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Amyotrophic lateral sclerosis (ALS)

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ALS or Pernicious Anemia

My mother was diagnose with ALS and died Sep 1997. I was diagnose with Pernicious Anemia 6 months ago. Could she have been misdiagnosed with ALS.
My mother was diagnose with ALS and died Sep 1997. I was diagnose with Pernicious Anemia 6 months ago. Could she have been misdiagnosed with ALS.
lavada12
in Pernicious Anaemia Society

This could potentially shed light on PSP as well šŸ™

https://www.google.com/amp/s/www.news-medical.net/amp/news/20210223/Scientists-identify-new-compound-that-reverses-ALS-neuron-damage.aspx
https://www.google.com/amp/s/www.news-medical.net/amp/news/20210223/Scientists-identify-new-compound-that-reverses-ALS-neuron-damage.aspx
Aslin
in PSP Association

Stage 4 Metastatic Prostate Cancer AND NOW also Parkinsonism and PSP

He's gettting tested for ALS next month. Either way, these diseases are progressive, terminal and there is nothing they can do to stop it's progression. Have any of you also received the diagnosis of PSP or ALS?
He's gettting tested for ALS next month. Either way, these diseases are progressive, terminal and there is nothing they can do to stop it's progression. Have any of you also received the diagnosis of PSP or ALS?
kick-prostate-cancer
in Advanced Prostate Cancer
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Tongue twitcher here

The twitching really worries me and I’ve read too much about als. I feel like I’m slurring my words and my voice is definitely getting tired
The twitching really worries me and I’ve read too much about als. I feel like I’m slurring my words and my voice is definitely getting tired
Cm22
in Anxiety Support

Nur Own

Nur Own which is in phase 3 for people with als is showing great resuluts for als and i pray it will do the same for ms.
Nur Own which is in phase 3 for people with als is showing great resuluts for als and i pray it will do the same for ms.
ivorydogoftheottawa
in My MSAA Community

ALS markers in children's teeth.

ALS markers in children's teeth. Summary: Researchers have identified a new, early biomarker for amyotrophic lateral sclerosis (ALS) on the teeth of children.
ALS markers in children's teeth. Summary: Researchers have identified a new, early biomarker for amyotrophic lateral sclerosis (ALS) on the teeth of children.
aspergerian
in Cure Parkinson's

Puried food- How long can one survive on it?

My father-in law had ALS 20 years ago and I’m trying to remember his last months . Yes, our family has been hit twice with these 2 similar diseases Cindy her daughter
My father-in law had ALS 20 years ago and I’m trying to remember his last months . Yes, our family has been hit twice with these 2 similar diseases Cindy her daughter
jamrog846
in PSP Association

PSP communication devices

My main question is....Are there any mechanisms/devices out there to help PSP patients communicate, such as the augmented communication (AAC) devices that ALS patients use?? Thank you so much in advance!!
My main question is....Are there any mechanisms/devices out there to help PSP patients communicate, such as the augmented communication (AAC) devices that ALS patients use?? Thank you so much in advance!!
backyardchicken
in PSP Association

Diagnostics

Such as ALS, Cancer, Parkinson’s, MS etc. I would love for it not to be MSA; but, if it is I would rather know. What testing ultimately allowed for diagnosis for you all?
Such as ALS, Cancer, Parkinson’s, MS etc. I would love for it not to be MSA; but, if it is I would rather know. What testing ultimately allowed for diagnosis for you all?
CanAmK
in Multiple System Atrophy Trust

OK, it's a Mouse Study, But It's Encouraging...

Below is a partial list of these conditions, based on a recent review by Walter and colleague Mauro Costa-Mattioli of Baylor College of Medicine, which could potentially be treated with an ISR-resetting agent like ISRIB: Frontotemporal Dementia Alzheimer’s Disease Amyotrophic Lateral Sclerosis (ALS
Below is a partial list of these conditions, based on a recent review by Walter and colleague Mauro Costa-Mattioli of Baylor College of Medicine, which could potentially be treated with an ISR-resetting agent like ISRIB: Frontotemporal Dementia Alzheimer’s Disease Amyotrophic Lateral Sclerosis (ALS
jimcaster
in Cure Parkinson's

just when you think one thing...everything changes.

I talked to our primary care doctor about it...who did a bunch of blood tests....and then said he thought it was ALS (SCREAM). He referred us to an ALS specialist who now thinks it's LBD (Lewy body Disease)...going in for more tests this month.
I talked to our primary care doctor about it...who did a bunch of blood tests....and then said he thought it was ALS (SCREAM). He referred us to an ALS specialist who now thinks it's LBD (Lewy body Disease)...going in for more tests this month.
greatjohn
in Advanced Prostate Cancer

Finally made it back.

My husband lost his battle with ALS in April. I'm so happy he's at peace now. Most of his estate matters are taken care of. Has anyone else found the probate system to be just awful? I'm settling into a new normal with our kitties and the grandbaby visits.
My husband lost his battle with ALS in April. I'm so happy he's at peace now. Most of his estate matters are taken care of. Has anyone else found the probate system to be just awful? I'm settling into a new normal with our kitties and the grandbaby visits.
cindyrn68
in My MSAA Community

TDP-43, a common cause of neurological diseases

He may be in the process of entirely upending the current scientific view of ALS and other neuronal diseases.
He may be in the process of entirely upending the current scientific view of ALS and other neuronal diseases.
SilentEchoes
in Cure Parkinson's

Mannitol, L-Serine, and Whole Coffee Cherry Concentrate

Here are the links and I sincerely apologize. https://au.iherb.com/blog/l-serine-a-radical-new-approach-to-als-parkinsons-and-alzheimers/811?
Here are the links and I sincerely apologize. https://au.iherb.com/blog/l-serine-a-radical-new-approach-to-als-parkinsons-and-alzheimers/811?
Getz
in Cure Parkinson's

ADAA Health Anxiety Webinar - Free and Now on Demand

This webinar also includes a former patient who suffered with fears of ALS and MS. There will be plenty of opportunities to ask Ken questions about your specific fears and query his former patient about her journey to freedom.
This webinar also includes a former patient who suffered with fears of ALS and MS. There will be plenty of opportunities to ask Ken questions about your specific fears and query his former patient about her journey to freedom.
ADAAAdminAdministrator
in Anxiety and Depression Support

Medical Hero Spotlight: Sandy Morris, ALS Patient & Advocate

Sandy Morris, an #ALS patient & advocate, candidly shares her story in our latest Medical Hero Spotlight. Read more here: https://www.ciscrp.org/medical-hero-spotlight-sandy-morris-als-advocate/ Contact us to subscribe to our Quarterly Newsletter: https://www.ciscrp.org/about-us/contact-us/
Sandy Morris, an #ALS patient & advocate, candidly shares her story in our latest Medical Hero Spotlight. Read more here: https://www.ciscrp.org/medical-hero-spotlight-sandy-morris-als-advocate/ Contact us to subscribe to our Quarterly Newsletter: https://www.ciscrp.org/about-us/contact-us/
lperezAdministrator
in Understanding Clinical Trials

Tounge twitching and als worry😢

When I googled the tounge twitching thing, it talking about als, and my grandmother died from it in '96...... I don't know, it's like a catch 22 because I'm reading that stress can cause it, but knowing it's a symptom of als is making me stress, like wtf...
When I googled the tounge twitching thing, it talking about als, and my grandmother died from it in '96...... I don't know, it's like a catch 22 because I'm reading that stress can cause it, but knowing it's a symptom of als is making me stress, like wtf...
DetNative34
in Anxiety Support

Improper removal of faulty brain cells during neurodevelopment...

https://www.nbc29.com/2020/04/08/uva-researchers-make-key-discovery-that-could-lead-treatments-alzheimers-parkinsons-als-other-diseases/
https://www.nbc29.com/2020/04/08/uva-researchers-make-key-discovery-that-could-lead-treatments-alzheimers-parkinsons-als-other-diseases/
aspergerian13
in Cure Parkinson's

Is it Anxiety?

I’m worried it might be ALS or something like that. I went to two doctors and both said I mostly likely don’t have it after they had me take a test of strength and balance.
I’m worried it might be ALS or something like that. I went to two doctors and both said I mostly likely don’t have it after they had me take a test of strength and balance.
ClimbHigh20
in Anxiety and Depression Support

Health anxiety will I make it out of this..

My father passed away of als and so did his father no one else in the family has had it that we know of and both were in bad situations that could have brought it out but I constantly fear that it will be me who gets it next.
My father passed away of als and so did his father no one else in the family has had it that we know of and both were in bad situations that could have brought it out but I constantly fear that it will be me who gets it next.
merlin0413
in Anxiety and Depression Support
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