Experiences with

Amyotrophic lateral sclerosis (ALS)

My mother was diagnose with ALS and died Sep 1997. I was diagnose with Pernicious Anemia 6 months ago. Could she have been misdiagnosed with ALS.

https://www.google.com/amp/s/www.news-medical.net/amp/news/20210223/Scientists-identify-new-compound-that-reverses-ALS-neuron-damage.aspx

He's gettting tested for ALS next month. Either way, these diseases are progressive, terminal and there is nothing they can do to stop it's progression. Have any of you also received the diagnosis of PSP or ALS?

The twitching really worries me and I’ve read too much about als. I feel like I’m slurring my words and my voice is definitely getting tired

Nur Own which is in phase 3 for people with als is showing great resuluts for als and i pray it will do the same for ms.

ALS markers in children's teeth. Summary: Researchers have identified a new, early biomarker for amyotrophic lateral sclerosis (ALS) on the teeth of children.

My father-in law had ALS 20 years ago and I’m trying to remember his last months . Yes, our family has been hit twice with these 2 similar diseases Cindy her daughter

My main question is....Are there any mechanisms/devices out there to help PSP patients communicate, such as the augmented communication (AAC) devices that ALS patients use?? Thank you so much in advance!!

Such as ALS, Cancer, Parkinson’s, MS etc. I would love for it not to be MSA; but, if it is I would rather know. What testing ultimately allowed for diagnosis for you all?

Below is a partial list of these conditions, based on a recent review by Walter and colleague Mauro Costa-Mattioli of Baylor College of Medicine, which could potentially be treated with an ISR-resetting agent like ISRIB: Frontotemporal Dementia Alzheimer’s Disease Amyotrophic Lateral Sclerosis (ALS

I talked to our primary care doctor about it...who did a bunch of blood tests....and then said he thought it was ALS (SCREAM). He referred us to an ALS specialist who now thinks it's LBD (Lewy body Disease)...going in for more tests this month.

My husband lost his battle with ALS in April. I'm so happy he's at peace now. Most of his estate matters are taken care of. Has anyone else found the probate system to be just awful? I'm settling into a new normal with our kitties and the grandbaby visits.

He may be in the process of entirely upending the current scientific view of ALS and other neuronal diseases.

Here are the links and I sincerely apologize. https://au.iherb.com/blog/l-serine-a-radical-new-approach-to-als-parkinsons-and-alzheimers/811?

This webinar also includes a former patient who suffered with fears of ALS and MS. There will be plenty of opportunities to ask Ken questions about your specific fears and query his former patient about her journey to freedom.

Sandy Morris, an #ALS patient & advocate, candidly shares her story in our latest Medical Hero Spotlight. Read more here: https://www.ciscrp.org/medical-hero-spotlight-sandy-morris-als-advocate/ Contact us to subscribe to our Quarterly Newsletter: https://www.ciscrp.org/about-us/contact-us/

When I googled the tounge twitching thing, it talking about als, and my grandmother died from it in '96...... I don't know, it's like a catch 22 because I'm reading that stress can cause it, but knowing it's a symptom of als is making me stress, like wtf...

https://www.nbc29.com/2020/04/08/uva-researchers-make-key-discovery-that-could-lead-treatments-alzheimers-parkinsons-als-other-diseases/

I’m worried it might be ALS or something like that. I went to two doctors and both said I mostly likely don’t have it after they had me take a test of strength and balance.

My father passed away of als and so did his father no one else in the family has had it that we know of and both were in bad situations that could have brought it out but I constantly fear that it will be me who gets it next.