Experiences with Als | HealthUnlocked

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Muscle twitching

Does anyone experience constant twitching in different part of my body not sure if it’s my anxiety I keep reading ALS cause twitching freaking outDoes anyone experience constant twitching in different part of my body not sure if it’s my anxiety I keep reading ALS cause twitching freaking out

Dperez1223in Anxiety Support

Health Related Anxiety about Als

The only thing I can think of is I watched The movie about Stephen Hawkings and it imprinted in my mind I became obsessed with looking up treatments and theries on the disease I read a 176 page paper one night on the alleged connection between Lyme Disease and ALS.The only thing I can think of is I watched The movie about Stephen Hawkings and it imprinted in my mind I became obsessed with looking up treatments and theries on the disease I read a 176 page paper one night on the alleged connection between Lyme Disease and ALS.

Scottkom20in Anxiety and Depression Support

Still having fun

I have MS, he has ALS and is on hospice. Art is nonverbal and very weak. I was helping him after his shower yesterday and had him sitting on his rollator, facing me. I backed him out of the bathroom and took off, zooming him all through the house. His face!!!I have MS, he has ALS and is on hospice. Art is nonverbal and very weak. I was helping him after his shower yesterday and had him sitting on his rollator, facing me. I backed him out of the bathroom and took off, zooming him all through the house. His face!!!

cindyrn68in My MSAA Community

Titan-Implantate gegen RLS ?

Mehr als 1 oder 2 Stunden Schlaf pro Nacht gibt es nicht. Ich habe Anfang Februar einen Termin bei einem RLS-Spezialisten in Deutschland, welcher Titan-Implantate in die Ohren einsetzt. In 80 % der Fälle soll die Therapie erfolgreich sein. Hat jemand von euch bereits Erfahrung mit dieser Methode?Mehr als 1 oder 2 Stunden Schlaf pro Nacht gibt es nicht. Ich habe Anfang Februar einen Termin bei einem RLS-Spezialisten in Deutschland, welcher Titan-Implantate in die Ohren einsetzt. In 80 % der Fälle soll die Therapie erfolgreich sein. Hat jemand von euch bereits Erfahrung mit dieser Methode?

Feenkindin Restless Legs Syndrome

Status as promised - not PMR

After a new neurological examination including EMG (ei. not ALS) I am back with the reumatologists. Now referred to the national special hospital department for a.o. autoimmune inflammatory diseases.After a new neurological examination including EMG (ei. not ALS) I am back with the reumatologists. Now referred to the national special hospital department for a.o. autoimmune inflammatory diseases.

krillemyin PMRGCAuk

L-serine

I have read that there were positive research results using the amino acid L-serine in the treatment of ALS or Lou Gehrig's disease and that this may also help in Parkinsons amongst others. I have no info regarding dosage and wondered if anyone here knows anything about it.I have read that there were positive research results using the amino acid L-serine in the treatment of ALS or Lou Gehrig's disease and that this may also help in Parkinsons amongst others. I have no info regarding dosage and wondered if anyone here knows anything about it.

Dizlizzin Parkinson's Movement

Fascinating Podcast

Below is a link to the Doctor's Farmacy and a podcast regarding links between our gut microbiome and diseases such as ALS, MS, Parkinsons and I believe Ataxia.Below is a link to the Doctor's Farmacy and a podcast regarding links between our gut microbiome and diseases such as ALS, MS, Parkinsons and I believe Ataxia.

nycgeordiein Ataxia UK

Statins, neuromuscular degenerative disease and an amyotrophic lateral sclerosis-like syndrome: an analysis of individual case safety report

We do advocate that trial discontinuation of a statin should be considered in patients with serious neuromuscular disease such as the ALS-like syndrome, given the poor prognosis and a possibility that progression of the disease may be halted or even reversed.We do advocate that trial discontinuation of a statin should be considered in patients with serious neuromuscular disease such as the ALS-like syndrome, given the poor prognosis and a possibility that progression of the disease may be halted or even reversed.

Hiddenin Cholesterol Support

Today's supplement of interest. L-serine.

- Long story long . . . there have now been 3 human clinical trials, 2 for ALS, and one for Alzheimers.- Long story long . . . there have now been 3 human clinical trials, 2 for ALS, and one for Alzheimers.

sunvoxin Ataxia UK

PEA (Normast) More effective with Ashwagandha?

PD and ALS are both disorders of the serotonergic system. Serotonin regulates melatonin (insomnia) and our autonomic function (dry eyes, gut dysmotility etc.) On the ALS forums, people are combining PEA with ashwagandha to good effect.PD and ALS are both disorders of the serotonergic system. Serotonin regulates melatonin (insomnia) and our autonomic function (dry eyes, gut dysmotility etc.) On the ALS forums, people are combining PEA with ashwagandha to good effect.

SilentEchoesin Parkinson's Movement

Annoyed with that groundhog

My husband has ALS and we've been on quite the roller coaster ride the past few months. Whew! On another topic, I am thoroughly put out with Punx. Phil. I haven't had winter yet and he's calling for an early spring.My husband has ALS and we've been on quite the roller coaster ride the past few months. Whew! On another topic, I am thoroughly put out with Punx. Phil. I haven't had winter yet and he's calling for an early spring.

cindyrn68in My MSAA Community

I am convinced I have parkinsons or ALS

I have to go to a neurologist next week and I am terrified that he will tell me I have early Parkinson's or ALS. I have most of the symptoms, stiff neck, raspy voice, pronouncing words wrong, leg and finger twitching sometimes, all of the left side of body tight.I have to go to a neurologist next week and I am terrified that he will tell me I have early Parkinson's or ALS. I have most of the symptoms, stiff neck, raspy voice, pronouncing words wrong, leg and finger twitching sometimes, all of the left side of body tight.

ratgirl11in Anxiety Support

L-Serine prevents protein from misfolding.

I also checked with PubMed and there are many supporting research articles. https://au.iherb.com/blog/l-serine-a-radical-new-approach-to-als-parkinsons-and-alzheimers/811?utm_source=Iterable&utm_medium=email&utm_campaign=775248%7CUSI also checked with PubMed and there are many supporting research articles. https://au.iherb.com/blog/l-serine-a-radical-new-approach-to-als-parkinsons-and-alzheimers/811?utm_source=Iterable&utm_medium=email&utm_campaign=775248%7CUS

Getzin Parkinson's Movement

Just having a bad time of it.

My sister who is only 15 months older then me (66) has been diagnosed with ALS on Friday....2019 can kiss my butt and I don't see 2020 being any better. I better have cheese with my wine Thanks for reading. DeeMy sister who is only 15 months older then me (66) has been diagnosed with ALS on Friday....2019 can kiss my butt and I don't see 2020 being any better. I better have cheese with my wine Thanks for reading. Dee

dw123456in PSP Association

Can I have PMR with normal CRP

However due to normal CRP I have been put through all kinds of test from ALS ,MR and cancer to polymyositis and Lyme disease (borrelia). They all said that if they did not find anything it must be PMR ON TILL they changed their mind.However due to normal CRP I have been put through all kinds of test from ALS ,MR and cancer to polymyositis and Lyme disease (borrelia). They all said that if they did not find anything it must be PMR ON TILL they changed their mind.

krillemyin PMRGCAuk

ALS Anxiety

Hi, So I have had neck, leg and arm pain for a few months now on my right side and now suddenly I have random twitching in my eyelid and chin I also alway feel parched and have recently found it hard to swallow all which are early signs of ALS am quietly fearing I have ALS and don’t know what to doHi, So I have had neck, leg and arm pain for a few months now on my right side and now suddenly I have random twitching in my eyelid and chin I also alway feel parched and have recently found it hard to swallow all which are early signs of ALS am quietly fearing I have ALS and don’t know what to do

Bostonjin Anxiety Support

FND symptoms for 7 years

I started to think about the possibility that I have ALS, even though I’m almost certain I don’t have it, almost every doctor and neurologist I have seen has demystified that for me, but I can’t let that idea go. Does anyone else experience similar symptoms and or diagnosis[s]I started to think about the possibility that I have ALS, even though I’m almost certain I don’t have it, almost every doctor and neurologist I have seen has demystified that for me, but I can’t let that idea go. Does anyone else experience similar symptoms and or diagnosis[s]

CallmeRougein Functional Neurological Disorder - FND Hope

Amyotrophic lateral sclerosis (ALS)