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Experiences with
Amyotrophic lateral sclerosis (ALS)
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Leg pain.
This issue started after I read about
ALS
and how some people who got
ALS
were having leg pains before being diagnosed.
This issue started after I read about
ALS
and how some people who got
ALS
were having leg pains before being diagnosed.
HelloPanda23
in
Anxiety Support
6 years ago
Ocaliva is working for me šš»šš»
Diagnosed around 5 years ago with PBC and was on 1500mg urso and nothing doing. After biopsy February I was told now stage 1 childās cirrotic š but NO symptoms like ZERO. Iām very lucky to now be on Ocaliva - Obeticholic Acid 5mg daily I started treatment on Monday 9th April and had my bloods done
Diagnosed around 5 years ago with PBC and was on 1500mg urso and nothing doing. After biopsy February I was told now stage 1 childās cirrotic š but NO symptoms like ZERO. Iām very lucky to now be on Ocaliva - Obeticholic Acid 5mg daily I started treatment on Monday 9th April and had my bloods done
Alison2306
in
PBC Foundation
6 years ago
Health anxiety
I also have been getting muscle spasms or twitches in my calf muscles and look that up I convince myself I have
als
symptoms.
I also have been getting muscle spasms or twitches in my calf muscles and look that up I convince myself I have
als
symptoms.
Ericamo1
in
Anxiety Support
6 years ago
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my sgpt is 100 last days now my sgpt is 38 but my Bilirubim total is 1.8 what happen ed with me
my sgpt is 100 last days now my sgpt is 38 but my Bilirubim total is 1.8 what happen ed with me
my sgpt is 100 last days now my sgpt is 38 but my Bilirubim total is 1.8 what happen ed with me
basitali
in
British Liver Trust
6 years ago
Recalling a Meltdown
With my epic Alzheimerās Run The Year challenge J and G were my first sponsors, because they recognised a great cause, and despite having their own issues dealing with
ALS
, they wanted to be a support to me.
With my epic Alzheimerās Run The Year challenge J and G were my first sponsors, because they recognised a great cause, and despite having their own issues dealing with
ALS
, they wanted to be a support to me.
Hidden
in
Couch to 5K
6 years ago
Chemo 18 dripping now. Good news on response.
Chemo 18 is 12 docetaxol and this is 6th jevtana. Stay the course, put next one off till 4 weeks for the Cornwall trip. The comparative bone scan showed marked decrease metastatic disease in right hip. Also on the ct many other spots were reduced. Mildly anemic 3.17 on red blood cells, whites are at
Chemo 18 is 12 docetaxol and this is 6th jevtana. Stay the course, put next one off till 4 weeks for the Cornwall trip. The comparative bone scan showed marked decrease metastatic disease in right hip. Also on the ct many other spots were reduced. Mildly anemic 3.17 on red blood cells, whites are at
Dan59
in
Advanced Prostate Cancer
6 years ago
New member here
Most of the time I can accept it...and be grateful that it wasn't MS or
ALS
or Altzheimers, or a stroke. If I had to have one, I'd rather it be PD..... sometimes though, I get discouraged, and even angry at times.... but other times, like right now, I'm dealing with it pretty well.
Most of the time I can accept it...and be grateful that it wasn't MS or
ALS
or Altzheimers, or a stroke. If I had to have one, I'd rather it be PD..... sometimes though, I get discouraged, and even angry at times.... but other times, like right now, I'm dealing with it pretty well.
marychirtle
in
Cure Parkinson's
6 years ago
I need a reminder...
Hi PBC family, I Hope everyone is doing as well as can be expected. And for those of you experiencing the worst of this stupid disease, many prayers go out for you everyday ā¤. I know several of you have experienced upper right quadrant pain or URQP. Some have described it as a dull ache that may radiate
Hi PBC family, I Hope everyone is doing as well as can be expected. And for those of you experiencing the worst of this stupid disease, many prayers go out for you everyday ā¤. I know several of you have experienced upper right quadrant pain or URQP. Some have described it as a dull ache that may radiate
Ktltel
in
PBC Foundation
6 years ago
Health anxiety over ALS.
First issue it brought up was
ALS
, and I got so scared. I decided to search up if it was a problem with anxiety as well, and it was. This got me to feel relief for about an hour or two, but when I went to sleep, I searched more about
ALS
and its symptoms.
First issue it brought up was
ALS
, and I got so scared. I decided to search up if it was a problem with anxiety as well, and it was. This got me to feel relief for about an hour or two, but when I went to sleep, I searched more about
ALS
and its symptoms.
HelloPanda23
in
Anxiety Support
6 years ago
Young PBC New Diagnosis
Hi everyone, So I recently have been diagnosed with PBC, but I am only 19 years old. I don't really know much about PBC so please let me know if you have any advice. Edit: I thought it would be important to let you guys know what my labs were. I have a positive AMA M2 and GTT test. My AST and ALT are
Hi everyone, So I recently have been diagnosed with PBC, but I am only 19 years old. I don't really know much about PBC so please let me know if you have any advice. Edit: I thought it would be important to let you guys know what my labs were. I have a positive AMA M2 and GTT test. My AST and ALT are
selinihun
in
PBC Foundation
6 years ago
New diagnosis; itching not improving
Hello, I started having severe nighttime itching in Oct 2016. Spent a year trying steroids, allergy meds and getting allergy tests which were negative. Liver biopsy last month confirmed PBC, stage 1 no fibrosis. My alk phos, ggt, lfts were mildly elevated. As is my cholesterol and iron level. My M2
Hello, I started having severe nighttime itching in Oct 2016. Spent a year trying steroids, allergy meds and getting allergy tests which were negative. Liver biopsy last month confirmed PBC, stage 1 no fibrosis. My alk phos, ggt, lfts were mildly elevated. As is my cholesterol and iron level. My M2
55mimi
in
PBC Foundation
6 years ago
Help with anxiety, please!
I think the month of constant fear of living constantly with the thought of my breath, with the idea that I might get
ALS
(one of the worst anxiety I've ever had, constant worrying about how I'd die), and etc. has taken a toll on my brain activity.
I think the month of constant fear of living constantly with the thought of my breath, with the idea that I might get
ALS
(one of the worst anxiety I've ever had, constant worrying about how I'd die), and etc. has taken a toll on my brain activity.
HelloPanda23
in
Anxiety Support
6 years ago
Newbie Advice
So I've been going backward and forward to my doctors quite some time and i've had thyroid tests that have been some what inconclusive but before I return this time I wondered if anyone has advice on the following results. This was a test done in april this year showing borderline and to retest. Pathology
So I've been going backward and forward to my doctors quite some time and i've had thyroid tests that have been some what inconclusive but before I return this time I wondered if anyone has advice on the following results. This was a test done in april this year showing borderline and to retest. Pathology
Sammie1986
in
Thyroid UK
6 years ago
Help with interpreting various blood results
Hi, I recently had a blood test for various things. (I have Psoriatic Arthritis, Fibromyalgia, Sjƶrgren's Syndrome, Hashimoto's Thyroiditis and some of the tests are because of the meds I take). I was hoping someone could interpret my results, i.e. if there's anything I should be concerned about. I'm
Hi, I recently had a blood test for various things. (I have Psoriatic Arthritis, Fibromyalgia, Sjƶrgren's Syndrome, Hashimoto's Thyroiditis and some of the tests are because of the meds I take). I was hoping someone could interpret my results, i.e. if there's anything I should be concerned about. I'm
Gnatsville
in
Thyroid UK
6 years ago
Were in trouble here ...
Tried a support group through the St
Als
network, but that just didnāt click. Pointless yammering from the group leader that dragged on for hours. 9/2010-psa was 9, RP 1/11. Urologist said he got it all. Looked us in the eye and said āYou will not die of Prostate cancer.ā And now here we are.
Tried a support group through the St
Als
network, but that just didnāt click. Pointless yammering from the group leader that dragged on for hours. 9/2010-psa was 9, RP 1/11. Urologist said he got it all. Looked us in the eye and said āYou will not die of Prostate cancer.ā And now here we are.
dadeb
in
Advanced Prostate Cancer
6 years ago
My story, and progress.
I decided to read up on symptoms of
ALS
, and they were so common that I thought to myself, "how could I differentiate this from other disease and issues?" I then went and researched more, and bam, stuck in the
ALS
rabbit hole.
I decided to read up on symptoms of
ALS
, and they were so common that I thought to myself, "how could I differentiate this from other disease and issues?" I then went and researched more, and bam, stuck in the
ALS
rabbit hole.
HelloPanda23
in
Anxiety Support
6 years ago
Dr Brownstein's New Article re the dangers of Statins
Statin Use and Amyotrophic Lateral Sclerosisā
ALS
I found it disturbing to read this new article but we've seen quite a number of members given statins for their higher cholesterol levels (which should reduce as levo is increased).
Statin Use and Amyotrophic Lateral Sclerosisā
ALS
I found it disturbing to read this new article but we've seen quite a number of members given statins for their higher cholesterol levels (which should reduce as levo is increased).
shaws
Administrator
in
Thyroid UK
6 years ago
Just beginning the confirmation and staging of my PBC diagnosis.
Hi All, I see from this site that I stumbled upon that I am not alone. My Alk Phos was rising each time I visited my Endo ( IDDM), so he referred me to G.I. in Manhattan. I was told that the IDDM was probably an autoimmune response. This PBC most likely the same. Lucky me! Another challenge. Tomorrow
Hi All, I see from this site that I stumbled upon that I am not alone. My Alk Phos was rising each time I visited my Endo ( IDDM), so he referred me to G.I. in Manhattan. I was told that the IDDM was probably an autoimmune response. This PBC most likely the same. Lucky me! Another challenge. Tomorrow
FranSP
in
PBC Foundation
6 years ago
Aggressive metastic Very high alk phos
Hi I am new here. Diagnosed March 2018. Bone mets in skull, jaw, arms, spine, ribs, pelvic, hips. Too many to count. No Gleason score just says treat as high grade. Alk phos level 4038. 58% from bones 42% from liver. Has anyone had alk phos this high? Firmagon 03-26 and Lupron 04-09-2018.
Hi I am new here. Diagnosed March 2018. Bone mets in skull, jaw, arms, spine, ribs, pelvic, hips. Too many to count. No Gleason score just says treat as high grade. Alk phos level 4038. 58% from bones 42% from liver. Has anyone had alk phos this high? Firmagon 03-26 and Lupron 04-09-2018.
Br1950
in
Advanced Prostate Cancer
6 years ago
New to this..MSA versus ALS
Does MSA and
ALS
have the same symptoms?
Does MSA and
ALS
have the same symptoms?
Schoolpatrollady
in
Multiple System Atrophy Trust
6 years ago
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