Search
Search
About
Log in
Join
Experiences with
Amyotrophic lateral sclerosis (ALS)
Posts
Communities
814 public posts
Filter results
Pennsylvania man battling ALS receives 'promising' new treatment at Philly hospital - Qalsody, formerly known as Tofersen
(
ALS
).
(
ALS
).
Bolt_Upright
in
Cure Parkinson's
7 days ago
What are your thoughts on RELYVRIO previously known as AMX0035? Could it benefit PD patients as well?
RELYVRIO (previously known as AMX0035 in the U.S.) is an oral, fixed-dose combination therapy for the treatment of adults with
ALS
RELYVRIO significantly slowed the loss of physical function in a randomized, placebo-controlled clinical trial in
ALS
https://www.alzforum.org/therapeutics/relyvrio
RELYVRIO (previously known as AMX0035 in the U.S.) is an oral, fixed-dose combination therapy for the treatment of adults with
ALS
RELYVRIO significantly slowed the loss of physical function in a randomized, placebo-controlled clinical trial in
ALS
https://www.alzforum.org/therapeutics/relyvrio
Hidden
in
Cure Parkinson's
4 months ago
Turkish scientist works on cure of ALS with celerycelery
https://www.google.com/amp/s/www.hurriyetdailynews.com/amp/turkish-scientist-works-on-cure-of-
als
-with-celery-180151
https://www.google.com/amp/s/www.hurriyetdailynews.com/amp/turkish-scientist-works-on-cure-of-
als
-with-celery-180151
Farooqji
in
Cure Parkinson's
4 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Athira announces clinical trials for Alzheimer’s, Parkinson’s, ALS treatments in 2023
https://www.healio.com/news/neurology/20230207/athira-announces-clinical-trials-for-alzheimers-parkinsons-
als
-treatments-in-2023
https://www.healio.com/news/neurology/20230207/athira-announces-clinical-trials-for-alzheimers-parkinsons-
als
-treatments-in-2023
Farooqji
in
Cure Parkinson's
4 months ago
Misdiagnosed with ALS
Last year, I was diagnosed with
ALS
. I went to Mayo for a second opinion and it was determined I do not have
ALS
. The doctor stated I have tremors from anxiety and possible drug prescriptions. I followed up with my doctor upon my return home and we do not feel it is prescription related.
Last year, I was diagnosed with
ALS
. I went to Mayo for a second opinion and it was determined I do not have
ALS
. The doctor stated I have tremors from anxiety and possible drug prescriptions. I followed up with my doctor upon my return home and we do not feel it is prescription related.
Rooster74
in
Anxiety and Depression Support
3 months ago
Phase 1 trial of VRG50635 - a novel therapeutic discovered & "delivered into the clinic in just 4 years" by an AI-powered platform
I know it is for
ALS
but it gives me hope that AI can deliver so fast. https://www.vergegenomics.com/news-blog/verge-genomics-initiates-first-in-human-dosing-in-phase-1-trial-of-novel-therapeutic-for-
als
I know it is for
ALS
but it gives me hope that AI can deliver so fast. https://www.vergegenomics.com/news-blog/verge-genomics-initiates-first-in-human-dosing-in-phase-1-trial-of-novel-therapeutic-for-
als
Hidden
in
Cure Parkinson's
7 months ago
MJF is offering free smell tests
There is a Parkinson's/
ALS
/Dementia syndrome. Smell loss isn't a part of
ALS
. Curious to see the results. https://www.michaeljfox.org/smell-loss-brain-health?ps_cid=fb-a1b1R00000AQ7sB
There is a Parkinson's/
ALS
/Dementia syndrome. Smell loss isn't a part of
ALS
. Curious to see the results. https://www.michaeljfox.org/smell-loss-brain-health?ps_cid=fb-a1b1R00000AQ7sB
SilentEchoes
in
Cure Parkinson's
6 months ago
An announcement by DENALI
Denali Therapeutics Announces Key Anticipated 2023 Milestones for Its Therapeutic Portfolio for Neurodegeneration and Lysosomal Storage Diseases January 9, 2023 Four programs expected to progress in late-stage clinical studies for MPS II (Hunter syndrome),
ALS
, and Parkinson’ disease More here :
Denali Therapeutics Announces Key Anticipated 2023 Milestones for Its Therapeutic Portfolio for Neurodegeneration and Lysosomal Storage Diseases January 9, 2023 Four programs expected to progress in late-stage clinical studies for MPS II (Hunter syndrome),
ALS
, and Parkinson’ disease More here :
Xenos
in
Cure Parkinson's
5 months ago
Chicago Med Series 8 Episode 2
Hi everyone, we are MASSIVE fans of Chicago Med and in one of the latest episodes a patient has MND/
ALS
(and I know we're all here for PSP/CBD), now he has a cold/chest infection and he's using a Voice bank/computer to relay his wishes to the hospital doctors.
Hi everyone, we are MASSIVE fans of Chicago Med and in one of the latest episodes a patient has MND/
ALS
(and I know we're all here for PSP/CBD), now he has a cold/chest infection and he's using a Voice bank/computer to relay his wishes to the hospital doctors.
Derek1uk
in
PSP Association
3 months ago
Best Treatment for OD?
Recently he believes he has
ALS
. Panic attacks are ongoing and affect every part of his life . He's been dxd with social anxiety, ADD, OCD. He is so super awesome and doesn't deserve to live his life like this. He has had years of therapy.
Recently he believes he has
ALS
. Panic attacks are ongoing and affect every part of his life . He's been dxd with social anxiety, ADD, OCD. He is so super awesome and doesn't deserve to live his life like this. He has had years of therapy.
Epril
in
My OCD Community
3 months ago
A Bit Off Topic, FMT In A Single Case Report, Stopped ALS Progression And Improved Symptoms
Do we really have any drugs that can stop
ALS
progression?
Do we really have any drugs that can stop
ALS
progression?
chartist
in
Cure Parkinson's
7 months ago
Genetics and cancer
Paternal uncle:
ALS
. Brother: Colon Cancer. Me: PCa. If it is environmental then maybe we need to move.
Paternal uncle:
ALS
. Brother: Colon Cancer. Me: PCa. If it is environmental then maybe we need to move.
Todd1963
in
Advanced Prostate Cancer
14 days ago
Study links Glyphosate in Roundup to Neurodegenerative Disease
Parkinson's disease is a smouldering campfire -
ALS
is a raging wildfire. How does glyphosate travel to the brain? Small incremental doses from eating contaminated food are enzymatically transported by the vagus nereve via the gut/brain axis. The result is a smouldering inflammatory process.
Parkinson's disease is a smouldering campfire -
ALS
is a raging wildfire. How does glyphosate travel to the brain? Small incremental doses from eating contaminated food are enzymatically transported by the vagus nereve via the gut/brain axis. The result is a smouldering inflammatory process.
SilentEchoes
in
Cure Parkinson's
5 months ago
Does Covid boost ALS?
Abs lymphs (
ALS
) were 82K in July. Got 1st Evusheld 8/23. Got Covid 8/31 and started Paxlovid same day. 5 days later, 9/5, felt great then went on a vigorous 31 miles bike ride (probably too soon for such exercise). Then rebound on 9/12 with positive home test.
Abs lymphs (
ALS
) were 82K in July. Got 1st Evusheld 8/23. Got Covid 8/31 and started Paxlovid same day. 5 days later, 9/5, felt great then went on a vigorous 31 miles bike ride (probably too soon for such exercise). Then rebound on 9/12 with positive home test.
JDG45
in
CLL Support
8 months ago
EpicentRx Receives Fast Track Designation from the U.S. FDA for Lead Asset, RRx-001
It is also under development as a medical countermeasure for nuclear and radiological emergencies and as a treatment for neurodegenerative
diseases like Parkinson’s and
/MND.
It is also under development as a medical countermeasure for nuclear and radiological emergencies and as a treatment for neurodegenerative
diseases like Parkinson’s and
/MND.
Hidden
in
Cure Parkinson's
2 months ago
Always thinking the worse
Neurological condition, Parkinson,
ALS
, you name it and I thought it. I come to realize that since I walk so much and eat basic healthy. It could be I'm low on magnesium. I stopped into walgreens and talked to the pharmacist. He recommended Calcium and magnesium.
Neurological condition, Parkinson,
ALS
, you name it and I thought it. I come to realize that since I walk so much and eat basic healthy. It could be I'm low on magnesium. I stopped into walgreens and talked to the pharmacist. He recommended Calcium and magnesium.
Jstbcuz
in
Anxiety and Depression Support
3 months ago
I'm lonely and scared
I think regardless of the countless neurologist who say I don't have
als
every time I feel the muscles go missing or won't engage I ho into panic Then I get huge depersinalization and derealization that happens and just lose my mind crying. I am a 39 year old male by the way.
I think regardless of the countless neurologist who say I don't have
als
every time I feel the muscles go missing or won't engage I ho into panic Then I get huge depersinalization and derealization that happens and just lose my mind crying. I am a 39 year old male by the way.
ToesKnees
in
Functional Neurological Disorder - FND Hope
3 months ago
Severe health anxiety
This specific time, Ive been dealing with twitching muscles for no apparent reason but of course my anxiety takes over and creates a narrative that I must have
ALS
.
This specific time, Ive been dealing with twitching muscles for no apparent reason but of course my anxiety takes over and creates a narrative that I must have
ALS
.
jn3w2
in
Anxiety and Depression Support
4 months ago
Tauroursodeoxycholic acid: a potential therapeutic tool in neurodegenerative diseases 2022 (TUDCA)
Furthermore, data from phase II clinical trials have shown TUDCA to be safe and a potential disease-modifier in
ALS
.
ALS
is the first neurodegenerative disease being treated with hydrophilic bile acids.
Furthermore, data from phase II clinical trials have shown TUDCA to be safe and a potential disease-modifier in
ALS
.
ALS
is the first neurodegenerative disease being treated with hydrophilic bile acids.
Bolt_Upright
in
Cure Parkinson's
11 months ago
Neurotoxins: Free Radical Mechanisms and Melatonin Protection against Molecular Mutilation
After reading this article, the notion that Parkinson's disease is idiopathic and Alzheimer's disease and
ALS
/MND have no known cause is ludicrous.
After reading this article, the notion that Parkinson's disease is idiopathic and Alzheimer's disease and
ALS
/MND have no known cause is ludicrous.
SilentEchoes
in
Cure Parkinson's
4 months ago
1
2
...
41
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
Thyroid UK
158 results
Advanced Prostate Cancer
96 results
Cure Parkinson's
94 results
View top 10 communities
Sort by
Most Relevant
Most Positive
New
What's this?
Newest