Good news : I said recently in my post... - SHARE Metastatic ...

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Good news

Beryl71 profile image
30 Replies

I said recently in my post that I'm pleased not to dwell on the numbers and keep everything in perspective. But I still appreciate good news when it comes. This week I had a call from oncologist largely because she's liaising with my dentist about dental work. Basically she was telling me it was worth the risk and that my health was good enough to withstand it. She mentioned the results of my latest blood tests so I got further info from my GP.

Noone has mentioned my tumour markers recently but they were on an upward trend and I guess it was that and a dubious area in my scan that triggered a change of meds.

I've now been on Fulvestrant ( with ibrance, after three and a half years on ibrance and letrozole ) for three months and in the last month my tumour markers have reduced, one from 179 to 142 and 4.5 to 2.4. I thought that was good news so now await next week's scan.

My partner has now sold his house on the Western isles so we can truly move on with our new life in the Highlands! The picture is of the everchanging view from our window, now with some snow on the distant hills.

Love to all,

Carolyn x

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Beryl71 profile image
Beryl71
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30 Replies
Kiss_my_grits profile image
Kiss_my_grits

Wow, Carolyn! Enjoy the view and your stable health ❤️

Crazycocker profile image
Crazycocker

Fantastic news, long may it continue x

Hopeful4Cure profile image
Hopeful4Cure

A little bit of good news is better sure makes a difference in our outlook and daily energy. I am so happy that it puts a smile on your face. May it continue. ;-)

TNVol profile image
TNVol

Beautiful place to "move on". Good luck with your scan.

Discocat profile image
Discocat

Fantastic news! And what fabulous landscapes you have around you!!Good luck with all your future plans and scans.

NPmary profile image
NPmary

Thanks for sharing. How wonderful you can live near such beauty.

SwedishSissi profile image
SwedishSissi

Great news for you!

May I ask please - what is the second set of markers that went from 4.5 to 2.4? I have not taken these.

Beryl71 profile image
Beryl71 in reply toSwedishSissi

CEA. Noone has mentioned any of these lately but I phone my GP who went into the system and gave me the info over the phone. According to my notes my CEA was 7 when I first started treatment. I have no idea what the significance is! My current oncologist focuses on scans and how I'm feeling. X

SwedishSissi profile image
SwedishSissi in reply toBeryl71

Thank you. I asked about them, when someone else mentioned them, but was told they don't do them for breast cancer (Sweden).

Hazelgreen profile image
Hazelgreen in reply toSwedishSissi

In Canada, and, I imagine, in Sweden, you can ask for cancer markers to be assessed whenever you do bloodwork. I always keep track of mine since they seem to accurately reflect CT scans which are only done here every four or so months. I'm on heavy meds (600 mg of ribociclib + letrozole) which I take on a 5 days on, 2 days off schedule so I want to be sure the meds are working since the normal schedule here is 21 days on + 7 days off. The oncologists will tell you that cancer markers (CA on bloodwork, not CEA) are not always accurate but, in some cases, they are very accurate so no harm in having the information!

Hazelgreen profile image
Hazelgreen in reply toHazelgreen

As Google will tell you, there are many body conditions (besides cancer) which will increase your CEA so other tests are needed. The CA test is much more specific but less sensitive.

bikebabe profile image
bikebabe

very pleased for you and best wishes in your new location.

Justme153 profile image
Justme153

Wonderful news and a absolutely Beautiful place to live!!! You Go Girl!!!

love2golfwell profile image
love2golfwell

So happy to hear your good news about your markers. Glad you are doing well on this protocol. Hoping your scans will be good, too. Also happy for you and your partner and your new life. Love the beautiful view from your home! Sending hugs and prayers.

Katie9898 profile image
Katie9898

wonderful news and I could stare at those views all day!

Totheriver profile image
Totheriver

That is great news💕

Sharon0122 profile image
Sharon0122

What wonderful news and a perfect view! You must be in Scotland!!! The heather under the snow is beautiful! Enjoy your life! Hugs!

Beryl71 profile image
Beryl71 in reply toSharon0122

Yes we're in the Highlands, about 40 miles north of Inverness.

Sharon0122 profile image
Sharon0122 in reply toBeryl71

I lived in London for 6.5 years. Scotland was wonderful, we did get to Inverness, beautiful part of the country. Oh how I miss London, and it has changed so much over the years! Hugs!

Beryl71 profile image
Beryl71 in reply toSharon0122

Where do you live now?

Sharon0122 profile image
Sharon0122 in reply toBeryl71

Oklahoma about 90 miles SW of Oklahoma City. My husband’s work sent us over there in the 90s. It was great! 😊

Figletf profile image
Figletf

All the best to you❤️

mariootsi profile image
mariootsi

What good news and a stunning photo!

Dragonfly2 profile image
Dragonfly2

such a blessing to $njoy this respite from the disease and to be able to move on to exciting changes in your life. Such a lovely lovely part of the country! Looks like a part of the American or Canadian west….enjoy!

Bettybuckets profile image
Bettybuckets

Hi Carolyn, what a wonderful view! And so happy to hear that the addition of faslodex is helping… is that snow up on the hills already? I’m sure the sale of your partners house makes everything less stressful with the move. Good for you!

Beryl71 profile image
Beryl71

Yes that's snow on the distant hills. X

Watjo profile image
Watjo

Thanks for the lovely picture a d the good news on your blood work! Stay positive!! I went with a girlfriend to a farmers market in Little Italy, San Diego, California, USA. It was a fun day full of laughs!

With a friend, I'm the one with gray hair on the right!
Pbsoup profile image
Pbsoup

how lovely. Where in the Highlands? My in-laws were in Nairn for about 20 years until they moved back to England. I loved our holidays there!

Beryl71 profile image
Beryl71 in reply toPbsoup

We're in Bonar Bridge! X

many wins. Celebrate them and you!

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