Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for April 2022

No Evidence of Disease!!

Hello. I read often but seldom post. I was diagnosed with MBC in late January 2021. Have been in Ibrance 125 and Faslodex since February 2021. My mets are...

Hello. I read often but seldom post. I was diagnosed with MBC in late January...

1711JPD

•2 years ago

43 Replies

verzenio

Hello, Is there anyone on Verzenio paying with Pace, I will be paying $15.00 a month I found out today. Helena

Hello, Is there anyone on Verzenio paying with Pace, I will be paying $15.00 a m...

Iwouldlike2knowmore

•2 years ago

8 Replies

A little lift

I don't know if anyone here is into parrots, but here's a YouTube post from one of my faves titled, "For those who are hurting" https://youtu.be/-Xi-9pOJ3VQ

I don't know if anyone here is into parrots, but here's a YouTube post from one ...

OneLump22

•2 years ago

6 Replies

Want to take advantage of all our features? Just log in!

Breast Cancer online Conference coming up!

Hi everyone, I was going through my emails and see Living Beyond Breast Cancer is having their annual online conference soon. Go to their website to register...

Hi everyone, I was going through my emails and see Living Beyond Breast Cancer ...

13plus

•2 years ago

2 Replies

CT exam revealed endometrium thickness and biopsy confirmed the endometrium cancer. I have MBC

Hi everyone, I need your help. My last CT revealed the endometrium thickness 20 mm. I was referred to the gynecologist for further evaluation. I am very...

Hi everyone, I need your help. My last CT revealed the endometrium thickness 20 ...

Cureforever

•2 years ago

36 Replies

Interested in targeted drugs? Here's some basic information

Targeted drugs seem to be the most often prescribed intervention for those of us with ER+ HER2- metastasized breast cancer. Research is even being done to...

Targeted drugs seem to be the most often prescribed intervention for those of us...

Hazelgreen

•2 years ago

6 Replies

Just an emotional question?

I’m just 3 months into my MBC world . I got diagnosed with Stage 1 breast ca 25 years ago…no relapse until a few months ago. Honestly, I’m fine but can’t...

I’m just 3 months into my MBC world . I got diagnosed with Stage 1 breast ca ...

Peggypilot

•2 years ago

11 Replies

MEGASE - treatment with progesterone

Hello brave women, I haven't written for a while but do routinely check in to see what's happening with everyone. A little history, I had breast cancer at 45...

Hello brave women, I haven't written for a while but do routinely check in to s...

Lnlc

•2 years ago

2 Replies

Does your Onc give you a basic physical when you see them?

When you have your onc visit do they listen to your longs, heart or feel your stomach? Mine does nothing - his assistant dies blood pressure, oxygen, pulse,...

When you have your onc visit do they listen to your longs, heart or feel your st...

DDIL1

•2 years ago

44 Replies

TREATING CANCER WITH CANNABIS SUPPOSITORIES(RSO)

As with anything in life there are Advocates and Cynics... Just wondering what members on here think. Thoughts, experiences and input. I have read some very...

As with anything in life there are Advocates and Cynics... Just wondering what m...

AutumnLove

•2 years ago

63 Replies

Piqray isn’t on site’s list of meds

I tried to add Piqray to my treatment profile. How do we get health unlocked to update its list of possible MBC meds?

I tried to add Piqray to my treatment profile. How do we get health unlocked t...

Buffwright

•2 years ago

4 Replies

SRS "Cyber knife" advice?

Hello all. My wife has TNBC with mets to lungs and brain. We have been putting off Stereo tactic Radiosurgery (SRS) as the brain mets were shrinking. This has...

Hello all. My wife has TNBC with mets to lungs and brain. We have been putting o...

Winner123

•2 years ago

11 Replies

PIK3CA mutation ctDNA levels and Ibrance....

hi all! admittedly have little knowledge of testing for mutations....but wanting to learn more. have picked up a bit on this site and doing some research....

hi all! admittedly have little knowledge of testing for mutations....but wanti...

kokopelli2017

•2 years ago

42 Replies

Billary stent/Catheter

My father has MBC and has been on Lynparza for 8 months with good results. At monthly check up a week ago, hit liver enzymes and bilirubin went from normal to...

My father has MBC and has been on Lynparza for 8 months with good results. At mo...

Greenwhite63

•2 years ago

8 Replies

Wondering about a member

Has anyone heard from sunnydrinking latly. The last I heard she had been in hospital with covid?????

Has anyone heard from sunnydrinking latly. The last I heard she had been in hosp...

Justme153

•2 years ago

7 Replies

What is your experience with Verzenio as I was.just changed from Ibrance?

Hi Ladies- I am abruptly changing from Ibrance which I feel sad about as I had hoped to get 2.5 years like the median but have to move on after 18 months on...

Hi Ladies- I am abruptly changing from Ibrance which I feel sad about as I had h...

Bettybuckets

•2 years ago

14 Replies

Anyone Having to change to Verzenio

Hi Ladies, My PET shows bone only disease is stable but markers were up and I have this lymph node in neck that is bulging again. So we quickly changed from...

Hi Ladies, My PET shows bone only disease is stable but markers were up and I h...

Bettybuckets

•2 years ago

9 Replies

Guardant360 cdx genetic test

My onc ordered a second genetic test. https://guardant360cdx.com/getting-answers/ I had invitae first. I’m going on 3 months in of Ibrance, Letrozole and...

My onc ordered a second genetic test. https://guardant360cdx.com/getting-answers...

DDIL1

•2 years ago

5 Replies

Good News!

My CA 15.3 has gone from 52 in December to 35 today, and my CA 27 has gone from 87 to 52! Better to go down than up! And the cancer in my lymph nodes is gone,...

My CA 15.3 has gone from 52 in December to 35 today, and my CA 27 has gone from...

Sharon0122

•2 years ago

10 Replies

I’m Allergic to the Preservatives in the generic faslodex and I can’t get approved for a Faslodex by Astra Zeneca. What then? 😭😭😭😭scared

Does anyone have this problem ? What advice , I can’t see straight with all the phone calls I have made and got nowhere . I have Florida blue . They turned me...

Does anyone have this problem ? What advice , I can’t see straight with all the ...

Ycats277

•2 years ago

36 Replies

Current/Future Cancer fighting drugs provide hope..Is 10+ yrs with MBC becoming common? 🙏🏼❤ Any updates with ERSO!What's others thoughts?

From what I have been reading; With the new Cancer fighting drugs currently available it seems totally possible to close in on the 10+ year Mark with MBC.....

From what I have been reading; With the new Cancer fighting drugs currently av...

AutumnLove

•2 years ago

48 Replies

Verzenio causing pain in joins, taking a break and now NO the pain!

Im interested to hear the follow up to your break from verzenio. I too had a week break and the horrible joint pain and neuropathy went away! Was particularly...

Im interested to hear the follow up to your break from verzenio. I too had a wee...

2019artist

•2 years ago

16 Replies

Interesting Study of Cancer Fatique?

The following study is available in J. Clin. Oncol · April 05, 2022: "Long-Term Longitudinal Patterns of Patient-Reported Fatigue After Breast Cancer". I...

The following study is available in J. Clin. Oncol · April 05, 2022: "Long-Term ...

Hazelgreen

•2 years ago

12 Replies

Travel with a port

Hi Everyone, my wife has a power port on her right chest and a card was issued from the hospital when the ported was inserted. Can she go through airport...

Hi Everyone, my wife has a power port on her right chest and a card was issued f...

Jackkau

•2 years ago

11 Replies

PET scan results

My PET scan results came back good. I have been on Ibrance 100mg and Letrozole for 5 years. I was stage 4 at initial diagnosis. I still have the tumor and it...

My PET scan results came back good. I have been on Ibrance 100mg and Letrozole f...

Gmaoftriplets

•2 years ago

8 Replies

Xeloda Experiences Please?

My wife is starting to show progression on Talzenna so we’re about to start Xeloda as monotherapy, 1,000mg twice a day. Probably will start with 2 weeks on,...

My wife is starting to show progression on Talzenna so we’re about to start Xelo...

Half-Full

•2 years ago

10 Replies

Holiday insurance europe

Hi I live in uk and wanting to go on holiday to Spain . Can you please recommend a travel insurance that will cover MBC for 10 days abroad ?

Hi I live in uk and wanting to go on holiday to Spain . Can you please recommen...

Jenhood

•2 years ago

4 Replies

neutrophil count

Hi My neutrophil count is only 0.7. I have started my second cycle of ribociclib (combined with letrazole) and I wanted to know ... can my neutrophil count...

Hi My neutrophil count is only 0.7. I have started my second cycle of ribocicl...

susiemarmite

•2 years ago

11 Replies

So glad I found this site

Diagnosed with BC when I was 46, bi lat mastectomy, chemo and tamoxifen. Mets to spine this year after 25 years cancer free. On letrozole and finished...

Diagnosed with BC when I was 46, bi lat mastectomy, chemo and tamoxifen. Mets to...

Peggypilot

•2 years ago

28 Replies

Turmeric

I have heard turmeric is good in fighting our cancer. I use the powder and sprinkle in salads or pasta. Does anyone take the turmeric pills as a supplement?...

I have heard turmeric is good in fighting our cancer. I use the powder and spri...

U2Rocks

•2 years ago

32 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for April 2022

No Evidence of Disease!!

verzenio

A little lift

Breast Cancer online Conference coming up!

CT exam revealed endometrium thickness and biopsy confirmed the endometrium cancer. I have MBC

Interested in targeted drugs? Here's some basic information

Just an emotional question?

MEGASE - treatment with progesterone

Does your Onc give you a basic physical when you see them?

TREATING CANCER WITH CANNABIS SUPPOSITORIES(RSO)

Piqray isn’t on site’s list of meds

SRS "Cyber knife" advice?

PIK3CA mutation ctDNA levels and Ibrance....

Billary stent/Catheter

Wondering about a member

What is your experience with Verzenio as I was.just changed from Ibrance?

Anyone Having to change to Verzenio

Guardant360 cdx genetic test

Good News!

I’m Allergic to the Preservatives in the generic faslodex and I can’t get approved for a Faslodex by Astra Zeneca. What then? 😭😭😭😭scared

Current/Future Cancer fighting drugs provide hope..Is 10+ yrs with MBC becoming common? 🙏🏼❤ Any updates with ERSO!What's others thoughts?

Verzenio causing pain in joins, taking a break and now NO the pain!

Interesting Study of Cancer Fatique?

Travel with a port

PET scan results

Xeloda Experiences Please?

Holiday insurance europe

neutrophil count

So glad I found this site

Turmeric

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