bleeding
claremarie
in
Endometriosis UK
10 years ago
Renal Transplant Optimisation Trial - Positive T-Antibody
Hi - just thought I'd share this, I wrote it to explain to a relative what was happening. I know it is more about my transplant than the APS, but someone might have some thoughts so I thought it might be worth sharing.... Tx I guess it started a few weeks back; my relationship was on the rocks,
Hi - just thought I'd share this, I wrote it to explain to a relative what was happening. I know it is more about my transplant than the APS, but someone might have some thoughts so I thought it might be worth sharing.... Tx I guess it started a few weeks back; my relationship was on the rocks,
Hidden
in
Kidney Transplant Patient Support
10 years ago
Transplant Optimisation Trial - the fall out
Hi - just thought I'd share this, I wrote it to explain to a relative what was happening. I know it is more about my transplant than the Lupus, but someone might have some thoughts so I thought it might be worth sharing.... Tx I guess it started a few weeks back; my relationship was on the rocks
Hi - just thought I'd share this, I wrote it to explain to a relative what was happening. I know it is more about my transplant than the Lupus, but someone might have some thoughts so I thought it might be worth sharing.... Tx I guess it started a few weeks back; my relationship was on the rocks
Hidden
in
LUPUS UK
10 years ago
Transplant Optimisation Trial - fall out
Hi - just thought I'd share this, I wrote it to explain to a relative what was happening. I know it is more about my transplant than the APS, but someone might have some thoughts so I thought it might be worth sharing.... Tx I guess it started a few weeks back; my relationship was on the rocks,
Hi - just thought I'd share this, I wrote it to explain to a relative what was happening. I know it is more about my transplant than the APS, but someone might have some thoughts so I thought it might be worth sharing.... Tx I guess it started a few weeks back; my relationship was on the rocks,
Hidden
in
Hughes Syndrome APS Forum
10 years ago
LATE ONSET NEUTROPENIA MAY BE A COMPLICATION OF FCR (or rituximab, obinutuzumab or other anti-CD20 monoclonal antibody infusions - Admin)
Here's another EHA abstract on the under-recognized issue of late-onset neutropenia as a result of FCR. I thought that this might be interesting to those of us on this site that have undergone or may undergo FCR. See the graph above. Someone can correct me if I am wrong, but my guess is that the take-away
Here's another EHA abstract on the under-recognized issue of late-onset neutropenia as a result of FCR. I thought that this might be interesting to those of us on this site that have undergone or may undergo FCR. See the graph above. Someone can correct me if I am wrong, but my guess is that the take-away
zevkalman
in
CLL Support
10 years ago
RICHTER'S TRANSFORMATION IN PATIENTS WITH CLL: ANALYSIS OF BIOLOGICAL AND CLINICAL RISK FACTORS AND OUTCOMES
A number of abstracts are now available from the EHA meeting last week. One of the papers that caught my eye was an article on Richter's Transformation. The conclusions of the study I quote below, but I am puzzled that they thought it would be instructive to have a graph of Overall Survival of RT patients
A number of abstracts are now available from the EHA meeting last week. One of the papers that caught my eye was an article on Richter's Transformation. The conclusions of the study I quote below, but I am puzzled that they thought it would be instructive to have a graph of Overall Survival of RT patients
zevkalman
in
CLL Support
10 years ago
Bone Marrow: What does 'moderate small, mature lymphoid infiltrate' mean...?
Dx 2 weeks ago: B Cell Type CLL/SLL. I've had a bone marrow biopsy and CT scan. Widespread swollen lymph nodes but no 'suspect' ones, NO ZAP70 nor CD38 in surface markers and NO secondaries anywhere. Red blood count is normal. Have another app with specialist on Tuesday. Apparently, have had CLL since
Dx 2 weeks ago: B Cell Type CLL/SLL. I've had a bone marrow biopsy and CT scan. Widespread swollen lymph nodes but no 'suspect' ones, NO ZAP70 nor CD38 in surface markers and NO secondaries anywhere. Red blood count is normal. Have another app with specialist on Tuesday. Apparently, have had CLL since
peas50
in
CLL Support
10 years ago
Australians - here's your opportunity to support the listing of GAZYVA (Obinutuzimab) on the PBS - Deadline is Wed 11th June!
GAZYVA, a new anti-CD20 monoclonal antibody in combination with Chlorambucil, is now Therapeutic Goods Administration (TGA) approved for the treatment of previously untreated Australian CLL patients. It is
NOT YET
on the Pharmaceutical Benefits Scheme (PBS), but Roche has made a first time submission
GAZYVA, a new anti-CD20 monoclonal antibody in combination with Chlorambucil, is now Therapeutic Goods Administration (TGA) approved for the treatment of previously untreated Australian CLL patients. It is
NOT YET
on the Pharmaceutical Benefits Scheme (PBS), but Roche has made a first time submission
AussieNeil
Partner
in
CLL Support
10 years ago
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