Experiences with

Amyotrophic lateral sclerosis (ALS)

Based on sound research, I here posit that PWP are at a considerably greater risk of developing ALS. This is true for both “sporadic” and genetic PD. Furthermore, whether one’s PD develops in to ALS or not, thus far in my research, what benefits a person with ALS will also benefit a PWP.

Studies have provided evidence for an involvement of the dopaminergic system in ALS. The purpose of this study was to investigate whether patients with ALS show presynaptic nigrostriatal dopaminergic deficits detectable by single photon emission computed tomography (SPECT).

I have symptoms of PD but I also have fasciculations like ALS. Please, I’m scared, please tell me the truth but please take in to consideration that I’m very scared. My Dad has PD. My maternal uncle had ALS. I’ve avoided genetic testing due to anxiety. I think I might have both PD and ALS.

Sun said she heard about U.S. military veterans who suffered from GI issues while they were serving overseas and later diagnosed with ALS. Several research studies have shown veterans have an elevated risk of developing ALS.

I have strokes to look fwd 2 ALS 2 look fwd to hd to look fwd to and m.s help

Safety and Efficacy of TUDCA as add-on Treatment in Patients Affected by ALS Trial https://clinicaltrials.gov/ct2/show/NCT03800524 They are doing 1 gram, twice a day.

https://www.nature.com/articles/s41419-018-0749-9 Validating my hope of it being beneficial, it’s being trialed for ALS used intravenously.

Hi, It's been 7 months since I made my last community post on ALS. I was diagnosed with ALS IN Jan. 2021. I also survived a bout of Covid in April 2021 only because my Doctor was able to get me treated with the monoclonal infusion.

Here I will be adding some information about diet that is relevant to all people who want to salvage their brains whether their problem be PD, ALZ, ALS or any other (yes, other) autoimmune disease.

There is an abundance of information on how it is effective at decreasing the glutamate excitoxicity which is known to cause neurological degeneration in ALS, PD, and ALZ.

This is a continuation of my message that what benefits ALS and ALZ is of great relevance to PD.

The literature I found said dysautonomia wasn't a feature of ALS. When dysautonomia co-occurs with motor neuron disease it is called ALS plus syndrome aka parkinsonism. I came across a recent article about Clive Svendsen, PhD at Cedars-Sinai who said, "We don't think ALS is one disease."

Topic #1) Intranasal Delivery of FGF-1 for the Treatment of Parkinson’s Disease and ALS (Motor Neuron Disease or Lou Gehrig’s disease) Dr.

Phase II of the study of AMX0035 and ALS has produced some excellent results. Because ALS has no known cure, the drug is going to be released for people to use now.

Higher levels of glutamate are said to contribute to PD, ALS, and ALZ. Here I intend on collecting data and notes in an effort to understand the many years of scientific research on the relationship of glutamate, GABA and PD.

https://www.meduniwien.ac.at/web/en/ueber-uns/news/detailseite/2020/news-im-dezember-2020/haematoxylin-als-killer-calr-mutierter-krebszellen/ Have a good day

They developed it for PD but are now concentrating on using it for ALS. We need to push them to let PD patients try it. Some with ALS are trying to demand special use to be able to use it. Sure hope it can be used or comes to market soon!

My mother died from ALS back in the early 90's. I now have been diagnosed with Pernicious Anemia. I wonder if she really had Pernicious Anemia. Don't have her medical records anymore so I can't check to see how her B12 looked or if it was even tested. It haunts me.

It doesn’t just help for fibro by the way too, reports for cancer, als, ms and other illnesses have been reported so it’s worth trying at least best of luck x

I have children and I am so so scared it’s als and I’m going to die 😢