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Experiences with
Amyotrophic lateral sclerosis (ALS)
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Update on my IU visit
Happy to say that I made it to Indianapolis safely & to my appointment as well. Dr Masuoka said my numbers are great, pretty stable compared to my past numbers. But, he said he would still like for my ALK Phos to come down more. I spent the day today calling & scheduling three orders to have done closer
Happy to say that I made it to Indianapolis safely & to my appointment as well. Dr Masuoka said my numbers are great, pretty stable compared to my past numbers. But, he said he would still like for my ALK Phos to come down more. I spent the day today calling & scheduling three orders to have done closer
Shulsey
in
PBC Foundation
6 years ago
Recent labs.... with a surprise! (not a good one) ☹️
Hello PBC family, Not a whole lot to report with my labs. Alk-phos still fluctuates between 140's and 170's. Interestingly, the less I weigh, the better the Alk-phos number. I'm in an RA flare right now and I've been on steroids. Needless to say I'm gaining weight!! My Alk-phos did come down from
Hello PBC family, Not a whole lot to report with my labs. Alk-phos still fluctuates between 140's and 170's. Interestingly, the less I weigh, the better the Alk-phos number. I'm in an RA flare right now and I've been on steroids. Needless to say I'm gaining weight!! My Alk-phos did come down from
Ktltel
in
PBC Foundation
6 years ago
Blood result
Please, can anyone help to understand blood results? Serum globulin level (XE2eB) 38G/L [20.0 -34.0] Serum alanine aminotransferase level (XaL.Jx) 56 U/L [<41.0] Serum alkaline phosphatase level(XE2px) 173U/L[30.0 - 130.0] Serum gamma-glutamyl transferase level(XaES3) 726 U/L[10.0 - 71.0 I'm
Please, can anyone help to understand blood results? Serum globulin level (XE2eB) 38G/L [20.0 -34.0] Serum alanine aminotransferase level (XaL.Jx) 56 U/L [<41.0] Serum alkaline phosphatase level(XE2px) 173U/L[30.0 - 130.0] Serum gamma-glutamyl transferase level(XaES3) 726 U/L[10.0 - 71.0 I'm
ruthalem
in
Thyroid UK
6 years ago
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Possible kidney, liver, and sinus issues— still no answers
Hi All, My recent round of labs showed some elevations, specifically: ALT, Alk Phos, BUN/Creatinine, CRP, blood in urine with slightly low specific gravity. This week I had a biopsy of my nasal passage (due to inflammation and discharge); am being referred to nephrologist; and scheduled for abdominal
Hi All, My recent round of labs showed some elevations, specifically: ALT, Alk Phos, BUN/Creatinine, CRP, blood in urine with slightly low specific gravity. This week I had a biopsy of my nasal passage (due to inflammation and discharge); am being referred to nephrologist; and scheduled for abdominal
Canygirl61
in
Vasculitis UK
6 years ago
I've just had another range of blood tests and now have the results. I'd appreciate some help with understanding them.
I've not been well for over three years, but over the last six months I've been feeling worse and worse. It's mostly the same symptoms but getting more severe and more frequent. I've had several water infections - my gp thinks it's inflammation of the stomach wall flaring up. Each time is more painful
I've not been well for over three years, but over the last six months I've been feeling worse and worse. It's mostly the same symptoms but getting more severe and more frequent. I've had several water infections - my gp thinks it's inflammation of the stomach wall flaring up. Each time is more painful
dizzy864
in
Thyroid UK
6 years ago
Pre-diagnosis limbo: "I knew something was wrong when..."
Many other communities have discussed their first symptoms and paths to diagnosis, including members with
ALS
, lupus, MS, and epilepsy. Please share your story here or in your own condition forum. What was your first symptom? How long was it before doctors correctly diagnosed your condition?
Many other communities have discussed their first symptoms and paths to diagnosis, including members with
ALS
, lupus, MS, and epilepsy. Please share your story here or in your own condition forum. What was your first symptom? How long was it before doctors correctly diagnosed your condition?
rvmasalvad
Star
in
Diabetes India
6 years ago
Hashimotos - Stopped Levothyroxine + Prescribed Chinese Herbs + Sleeping Earlier
Hiya, Was told a couple of years ago that I have hashimotos and have NEVER had symptoms known for it. I stopped taking Levothyroxin a month ago as it was making me feel horrible - stressed along with crazy weird vivid dreams. Since stopping am feeling great and still not experiencing these effects. Just
Hiya, Was told a couple of years ago that I have hashimotos and have NEVER had symptoms known for it. I stopped taking Levothyroxin a month ago as it was making me feel horrible - stressed along with crazy weird vivid dreams. Since stopping am feeling great and still not experiencing these effects. Just
Jouleskeys
in
Thyroid UK
6 years ago
Clonzepam aka klonopin my story
who prescribes medications and is an MP I’m pretty sure that’s medical practitioner not too sure don’t quote me on that but I just know the abbreviation MP anyway I asked her if it was a safe drug and I know she would never steer me in the wrong direction especially since she’s One of our greatest
ALS
who prescribes medications and is an MP I’m pretty sure that’s medical practitioner not too sure don’t quote me on that but I just know the abbreviation MP anyway I asked her if it was a safe drug and I know she would never steer me in the wrong direction especially since she’s One of our greatest
ALS
kevoreally
in
Anxiety Support
6 years ago
Als help-relief
Any information available with herbs? Green House Herbal Clinic touts cures. They are in Pretoria, Johannesburg, South Africa. Can't find any feedback. H e l p. Please.
Any information available with herbs? Green House Herbal Clinic touts cures. They are in Pretoria, Johannesburg, South Africa. Can't find any feedback. H e l p. Please.
01Sisi47
in
Cure Parkinson's
6 years ago
FATTY LIVER
Hi there. I have been diagnosed with fatty liver yesterday. Since 20 days, I have been having extreme fatigue and muscle weakness and I am unable to eat food as I used to eat before. I am 27, height 5"8', weight 74. Now my weight has been decreased to 69 within few days. At first when I went to hospital
Hi there. I have been diagnosed with fatty liver yesterday. Since 20 days, I have been having extreme fatigue and muscle weakness and I am unable to eat food as I used to eat before. I am 27, height 5"8', weight 74. Now my weight has been decreased to 69 within few days. At first when I went to hospital
Rammm
in
Living with Fatty Liver and NASH
6 years ago
alk phos climbing
I have been on Urso for a year and 5 months on Ocalvia and my Alk Phos is still climbing. Has anyone else experienced this?
I have been on Urso for a year and 5 months on Ocalvia and my Alk Phos is still climbing. Has anyone else experienced this?
happy0507
in
PBC Foundation
6 years ago
High GGT & Neuotrophil & ALT & Alk Phos
Hi my name is Tiffany. I’m 35. Fairly healthy until this past year. I had my gallbladder removed. My symptoms are always bloated, not ever really hungry, weak, tired, face is red, veiny and blotchy but never has been before. I had blood work done thinking because of a hysterectomy that maybe it was hormones
Hi my name is Tiffany. I’m 35. Fairly healthy until this past year. I had my gallbladder removed. My symptoms are always bloated, not ever really hungry, weak, tired, face is red, veiny and blotchy but never has been before. I had blood work done thinking because of a hysterectomy that maybe it was hormones
Tif1120
in
Liver4Life
6 years ago
Alk Phos and bone mets?
Is it possible to continue to develop but me mets while maintaining stable low end alk phos levels? My MO seems 100% certain I cannot have new bone mets because the alk phos level is stable and low 60’s to 70’s. However, the fact remains that many scans showed no lesions and now all of them do. Appreciate
Is it possible to continue to develop but me mets while maintaining stable low end alk phos levels? My MO seems 100% certain I cannot have new bone mets because the alk phos level is stable and low 60’s to 70’s. However, the fact remains that many scans showed no lesions and now all of them do. Appreciate
joekaty
in
Advanced Prostate Cancer
6 years ago
Discouraged liver/stomach issues
Hello to all, thank you for allowing me to join..I'm feeling discouraged and would like to see if any others have dealt with what I'm going through..a little over a year ago I started having pain and discomfort in my stomach..it's only on my right side and goes from under my rib down below my bellybutton
Hello to all, thank you for allowing me to join..I'm feeling discouraged and would like to see if any others have dealt with what I'm going through..a little over a year ago I started having pain and discomfort in my stomach..it's only on my right side and goes from under my rib down below my bellybutton
Uncomfortablelady
in
British Liver Trust
6 years ago
Root Canal health issues + Arthritis / Fibro?
I was getting desperate thinking I had
ALS
or some other degenerative disease. My mind had been foggy for a couple months and I literally felt slower mentally, in addition to being slow physically.
I was getting desperate thinking I had
ALS
or some other degenerative disease. My mind had been foggy for a couple months and I literally felt slower mentally, in addition to being slow physically.
nonameswork
in
NRAS
6 years ago
Does anyone else get this?!
Now a year later it happens occasionally and I'm afraid of
ALS
OR PD. So I called neuro and told him it's also pain in radius, I am a hair designer over 35 years. He had a conversation over the phone and said at worst carpal tunnel or nerve compression. Worried it other things.
Now a year later it happens occasionally and I'm afraid of
ALS
OR PD. So I called neuro and told him it's also pain in radius, I am a hair designer over 35 years. He had a conversation over the phone and said at worst carpal tunnel or nerve compression. Worried it other things.
Lynl
in
Anxiety and Depression Support
6 years ago
Biogen/BMS Anti-Tau Phase 2 Trial Recruiting
Participant must reside outside a skilled nursing facility or dementia care facility at the time of screening and admission to such a facility must not be planned Key Exclusion Criteria: Presence of other significant neurological or psychiatric disorders Diagnosis of amyotrophic lateral sclerosis (
ALS
Participant must reside outside a skilled nursing facility or dementia care facility at the time of screening and admission to such a facility must not be planned Key Exclusion Criteria: Presence of other significant neurological or psychiatric disorders Diagnosis of amyotrophic lateral sclerosis (
ALS
Dickwin
in
PSP Association
6 years ago
1st abnormal ALT test
Just recently my liver enzymes came back slightly elevated. Alt 68 ast 33. After reading most of everyone else numbers, these numbers maybe considered slightly elevated but it did force me to make a change. I stopped drinking alcohol period. My dr also sent me for a ultrasound of the abdomen and the
Just recently my liver enzymes came back slightly elevated. Alt 68 ast 33. After reading most of everyone else numbers, these numbers maybe considered slightly elevated but it did force me to make a change. I stopped drinking alcohol period. My dr also sent me for a ultrasound of the abdomen and the
Hidden
in
British Liver Trust
6 years ago
Health anxiety go away
In the last day alone I gave panicked about a sore spot on my back thinking it's a tumor.this morning I got pulsating in my palm under my thumb and my thumb twitches a bit and my pinky and middle finger at different times so I googled
ALS
.
In the last day alone I gave panicked about a sore spot on my back thinking it's a tumor.this morning I got pulsating in my palm under my thumb and my thumb twitches a bit and my pinky and middle finger at different times so I googled
ALS
.
Lynl
in
Anxiety and Depression Support
6 years ago
GGT AND ALK PHOS INCREASING
I had an ablation in mid January and was then put on a beta blocker plus flecanide and zarelto. My LFT's 10 days later had gone up. For the past 10 years my GGT has been around 70 and the range is <40 last one was 92 and alk phos is usually 135 and range is 35-105 and last one 183. Just wondering if
I had an ablation in mid January and was then put on a beta blocker plus flecanide and zarelto. My LFT's 10 days later had gone up. For the past 10 years my GGT has been around 70 and the range is <40 last one was 92 and alk phos is usually 135 and range is 35-105 and last one 183. Just wondering if
Gwelos
in
PBC Foundation
6 years ago
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