Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,738 members • 8,322 posts

All posts for September 2021

blurry eyes from medications

Hi, I'm new here. I have mets in brain, lungs, liver and bones. I was diagnosed a year ago. I am 64. I'm on Ibrance and Arimidex. About 6 months ago my...

Hi, I'm new here. I have mets in brain, lungs, liver and bones. I was diagnose...

sparks4me

•3 years ago

22 Replies

Navelbine

Is anyone on Navelbine

library2019

•3 years ago

7 Replies

Alternatives to gabapentin? Long term use of it?

Can anyone recommend a natural alternative to gabapentin? My mom had a prophylactic kyphoplasty surgery following SBRT radiation back in January and has been...

Can anyone recommend a natural alternative to gabapentin? My mom had a prophylac...

Jac-genova

•3 years ago

3 Replies

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Ibrance and letrozole hair loss and hair coloring

Hi everyone :) I am a 52 year old woman, who had stage 4 breast cancer and also a full mastectomy. After 5 yrs of being in remission, it has returned to my...

Hi everyone :) I am a 52 year old woman, who had stage 4 breast cancer and also ...

JenniJenni

•3 years ago

56 Replies

Radiation Burns

Hi from sunny Shropshire. Just wanted to thank you all for your support and especially to those who responded to my last post. Thankfully the burns are...

Hi from sunny Shropshire. Just wanted to thank you all for your support and esp...

Archiedog

•3 years ago

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Ascites, anyone?

I was diagnosed de novo in June 2019. Verzenio and Letrazole worked great and I was NED til my oncologist decided I no longer needed the Verzenio. Long story...

I was diagnosed de novo in June 2019. Verzenio and Letrazole worked great and I ...

Seaglass77

•3 years ago

3 Replies

Piqray

I was on Xeloda and it stopped working. My cancer numbers went up. Today I started Piqray. I also started Metfornin for high blood sugar as this is a side...

I was on Xeloda and it stopped working. My cancer numbers went up. Today I start...

Rbeth

•3 years ago

27 Replies

tumor markers

Ok ladies, anyone on the newer dosage of taxol and found that tumor markers began creeping up? Well the answer is yes but really I want to know what they...

Ok ladies, anyone on the newer dosage of taxol and found that tumor markers bega...

blms

•3 years ago

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Tears eyes

Was anyone switched from zometa to xgeva ? My eyes tear profusely and was told this could help .

Was anyone switched from zometa to xgeva ? My eyes tear profusely and was told t...

Ycats277

•3 years ago

1 Reply

Capecitebine - hand/foot syndrome tip

queeneee

•3 years ago

4 Replies

Floods here in New England

Been mucking up basement floodwaters since Friday and remediation will be here tomorrow morning. Having stomach pain since last night, aching pain in back...

Been mucking up basement floodwaters since Friday and remediation will be here t...

Tam-56

•3 years ago

9 Replies

Scan anxiety once again.

My PET scan is on Wednesday afternoon. I’ll know the results on Monday during face to face visit with my oncologist. I stay busy to keep my mind away, but is...

My PET scan is on Wednesday afternoon. I’ll know the results on Monday during f...

Tolife_18

•3 years ago

17 Replies

Pneumonitis from Ibrance

Greetings to All you lovely people: Has anyone on Ibrance had any experience with pneumonitis? I know that this a rare serious lung inflammation that can...

Greetings to All you lovely people: Has anyone on Ibrance had any experience wit...

Maddyandherkittens

•3 years ago

21 Replies

ErSO Let's bombard Bayer with messages to start trials!

Hi Dear Ladies I am reposting the below from over on Inspire... I just wrote a short message to the CEO of Bayer, maybe we can all do the same... Obviously...

Hi Dear Ladies I am reposting the below from over on Inspire... I just wrote a ...

Pbsoup

•3 years ago

18 Replies

Such a wonderful day and it stayed dry

We really enjoyed the wedding. After two and a half years on chemo I was worried I wold not last the day but made it to 9.30 so feeling proud.

We really enjoyed the wedding. After two and a half years on chemo I was worried...

BangorBelle

•3 years ago

17 Replies

Making Dosing More Patient-Centric

So proud to present this outstanding perspectives piece about Patient-Centered Dosing penned by Martha Carlson in Cure Magazine! If you've ever suffered from...

So proud to present this outstanding perspectives piece about Patient-Centered ...

Bestbird

•3 years ago

12 Replies

ONJ

My Oncologist would only allow me to have Xgeva for a year due to the risk of ONJ he said the risk increased greatly after a year on the treatment. So sorry...

My Oncologist would only allow me to have Xgeva for a year due to the risk of ON...

Anita-B

•3 years ago

33 Replies

Denosumab and chest pain

I went to see my Oncologist this week as a follow up to my new treatment. I was having sharp pains in my chest. I checked my blood pressure and oxygen levels...

I went to see my Oncologist this week as a follow up to my new treatment. I was ...

Hidden

•3 years ago

30 Replies

My daughter is getting married today, so glad it is going ahead at the third attempt due to COVID. So exited.

Photo of happy couple

BangorBelle

•3 years ago

20 Replies

Reintroduction

Hi. I joined this group about a year ago. I was not very active with posting. I had a lot of things happen in a short amount of time and was having trouble...

Hi. I joined this group about a year ago. I was not very active with posting. ...

HOPE1413

•3 years ago

18 Replies

How long before we know if Abraxane and Atezulizumab are working?

Hello all! My wife is about to go for her second injection of Abraxane today, then one more next week of Abraxane and Atezulizumab next week to conclude this...

Hello all! My wife is about to go for her second injection of Abraxane today, th...

Winner123

•3 years ago

10 Replies

1934 Taxi

Just a pic of the old taxi ! I had a superb tour around London ! It was a surprise! Jo xx

Just a pic of the old taxi ! I had a superb tour around London ! It was a surp...

Sunnydrinking

•3 years ago

12 Replies

It’s my birthday !

Hello lovely ladies Today is my 59th birthday ! We went to the Hand and Flowers, Marlow for lunch ! It was fabulous 👍 On Tuesday I was treated to a...

Hello lovely ladies Today is my 59th birthday ! We went to the Hand and Flower...

Sunnydrinking

•3 years ago

39 Replies

Hope for Those with Bone Fractures from MBC

Hi dear MBC’ers: I am at MD Anderson this week to see if I’m a candidate for bone cement on my non-displaced Superior & Anterior none fractures. I have done...

Hi dear MBC’ers: I am at MD Anderson this week to see if I’m a candidate for bo...

hopenowandtomorrow

•3 years ago

13 Replies

Radiation with scans? How often is too often?

Has anyone had concerns over radiation levels with CT/bone scans? I had been having scans every six months but now the onco wants to move them to every four...

Has anyone had concerns over radiation levels with CT/bone scans? I had been hav...

oilermama

•3 years ago

10 Replies

Good News after 8 months on Ibrance 125, fulvestrant and Xgeva.

Hi everyone Good news everything stable after latest scan and also oncologist happy that my pleural tumour has shrunk. She is leaving me to Feb 2022 for next...

Hi everyone Good news everything stable after latest scan and also oncologist h...

debbiedo2063

•3 years ago

27 Replies

Anyone on Zeloda having headaches?

I’ve been having headaches every other day or so. I’m on 1000 twice a day. Anyone else having headaches. I’m used to slight fatigue and gasiness but not...

I’ve been having headaches every other day or so. I’m on 1000 twice a day. Anyon...

Gwennie123

•3 years ago

2 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for September 2021

blurry eyes from medications

Navelbine

Alternatives to gabapentin? Long term use of it?

Ibrance and letrozole hair loss and hair coloring

Radiation Burns

Ascites, anyone?

Piqray

tumor markers

Tears eyes

Capecitebine - hand/foot syndrome tip

Floods here in New England

Scan anxiety once again.

Pneumonitis from Ibrance

ErSO Let's bombard Bayer with messages to start trials!

Such a wonderful day and it stayed dry

Making Dosing More Patient-Centric

ONJ

Denosumab and chest pain

My daughter is getting married today, so glad it is going ahead at the third attempt due to COVID. So exited.

Reintroduction

How long before we know if Abraxane and Atezulizumab are working?

1934 Taxi

It’s my birthday !

Hope for Those with Bone Fractures from MBC

Radiation with scans? How often is too often?

Good News after 8 months on Ibrance 125, fulvestrant and Xgeva.

Anyone on Zeloda having headaches?

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