Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for July 2020

Tumour markers dropped

Hi Ladies Had bloods done yesterday and my CA153 marker has dropped from 783 to 472...this is now my third month of faslodex injections and I’m feeling a bit...

Hi Ladies Had bloods done yesterday and my CA153 marker has dropped from 783 to...

Barbteeth

•4 years ago

56 Replies

Thank You

I am not sure what to do. I know it is my decision on having surgery but considering whether it will help with quality of life. Thanks for sharing your...

I am not sure what to do. I know it is my decision on having surgery but consid...

strong1t

•4 years ago

4 Replies

PET scans vs CT and MRIs

Hi! There is some question about the efficacy of PET scans VS CT and MRIs. I’ve been told PETS are more sensitive and therefore often produce false negative or...

Hi! There is some question about the efficacy of PET scans VS CT and MRIs. I’ve ...

Red1246

•4 years ago

3 Replies

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Interesting new data

Just saw this USC study about possible use of intermittent fasting and increasing effectiveness of hormonal treatment. (And read it right after I had seconds...

Just saw this USC study about possible use of intermittent fasting and increasin...

Pbsoup

•4 years ago

19 Replies

How long can we stay on Xgeva?

I've been taking Xgeva since Nov 2017 for extensive bone mets. I had it monthly for the first few months, then every other month for about a year, now every...

I've been taking Xgeva since Nov 2017 for extensive bone mets. I had it monthly...

MacroMom

•4 years ago

9 Replies

Sunflowers to brighten your day

These always brighten my day

Kiera49

•4 years ago

8 Replies

Sunflowers at our allotment

Just to brighten your day lovely ladies. So pleased with them.

Hidden

•4 years ago

11 Replies

Masectomy

Has anyone with Stage 4 breast cancer had a masectomy? Thanks for your reply.

strong1t

•4 years ago

22 Replies

First day on xeloda

Day 1 on xeloda, hoping it's going to kick cancers butt a little without too many side effects

Day 1 on xeloda, hoping it's going to kick cancers butt a little without too ma...

Kiera49

•4 years ago

7 Replies

Importance of PET scans

Morning everyone I just wanted to give you an update and to share what’s happening with me. So I had one small bone met to my pelvis in 2018 kept under...

Morning everyone I just wanted to give you an update and to share what’s happen...

Scandia68

•4 years ago

68 Replies

Women with bone-only metastatic breast cancer- do you see this as a chronic disease?

Just curious how long some of you women who have been diagnosed with bone-only metastases have been living with this disease. My mom's oncologist described it...

Just curious how long some of you women who have been diagnosed with bone-only m...

Jac-genova

•4 years ago

54 Replies

Venting about LabCorp

I had to go for bloodwork this week. I was so disheartened yesterday to turn up at Labcorp and notice the person at the intake desk had her mask below her chin...

I had to go for bloodwork this week. I was so disheartened yesterday to turn up ...

13plus

•4 years ago

10 Replies

Sunscreen

This may seem an odd question but today I used an organic sunscreen and after a few hours my tee shirt had turned pink around the edges of my neck where it was...

This may seem an odd question but today I used an organic sunscreen and after a ...

Beryl71

•4 years ago

6 Replies

Change in dose

Hello gorgeous ladies. After how long on Ibrance 125mg did your oncologist reduce the dose and why? I’m on 125mg with Letrozole for 8 months now. I’m feeling...

Hello gorgeous ladies. After how long on Ibrance 125mg did your oncologist reduc...

Annadm

•4 years ago

31 Replies

Overactive bladder?

Has anyone ever experienced an overactive bladder? My mom started having issues where she's getting up at least 10 times a night to pee. I'm not sure if its...

Has anyone ever experienced an overactive bladder? My mom started having issues ...

Jac-genova

•4 years ago

7 Replies

Waiting on clinical trial - currently on no treatment

Hi I’m still waiting scans & further tests etc to hopefully participate in the Emerald clinical study. Since stopping palbociclib and letrozole I feel awful....

Hi I’m still waiting scans & further tests etc to hopefully participate in the E...

Sunnydrinking

•4 years ago

13 Replies

Radical Remission Online Course & Harvard Study

Kelly Turner, Ph.D. published Radical Remission in 2014. she now offers a self-paced Radical Remission Online Course, which goes in-depth with videos,...

Kelly Turner, Ph.D. published Radical Remission in 2014. she now offers a self-p...

hurricaneheather

•4 years ago

7 Replies

I want to drop Everolimus and be only on Fulvestrant/Faslodex + Xgeva

Hi everyone, hope you’re staying safe. I was on Everolimus 10mg for a month and just finished my first month of 7.5mg dosage. Due to the side affect of...

Hi everyone, hope you’re staying safe. I was on Everolimus 10mg for a month an...

Jonesburger

•4 years ago

29 Replies

Clinical Trials

Hello Fellow Fighters! I have been stage 4 with mets to bone and liver for 4 years. I went through 7 different treatments and was about to start abraxane in...

Hello Fellow Fighters! I have been stage 4 with mets to bone and liver for 4 ye...

beachlover65

•4 years ago

22 Replies

Kelly

To all you lovely ladies that sent huge amounts of love to Kelly (JKM - not on this forum). Bless her she passed away on 7th July. Kelly made a video a week...

To all you lovely ladies that sent huge amounts of love to Kelly (JKM - not on t...

Hidden

•4 years ago

26 Replies

Teeth pain

Hello! Anyone on Ibrance and Letrozole and feel tooth pain?

Annadm

•4 years ago

8 Replies

Changing treatment

Hi all - When does treatment change for you? My latest pet/ct had a ‘new mets on femur head ‘ which did not show up on mri ten days prior. How does one know...

Hi all - When does treatment change for you? My latest pet/ct had a ‘new mets o...

Joey1965

•4 years ago

17 Replies

Interesting read.

https://www.cancerresearchuk.org/about-cancer/cancer-in-general/treatment/complementary-alternative-therapies/individual-therapies/vitamins-diet-supplements I...

https://www.cancerresearchuk.org/about-cancer/cancer-in-general/treatment/comple...

Hidden

•4 years ago

21 Replies

COVID-19 Emergency Assistance

https://www.ubcf.org/ubcf-covid-19-emergency-assistance-program/ They will get back to you in a few days. I got an Amazon gift card 100! and other goodies!

https://www.ubcf.org/ubcf-covid-19-emergency-assistance-program/ They will get b...

Nmartinez15

•4 years ago

5 Replies

July 17, 2020

Hi fellow warriors, I have been busy with stuff lately. My health seems to be stable, thank you God. For now I am staying on Xeloda. Dosage was reduced a...

Hi fellow warriors, I have been busy with stuff lately. My health seems to be s...

SusieIM

•4 years ago

13 Replies

Xeloda

Am I the only person to have terrible stomach problems on Xeloda?

BangorBelle56

•4 years ago

9 Replies

"Your cancer may be changing course."

Has anyone ever heard these words? What do they mean? For the first time since I was diagnosed w/MBC 3 1/2 years ago, I have had recent progression to the ribs...

Has anyone ever heard these words? What do they mean? For the first time since I...

Dianne417

•4 years ago

21 Replies

FOR PERSEVERANCE TODAY

Just thought I’d share this short prayer to keep us going through tough times... If things get tough today, Lord - and in all hard times - let me stay...

Just thought I’d share this short prayer to keep us going through tough times......

MyMiracle13

•4 years ago

15 Replies

New treatment

Always dread seeing onc, but after seeing her today feel more positive, starting new treatment xeloda next weds and she says after first cycle I can have 2...

Always dread seeing onc, but after seeing her today feel more positive, starting...

Kiera49

•4 years ago

13 Replies

Verzenio now possibly to be given to women with earlier stages of breast cancer

I am now on Verzenio for stage iv. Twice a day (Ibrance did not work). I now read an article on survivor.net about them finding that it may work for...

I am now on Verzenio for stage iv. Twice a day (Ibrance did not work). I now r...

kearnan

•4 years ago

2 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for July 2020

Tumour markers dropped

Thank You

PET scans vs CT and MRIs

Interesting new data

How long can we stay on Xgeva?

Sunflowers to brighten your day

Sunflowers at our allotment

Masectomy

First day on xeloda

Importance of PET scans

Women with bone-only metastatic breast cancer- do you see this as a chronic disease?

Venting about LabCorp

Sunscreen

Change in dose

Overactive bladder?

Waiting on clinical trial - currently on no treatment

Radical Remission Online Course & Harvard Study

I want to drop Everolimus and be only on Fulvestrant/Faslodex + Xgeva

Clinical Trials

Kelly

Teeth pain

Changing treatment

Interesting read.

COVID-19 Emergency Assistance

July 17, 2020

Xeloda

"Your cancer may be changing course."

FOR PERSEVERANCE TODAY

New treatment

Verzenio now possibly to be given to women with earlier stages of breast cancer

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