Burning legs

[Daisy2408]

I want to appeal to all the knowledgeable RLS sufferers to see if they can help my dear husband who has been suffering from burning feet and legs. It has been diagnosed as a nerve trapped in lower spine which has been troublesome for years and is pretty wonky. He has had cortisone injections in the past for the pain. Physio has given exercises which aren’t helping. He was prescribed annitriptaline which allowed sleep but kept him asleep for the day as well so he stopped taking them. He is a very active 79 year old and the situation is affecting his mental well being. I have just suggested he try magnesium which helps my RLS a bit. He is taking paracetamol and codeine at night which allows a bit of sleep. Other than that he wanders around then listens to the wireless half the night. I would be so grateful for any help. Oh. He walks for a good hour every day which he lives but doesn’t help the condition. Daisy

[involuntarydancer]

Hi Daisy, I’m sorry to read of your husbands difficulties but is he suffering from RLS? Burning feet is not a normal symptom although there are some co-morbidities. It may be that you need a different section of health unlocked.

[Daisy2408 in reply to involuntarydancer]

Thank you involuntary dancer. I agree with you. It is unlike my RLS symptoms but this forum has so many clever people I thought I might get a few useful thoughts! Daisy

[Steg12]

HiI thought it was only me I have had it now for over 3 years it just feels like boiling water has been poured on my legs. And the

Shin bones feel like they are going to explode.? I wear lymphoedema socks I feel sometimes they work but not really sure. I was taking oxy 80mg + pregablen 75mg

And the pain was less but they have now because of government guidelines chopped me down to 40mg taking into that I had need on them for 20 years I have had a terrible time now every muscle and joint and everything I was trying to stop is back .

Even my pancreas tumour is playing up again.? If it wasn’t for the grand kids I would probably have gone ages ago. It’s 24/7

I get about 3/4 hours sleep . And walking is only very short trips sometimes it’s just too much just to walk. So I feel for your husband as I always say there is always someone else worse off. Take care good luck.

[SueJohnson in reply to Steg12]

Which medicine was cut down to 40 mg?

[Steg12 in reply to SueJohnson]

The oxy your not allowed over a certain amount now. I refused to go lower and asked to have more but don’t think they will. I could cut them off today

[martino]

I suffer from Small Fibre Neuropathy as well as RLS. This is normally diagnosed by a neurologist who may get a nerve conduction study done or a skin biopsy. Sadly there is only pain medicine to help. Can he manage with shorts and no socks? Anything touching his skin will aggravate it.

[ziggypiggy]

Cymbalta works fantastic for my burning feet. It may increase your RLS symptoms for sure. I get prescribed a lhighter dose of opioids to offset this. The combination works wonders I went from soaking me feet in cold water two to three times a night, now maybe once a week.

As you've mentioned burning feet can be just as as detrimental to ones sleep and mental health as RLS.

[Munroist]

There is a link between RLS and neuropathy (nerve damage). Pregabalin and gabapentin are often prescribed for neuropathy as they damp down nerve activity and they are also the first choice medications for RLS before dopamine agonists or opioids. They don’t fix everyone’s RLS but I’d say they were worth a try if you haven’t already. A doctor will have to prescribe. Current treatment best practice here:

mayoclinicproceedings.org/a...

Of course it would be best to fix the trapped nerve but that depends very much what’s wrong and might need MRIs or physio to address. It also may well not fix the RLS as although they are related my belief is that the RLS will be an existing underlying condition which is exacerbated by the nerve issues.

[Zurp111]

I have burning feet a and it increases a lot my RLS.But I manage. By trying to cool down my feet. I put my feet in a bucket of cold water for 1/2 hour before sleeping. (I read my book during that time.)

Of course, I don't have a sheet nor blanket on my legs, only on the upper body.

And underneath my legs. I put "a dog's cold flat cushion" you know those to cool down your dog in the summer. I have 2 of them. Every 2 hours I change to have the one which is cool again. It's cheap and you find it in animal's shop.

It does really help me and I can sleep even if I do wake up every other hour.

I hope you understand, English is not my first language...

[Daisy2408 in reply to Zurp111]

Thank you so much. My husband had no idea there were so many people with this problem. He has started to take a dose of magnesium at night now to try and calm things down. It seems to help my RLS to an extent. It is interesting to find so many people have RLS alongside the burning. Your English is very easy to understand!