How is everyone doing today? - SHARE Metastatic ...

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How is everyone doing today?

SunShineEveryDay profile image
23 Replies

Hello to all my sweet friends on here! :)

It’s been a while since I’ve been on here and I have truly missed you guys! This website is very different from any other and so special to me. :)

I have been fully enjoying summer with a volunteer trip to Portugal and have been super busy my very own, first ever, Wellness Retreat just for ladies with stage 4! I’m super excited but also a bit nervous and hope we will all truly have the best time of our lives. There’s nothing like bonding with people in the same boat as us. Well, not the same boat maybe but the same storm! 😂

1 of the ladies that was supposed to be coming passed away last month. Ugggghhhh

I can definitely feel a difference in my body from last year and short of breath a bit lately but still doing the breath work and healing hypnosis (!) and even been doing 5 minutes of ice cold shower! Euphoric when you get used to it! 🤣 😂

Enjoy the things you do today! If you need me, I’ll be in the hammock. :)

Love you all,

Miriam

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SunShineEveryDay
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23 Replies
Adele_Julia profile image
Adele_Julia

funny to see you here again as well. I just got an email saying you posted as I follow you. Are you doing Joe Dispenza breathwork and meditations? It’s an absolute game changer for me! 🥰

SunShineEveryDay profile image
SunShineEveryDay in reply to Adele_Julia

Hello darling! :)

Yes and many other ones as well.

I never realized how many different forms of breath work there is and they all have a different feeling and just so it doesn’t get boring! 😂

I truly believe that breathwork is one of THE most powerful healing tools you can give yourself!

My very favourites are:

Michelle D’Avalla

Wim Hof

Marty Witalij

Breathe with Sandy

Enjoy! :)

Mir

Adele_Julia profile image
Adele_Julia in reply to SunShineEveryDay

Love Wim Hof !!

SunShineEveryDay profile image
SunShineEveryDay in reply to Adele_Julia

Right? Another Dutchie! :) I just finished his book and it made me cry quite a bit, because many of us live such stressful lives with most of us never fully controlling our mind.

Going on long term disability was the best decision I’ve ever made! My heart used to be in my throat 80% of the time! So much to do, never enough time in the day! Being from the Netherlands, I promised myself I would never run around like a chicken without a head but there you have it! 😂

Best521 profile image
Best521 in reply to SunShineEveryDay

It is great to see your post. Glad to see you are forging ahead. Keep being bright Sunshine everyday. Going out on disability was the best decision I made as well. Feel blessed to have the resources to do it. I can’t imagine trying to juggle the psychological and physical demands of being in treatment, dealing with side effects, managing administrative follow up and working.

SunShineEveryDay profile image
SunShineEveryDay in reply to Best521

Hello beautiful!

So good to hear from you! :)

I’m so glad to hear that! Toronto is such a struggle where rent alone is $2800 a month these days! But money be damned! I’m sure the stress is what was killing me! :)

Enjoy the things you do today! We made it to Cuenca, Ecuador 🇪🇨

Hugs,

Miriam

View from our hotel!
Bettybuckets profile image
Bettybuckets

Miriam- I want to hear all about your plans for the retreat as I remember when you first mentioned it and now it is here! Where will it be? How many lovely ladies and what will you do with them? I went on a lovely retreat in Maryland in the spring and it was wonderful! The best part was meeting the ladies and sharing!

SunShineEveryDay profile image
SunShineEveryDay in reply to Bettybuckets

Hi Betty!

Yeah, I ONLY waited a whole year for this! 😂

It’s so great to be here. We went to the Ecuador’s largest zoo yesterday which was 4300 above sea level, 5 hours all up and down the mountain! I can’t believe I’m here to tell the tail! I was sooo out of breath!

I hired a yoga teacher from Germany (who does meditation, reiki, breath work and ecstatic dance and cacao ceremonies etc.) and a hair stylist/make up artist so we can look our best in the ocean 😂

Villa is oceanfront with a personal chef & cleaning leading, a kayak at our disposal and bbq’s so we will certainly have a blast! :)

Take good care sweety!

Hugs 🥰

Bettybuckets profile image
Bettybuckets in reply to SunShineEveryDay

Can you post a pic everyday with notes.. so people can read all about it… such a great idea you had and wow! It only took a year! I think that is expedited. Hard stuff but so worthwhile to have everyone looking forward to the trip. Nicely done.

bikebabe profile image
bikebabe

That's wonderful. Hope the retreat is all you want it to be.

SunShineEveryDay profile image
SunShineEveryDay in reply to bikebabe

Thank you so much for the kind words. :)

Hope you are keeping well.

Hugs 🥰

Beryl71 profile image
Beryl71

Hello Miriam, I too have been absent for a while, just getting on with life. My partner and I have now been in our highland home for 6 months. We've recently been to La Gomera and on a UK road trip. We have made progress in taming our jungle garden, and I can still hike 8 miles in a day, or drive six hour journey, so feeling pleased .

I have been on Fulvestrant instead of letrozole for three months and am awaiting a scan which will show how successful it's been. Meanwhile I'm continuing making short term plans. We're going to Tenerife after Christmas.

New challenges have done me good and stopped me focusing on the MBC. It is what it is but I intend to continue treating it as an unwelcome companion and not give it my time, that's for friends and family and enjoyable activities.

I wish everyone well, keep your spirits up however you can and make the most of the time you are being given.

Love

Carolyn x

SunShineEveryDay profile image
SunShineEveryDay in reply to Beryl71

Hellooo Carolyn!

You’re a girl after my own heart! I’m also just blissfully in denial. I even went and got a skipping rope although I don’t even know if I should be skipping! 😂 But it feels great to pretend I’m just 20! :)

Great exercise young lady! And great on the garden! Must be all that fresh high land air! And what a nice ✈️🛫🛳⛱⛺️🌅🏓🍷 to look forward to! Beautiful there although I haven’t been there.

Seems some ladies would love to visit Greece next year, so that may just be my next project 😂

If you have FB I would love to connect!

facebook.com/groups/2380090...

Take good care! Stay as well as you are.

Hugs 🥰

Mir

Beryl71 profile image
Beryl71 in reply to SunShineEveryDay

facebook.com/carolyn.gibbs.... in touch!

Figletf profile image
Figletf

Enjoy every moment👍❤️

SunShineEveryDay profile image
SunShineEveryDay in reply to Figletf

Thank you kindly! Trying to see as much as I can before I can’t anymore. :)

PJBinMI profile image
PJBinMI

I'm having a good day. When I first got outta bed I realized that I was moving around better than yesterday, with an almost normal gait. I dressed in pink, for Breast Cancer Awareness month! I had an appt. at our local hospital for a CT of chest, abdomen, and pelvis. I've been there so often they recognize me. The check in process has sure gotten more difficult, with computerized pages to fill out and the need to show driver's license and insurance card even though I've been there once before this month and I'd preregistered online and answered all the questions! But all the people who work there are friendly and helpful. And things went quickly today--home again just a tiny bit, under ten minutes, until we were home again.

I've been going through stuff and filling boxes to donate to Goodwill. I am getting of so much clothing that I now have two empty draws, and the closet is noticeably less crowded. I'm keeping clothes just two sizes and that I am really fond of. Amazing how much doesn't meet that mark, LOL.

I hope every is having a good day, too!

SunShineEveryDay profile image
SunShineEveryDay in reply to PJBinMI

Hi honey!!

So good to hear from you. I know, they make it so convoluted, you almost need your computer science degree! 😂

Luckily, you have that behind you again. When you don’t feel well it’s even worse.

I have been purging stuff too and it feels sooo good! We hang on to way much stuff we never use.

Take good care of yourself!

Totheriver profile image
Totheriver

Enjoy every moment and hope the retreat will be great💕

SunShineEveryDay profile image
SunShineEveryDay in reply to Totheriver

Hi! How are you doing now?

Aww, thank you so much sweetheart for the encouraging words! :)

Coffee on the balcony
CTGirl1962 profile image
CTGirl1962

Have a wonderful time on your trip!! 🩷🩷🩷🙏🏻🙏🏻🙏🏻

SunShineEveryDay profile image
SunShineEveryDay in reply to CTGirl1962

Thank you soooo much! 🙏

Hope you are keeping well! :)

RLN-overcomer profile image
RLN-overcomer

Continue to smell the roses on the journey. GOD bless you 😇✝️💯

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