TV PROGRAMME

[Meritus]

Did anyone here see the UK Channel 5 programme on rls wed night 23 june 2021?

[Madlegs1]

I didn't.

I watched it the first time round.

I can't imagine it got any better with ageing!

[Kaarina Administrator]

I definitely did not watch it again as I watched it the first time round. Once was more than enough for me.

Repeat of programme shown a couple or so years ago

[Insomniak]

Hi Meritus,We don’t get channel 5 in our package in Dublin so I asked my Mum in UK to record it for me. Having seen the comments above I am not anticipating deriving much help from the documentary.

[Allyp69]

Repeat programme...no cures or treatments..just made people aware of the condition.,.

[m1946]

I saw the programme first time round and was disappointed at the apparent lack of research. If anybody is "in the know" let me have their contact details!

The researchers obviously have not heard of healthunlocked!!

[TheThirdDoctor]

Yes, first time for me, and although I identified with the people in it, the program really was not very good.

[BigG1976]

I just finished watching it which brought me here, I had no idea this forum or RLS UK even existed! I've lived with the condition for 6/7 years now and I've recently developed PLMD (unbeknownst to me until my partner told me I was lashing out in my sleep) which has yet to be formally diagnosed but my poor partner has taken the unfortunate brunt of it. I've been told it will probably be at LEAST a year before I'm even contacted by neurology to investigate further...and that's just a year at least for my referal to be accepted! It's getting really frustrating as time goes on

[BigG1976]

Looks like I came to the right place, just been woke up by my partner after having a nightmare about being kicked, punched, spat on (and worse) so guess what I was doing as I woke up? Yup, I was kicking, punchin (small mercy but I wasn't spitting). This time, was literally bouncing off the bed I was kicking so hard, poor partner got kicked so bloomim hard and I accidentally kicked so hard I launched our poor 5mth old pup out of the bed 😔

[Hidden in reply to BigG1976]

OK, that's PLMS. As I said, what's your current treatment?

I can't help without an answer.

[BigG1976]

OK so currently I'm taking Venlafaxin 225mg,Quetiapine 30mh,Propranolol 80mg, Buspirone 10mg, Cetirizine 10mg,Lansoprazole 30mg and Pramipexol 360micrograms plus another 0.88micrograms on top of that

[involuntarydancer in reply to BigG1976]

Hi BigG,

Could I suggest you start a separate thread and put these meds in it? There are bound to be people on here who will have experience of these meds but people might miss your post hidden in here in a thread about the tv show. You will learn loads on here and are likely to get knowledgeable responses but much more so if you start a thread.

It would also be helpful if you indicated what you are taking the various meds for and how long you have been on them. RLS interacts - often negatively - with other medications. For example SSRIs and some anti-histamines can have a disastrous effect on RLS. Also the classic treatment for RLS - dopamine agonists such as the pramipexole you take - are now recognised to make symptoms worse ultimately (in a process known as 'augmentation') even though they can be almost miraculous at first.

Could you indicate whether you are taking pramipexole for your RLS or for another condition and also give an idea of how long you have been taking it? Have you noticed your RLS (as opposed to PLMS) getting more pronounced, spreading to other parts of your body and setting in earlier in the evening and/or during the day since you started taking pramipexole?

Also have you had your serum ferritin checked? Raising serum ferritin to over 100 (or even better to over 300) can have a huge benficial impact for at least 50% of sufferers. And a low serum ferritin (anything less than 75) can cause symptoms to be exacerbated and increase the likelihood of augmentation.