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Experiences with
Amyotrophic lateral sclerosis (ALS)
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Another little piece in ALS
https://www.nih.gov/news-events/news-releases/
als
-gene-may-be-hitchhikers-guide-neuron
https://www.nih.gov/news-events/news-releases/
als
-gene-may-be-hitchhikers-guide-neuron
parkie13
in
Cure Parkinson's
5 years ago
I am convinced I have parkinsons or ALS
I have to go to a neurologist next week and I am terrified that he will tell me I have early Parkinson's or
ALS
. I have most of the symptoms, stiff neck, raspy voice, pronouncing words wrong, leg and finger twitching sometimes, all of the left side of body tight.
I have to go to a neurologist next week and I am terrified that he will tell me I have early Parkinson's or
ALS
. I have most of the symptoms, stiff neck, raspy voice, pronouncing words wrong, leg and finger twitching sometimes, all of the left side of body tight.
ratgirl11
in
Anxiety Support
5 years ago
Statins, neuromuscular degenerative disease and an amyotrophic lateral sclerosis-like syndrome: an analysis of individual case safety report
We do advocate that trial discontinuation of a statin should be considered in patients with serious neuromuscular disease such as the
ALS
-like syndrome, given the poor prognosis and a possibility that progression of the disease may be halted or even reversed.
We do advocate that trial discontinuation of a statin should be considered in patients with serious neuromuscular disease such as the
ALS
-like syndrome, given the poor prognosis and a possibility that progression of the disease may be halted or even reversed.
Hidden
in
Cholesterol Support
5 years ago
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Fascinating Podcast
Below is a link to the Doctor's Farmacy and a podcast regarding links between our gut microbiome and diseases such as
ALS
, MS, Parkinsons and I believe Ataxia.
Below is a link to the Doctor's Farmacy and a podcast regarding links between our gut microbiome and diseases such as
ALS
, MS, Parkinsons and I believe Ataxia.
nycgeordie
in
Ataxia UK
5 years ago
Muscle twitching around the body and in the tongue I’m convinced I have mnd (ALS)
brain and neck which obviously came up clear apart from mucopolypoid disease which isn’t serious but was casing pressure in my forehead but as the twitching has got worst and now I have twitches in my tongue that started a few months ago and weakness in my legs I have convinced my self I have mnd or
als
brain and neck which obviously came up clear apart from mucopolypoid disease which isn’t serious but was casing pressure in my forehead but as the twitching has got worst and now I have twitches in my tongue that started a few months ago and weakness in my legs I have convinced my self I have mnd or
als
Mark02
in
Anxiety Support
5 years ago
Moderate to large ascites
My mother 56 years old , is having abdominal distension and bloating with mild fever at night. The gp asked for a ultrasonography and the findings are : 1. Hepatomegaly with fatty change with parenchymal echotexture hypoehcoic and coarse. 2. Moderate to large ascites. 3. Gall bladder wall thickened
My mother 56 years old , is having abdominal distension and bloating with mild fever at night. The gp asked for a ultrasonography and the findings are : 1. Hepatomegaly with fatty change with parenchymal echotexture hypoehcoic and coarse. 2. Moderate to large ascites. 3. Gall bladder wall thickened
mookerji
in
British Liver Trust
5 years ago
Help with results please
I have posted here many times. Need some advice. I have been gluten free for two years and after few months my TPO ab dropped from 1300 (high for many years) to 526. My GP had told me nothing would make them drop. Now my latest results here show that they have gone back up to 1300. I don’t now know whether
I have posted here many times. Need some advice. I have been gluten free for two years and after few months my TPO ab dropped from 1300 (high for many years) to 526. My GP had told me nothing would make them drop. Now my latest results here show that they have gone back up to 1300. I don’t now know whether
Flecmac
in
Thyroid UK
5 years ago
L-Serine prevents protein from misfolding.
I also checked with PubMed and there are many supporting research articles. https://au.iherb.com/blog/l-serine-a-radical-new-approach-to-
als
-parkinsons-and-alzheimers/811?utm_source=Iterable&utm_medium=email&utm_campaign=775248%7CUS
I also checked with PubMed and there are many supporting research articles. https://au.iherb.com/blog/l-serine-a-radical-new-approach-to-
als
-parkinsons-and-alzheimers/811?utm_source=Iterable&utm_medium=email&utm_campaign=775248%7CUS
Getz
in
Cure Parkinson's
5 years ago
Diabetes and Liver and Vitamin D
Hb1Ac 6.8 Fasting sugar 117 SGOT-46 SGPT 74 Vitamin D 21 How bad is my situation?
Hb1Ac 6.8 Fasting sugar 117 SGOT-46 SGPT 74 Vitamin D 21 How bad is my situation?
prabhuayan
in
Diabetes India
5 years ago
MID-COURSE TREATMENT SNAPSHOT 25Sept19
Lupron injection was 29MAY19, so I'm about 4 months into a 6 month ADT cycle. PSA - 0.8 (down from 2.14 29MAY19) Testosterone - 3 (down from 359, 29MAY19) Testosterone (free) - 0.5 (down from 42.7, 29MAY19) ALT and AST both slightly above normal. Glucose a little above normal. Alk Phos normal
Lupron injection was 29MAY19, so I'm about 4 months into a 6 month ADT cycle. PSA - 0.8 (down from 2.14 29MAY19) Testosterone - 3 (down from 359, 29MAY19) Testosterone (free) - 0.5 (down from 42.7, 29MAY19) ALT and AST both slightly above normal. Glucose a little above normal. Alk Phos normal
GranPaSmurf
in
Advanced Prostate Cancer
5 years ago
Rising Liver enzymes 16 months post liver transplant!
Hello guys.. need your help Has anyone experienced rising Liver enzyme levels after being stable for most of the time? I'm really worried. My SGPT is 322, SGOT is 267, GGT and ALP are also raised.
Hello guys.. need your help Has anyone experienced rising Liver enzyme levels after being stable for most of the time? I'm really worried. My SGPT is 322, SGOT is 267, GGT and ALP are also raised.
akanksha9479
in
British Liver Trust
5 years ago
Have We Discovered the Cause of Alzheimer’s, Parkinson’s, and ALS?
Recommendation to watch https://www.youtube.com/watch?v=ETKZS5e33VA
Recommendation to watch https://www.youtube.com/watch?v=ETKZS5e33VA
delboy381
in
Cure Parkinson's
5 years ago
Upper right quadrant pain
Hello all! I think this is my first post. I visit this site a few times a week and appreciate all the information you wonderful people provide. I was diagnosed with PBC 2 1/2 years ago after a slightly elevated ALT 32.. the blood tests revealed AMA 1:641, I was referred to a gastroenterologist who
Hello all! I think this is my first post. I visit this site a few times a week and appreciate all the information you wonderful people provide. I was diagnosed with PBC 2 1/2 years ago after a slightly elevated ALT 32.. the blood tests revealed AMA 1:641, I was referred to a gastroenterologist who
Lili1214
in
PBC Foundation
5 years ago
What is this? FND
They said my nerves are quick and responsive so i dont have
als
. But how do you get an FND diagnosis so fast? I think the hardest thing is people not believing me. Also severe brain fog... like a bag is over my head.
They said my nerves are quick and responsive so i dont have
als
. But how do you get an FND diagnosis so fast? I think the hardest thing is people not believing me. Also severe brain fog... like a bag is over my head.
Why88
in
Functional Neurological Disorder - FND Hope
5 years ago
Memory, Cognitive Decline, AD, PD & Dementia And A Potential Way To Help Deal With Them Using "LO"
Here are links to two studies which discuss lithium in dementia/AD and other neurodegenerative diseases like PD and
ALS
.
Here are links to two studies which discuss lithium in dementia/AD and other neurodegenerative diseases like PD and
ALS
.
chartist
in
Cure Parkinson's
5 years ago
Curious about labs from past
Last night I dug more into my all my labs and I noticed besides my gfr being low the creatine was high but my am phos was always low this has been since 2014. I don’t really understand much about alk phos does that have anything to do with kidneys
Last night I dug more into my all my labs and I noticed besides my gfr being low the creatine was high but my am phos was always low this has been since 2014. I don’t really understand much about alk phos does that have anything to do with kidneys
Lexilou77
in
Kidney Disease
5 years ago
New PSMA ligand treatment with less side effects than Ac225?
I am in a mental quandary. After reading a out xerostomia(dry mouth, often permanent), I am seriously considering cancelling the Ac225 and just going with a prostatectomy along with having more APCEDEN vaccines made. Have been stable for 2 full years confirmed by PSMA PET scans now using the vaccines
I am in a mental quandary. After reading a out xerostomia(dry mouth, often permanent), I am seriously considering cancelling the Ac225 and just going with a prostatectomy along with having more APCEDEN vaccines made. Have been stable for 2 full years confirmed by PSMA PET scans now using the vaccines
Fuzzman77
in
Advanced Prostate Cancer
5 years ago
Can someone explain what my Blood Test Results mean?
In 2018 I got a blood test following a Kallman Syndome diagnosis (age 17 at time of test), but several problems have arrisen since then. After several months I finally got access to the blood test results but its essencially Chinese to me. The Dr told me that testosterone was far below average and I
In 2018 I got a blood test following a Kallman Syndome diagnosis (age 17 at time of test), but several problems have arrisen since then. After several months I finally got access to the blood test results but its essencially Chinese to me. The Dr told me that testosterone was far below average and I
BecauseGenes
in
Pernicious Anaemia Society
5 years ago
Increase in PSA during Taxotere?
In the last few months- post 3 more taxotere infusions after liver Mets were discovered in March- keeping in mind this is the second time I have had taxotere- first in 2016- PSA has really climbed to 44 from about 8- However Alk Phos down and hemoglobin remains at same level which normally goes down
In the last few months- post 3 more taxotere infusions after liver Mets were discovered in March- keeping in mind this is the second time I have had taxotere- first in 2016- PSA has really climbed to 44 from about 8- However Alk Phos down and hemoglobin remains at same level which normally goes down
DSEE
in
Advanced Prostate Cancer
5 years ago
Update on Labs
As a result of some of the helpful comments from fellow warriors I began tracking the blood levels below in addition to my compulsive monthly focus on PSA. The oncologist has had me getting a comprehensive metabolic test every 2 weeks for the first 3 months on Zytiga to see how it affects the kidneys
As a result of some of the helpful comments from fellow warriors I began tracking the blood levels below in addition to my compulsive monthly focus on PSA. The oncologist has had me getting a comprehensive metabolic test every 2 weeks for the first 3 months on Zytiga to see how it affects the kidneys
Philly13
in
Advanced Prostate Cancer
5 years ago
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