Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,887 members • 15,636 posts

All posts for December 2021

Ropinorole and Neupro

I’ve been on Ropinorole 3mg and neupro 3 mg patch combination for more than 15 years and have lead a normal life I tried getting off them about 2 years ago and...

I’ve been on Ropinorole 3mg and neupro 3 mg patch combination for more than 15 y...

Bat3353

•3 years ago

1 Reply

Clonazapam

Three months ago I attended the Barberry sleep clinic in Birmingham had bloods and medical history etc. taken and wore an acti watch for two weeks as well as...

Three months ago I attended the Barberry sleep clinic in Birmingham had bloods ...

bedith6

•3 years ago

13 Replies

Staying on low dose of pramipexole

I was on pramipexole, .50 and occasionally higher dose, for 20 years. When the .50 started to become ineffective, and my doctor refused to give me a higher...

I was on pramipexole, .50 and occasionally higher dose, for 20 years. When the ....

Cather

•3 years ago

9 Replies

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Horizant - has anyone had any good results

I started taking Horizant almost two months ago and do not see any positive results. I find it doesn't stop my RLS so I am back to taking percocet as it is...

I started taking Horizant almost two months ago and do not see any positive res...

Beckonwood

•3 years ago

6 Replies

repetitive Transcranial Magnetic Stimulation - an update

I concluded repetitive Transcranial Magnetic Stimulation (rTMS) therapy just over two months ago. Unfortunately it doesn’t appear to have been effective for...

I concluded repetitive Transcranial Magnetic Stimulation (rTMS) therapy just o...

Hidden

•3 years ago

4 Replies

Trying to get off Sinemet

Still stuck on Sinemet (100mg levidopa/25mg carbidopa) which augmented causing severe muscle rigidity along with the worsening RLS convulsions. It was...

Still stuck on Sinemet (100mg levidopa/25mg carbidopa) which augmented causing s...

betternowman

•3 years ago

17 Replies

Lyrica

I was just prescribed Lyrica. Was wondering if anyone knows...if I take my 150 mg of Lyrica at noon. Can I safely have a cocktail at 5 or 6?

I was just prescribed Lyrica. Was wondering if anyone knows...if I take my 150 m...

Hidden

•3 years ago

17 Replies

RSL relief at last

Relief at last- following my Whipples surgery for cancer end of Feb 2020 my ferritin levels fell to 35 and my RLS was every day non stop I was desperate and...

Relief at last- following my Whipples surgery for cancer end of Feb 2020 my fer...

Mycatis6

•3 years ago

22 Replies

Withdrawal update

Tonight I have taken my last .25mg Roprinirole. I may do as one member on here suggested and begin taking just one half of that dose for another week or...

Tonight I have taken my last .25mg Roprinirole. I may do as one member on her...

cicek

•3 years ago

10 Replies

Suffolk or Ropinorole

Sifrol or Ropinorole 6 months ago moved back.to UK from France. Dr in France gave me Sifrol for RLS. It worked really well. He managed to get me enough to see...

Sifrol or Ropinorole 6 months ago moved back.to UK from France. Dr in France gav...

Crazy1921

•3 years ago

6 Replies

New guy with old RLS

70 year-old Vietnam veteran… AND Jazz guitar player ;-) Tramadol times eight years, (hellish withdrawal x 14 mos), 12 years to present on hydrocodone 10 mg 4...

70 year-old Vietnam veteran… AND Jazz guitar player ;-) Tramadol times eight yea...

OudisCool

•3 years ago

25 Replies

RLS-ROPINOLE

Thanks for all your help. i have been off ropinirole for 7 days. it has took me over 9 months to reduce dosage down. still not able to sleep for first 4 hrs at...

Thanks for all your help. i have been off ropinirole for 7 days. it has took me ...

help3

•3 years ago

18 Replies

RLS and alcohol abstinence?

I've been a habitual alcohol drinker for years - relatively heavy, certainly more than the recommended amount. I may typically have 2-3 days alcohol-free per...

I've been a habitual alcohol drinker for years - relatively heavy, certainly mor...

chatabox

•3 years ago

14 Replies

Massage and RLS

Hi, am having a terrible time with my RLS since having Open heart surgery, Has anyone had relief with a massage foot machine?

Hi, am having a terrible time with my RLS since having Open heart surgery, Has ...

funnyfennel

•3 years ago

5 Replies

Trapped finale (hopefully)

Well guys my update ! I contacted PALS of the hospital 8am no answer obviously to early so dropped them email of my predicament, at 10 30 am sister of ward...

Well guys my update ! I contacted PALS of the hospital 8am no answer obviously ...

Smurff

•3 years ago

17 Replies

Update on trapped

Well folks next chapter , firstly thank you all for your concerns and ideas wow so glad I found this site , It's now 7.30 am and yup been up all night in...

Well folks next chapter , firstly thank you all for your concerns and ideas wow...

Smurff

•3 years ago

3 Replies

Efficacy of methadone for refractory RLS

Fellow RLS sufferers, For a short bio, if you don't mind, you can skip to the second paragraph: I'm in my early 30s. Suffered mild RLS as long as I can...

Fellow RLS sufferers, For a short bio, if you don't mind, you can skip to the s...

GuillaumeL

•3 years ago

9 Replies

Trapped

OMG they've stopped my 3 morning dose it's now 2pm and I'm walking the ward they tried to do an ecg but the cables kept coming off because I couldn't keep...

OMG they've stopped my 3 morning dose it's now 2pm and I'm walking the ward th...

Smurff

•3 years ago

15 Replies

Swapping Gabapentin for Pregabalin

Can I just ask a question regarding swapping 1200 Gabapentin taken in two doses (7pm and 9pm) for Pregabalin, which has stopped working for me. I also take,...

Can I just ask a question regarding swapping 1200 Gabapentin taken in two doses ...

Mulberry100

•3 years ago

18 Replies

Pramipexole

Can anyone tell me the max dose of pramipexole a severe risk suffer can take I am taking 3 morning 3 evening total Pramipexole 180microgram 6 times day ! One...

Can anyone tell me the max dose of pramipexole a severe risk suffer can take I a...

Smurff

•3 years ago

25 Replies

RLS and Parkinson's

Hi everyone, I'm new here but have been reading a lot of posts and find it very helpful. Great to find this community that support each other. I wanted to tell...

Hi everyone, I'm new here but have been reading a lot of posts and find it very ...

Fernando80

•3 years ago

12 Replies

Burning legs

I want to appeal to all the knowledgeable RLS sufferers to see if they can help my dear husband who has been suffering from burning feet and legs. It has been...

I want to appeal to all the knowledgeable RLS sufferers to see if they can help ...

Daisy2408

•3 years ago

10 Replies

Doctors

This is ridiculous. There must be doctors out there who suffer from rls. Can't they do something to help. Do they treat themselves and let others suffer. They...

This is ridiculous. There must be doctors out there who suffer from rls. Can't t...

Memmy

•3 years ago

13 Replies

any successful stories switching from opioid to pregabalin?

I need to try to switch from oxycodone 5 mg to pregabalin due to the profound insomnia it causes and feel trepidatious about it. I have never tried...

I need to try to switch from oxycodone 5 mg to pregabalin due to the profound i...

halperinchen

•3 years ago

13 Replies

I need help from those who are suffering from opioid-induced insomnia

I need help from our members who suffer from the opioid-induced insomnia. I'd appreciate if you can share with your coping method and how serious your...

I need help from our members who suffer from the opioid-induced insomnia. I'd...

halperinchen

•3 years ago

19 Replies

Mirtazipine side affects

Anyone one suffer with leg pain while taking mirtazipine I'm.in agony with my legs and feet I've been on it nearly 6 weeks the pain is making me feel sick

Anyone one suffer with leg pain while taking mirtazipine I'm.in agony with my le...

Julie37lpool

•3 years ago

5 Replies

terrible side effects from Belsomra

I'd like to share my terrible experiences with Belsomra ( the new sleeping aid) on RLS. My doctor gave me some samples of Belsomra to try for my profound...

I'd like to share my terrible experiences with Belsomra ( the new sleeping aid) ...

halperinchen

•3 years ago

3 Replies

Two nights in a row Gabapentin hasn’t worked, why??

After 2 weeks off of the pramipexole I think I’m safe in saying I’m done with it. I did the weaning from 1 mg to eventually .125 mg. But now 2 nights in a...

After 2 weeks off of the pramipexole I think I’m safe in saying I’m done with it...

Woody4

•3 years ago

50 Replies

I’m new here. Advice re iron bisglycinate and RLS. and a good private practice neurologist in SE Queensland (Australia)

I’ve just found this forum after years of trying to manage RLS without much help. Doctors seem to know little about it. There is so much great information...

I’ve just found this forum after years of trying to manage RLS without much help...

Runninglegs2

•3 years ago

5 Replies

Can a burning pain in the buttocks be part of RLS symptoms ?

Has anyone experienced pain in the buttocks that was related to RLS? I have had RLS for a few years, have on the whole been able to manage the pain in the legs...

Has anyone experienced pain in the buttocks that was related to RLS? I have had ...

s_gc

•3 years ago

14 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for December 2021

Ropinorole and Neupro

Clonazapam

Staying on low dose of pramipexole

Horizant - has anyone had any good results

repetitive Transcranial Magnetic Stimulation - an update

Trying to get off Sinemet

Lyrica

RSL relief at last

Withdrawal update

Suffolk or Ropinorole

New guy with old RLS

RLS-ROPINOLE

RLS and alcohol abstinence?

Massage and RLS

Trapped finale (hopefully)

Update on trapped

Efficacy of methadone for refractory RLS

Trapped

Swapping Gabapentin for Pregabalin

Pramipexole

RLS and Parkinson's

Burning legs

Doctors

any successful stories switching from opioid to pregabalin?

I need help from those who are suffering from opioid-induced insomnia

Mirtazipine side affects

terrible side effects from Belsomra

Two nights in a row Gabapentin hasn’t worked, why??

I’m new here. Advice re iron bisglycinate and RLS. and a good private practice neurologist in SE Queensland (Australia)

Can a burning pain in the buttocks be part of RLS symptoms ?

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