Posts - NRAS | HealthUnlocked

NRAS

36,903 members • 45,607 posts

All posts for July 2019

GOODBYE DLA

Hi. After being in DLA (Disability Living Allowance) for approx 27 years with a Motability car, I've finally got the dreaded PIP ( Personal Independence...

Hi. After being in DLA (Disability Living Allowance) for approx 27 years with a ...

Cach

•5 years ago

27 Replies

Newbie here :)

Hello! I’m new here. Diagnosed RA on my 29th birthday in April (what a wonderful gift lol). I am always looking for support groups and haven’t found any in...

Hello! I’m new here. Diagnosed RA on my 29th birthday in April (what a wonderful...

ChronicMother

•5 years ago

22 Replies

Hello - I’m new here!

Hi I’m Jules - I have RA and atrial fibrillation (had cardiac ablation but AF returned infrequently). Any health tips would be appreciated.

Hi I’m Jules - I have RA and atrial fibrillation (had cardiac ablation but AF re...

Juleskb

•5 years ago

11 Replies

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What are the side effects of Methrotexate?

What are the side effects of MTX? Going to start it next week. Cimzia biological drugs didn’t work with Sulphursalazine, SULP made me feel tired, brain fog and...

What are the side effects of MTX? Going to start it next week. Cimzia biological...

Agnes7

•5 years ago

27 Replies

NRAS Group Meetings Next Week

Dear All Please find details of the NRAS Group meetings taking place next week, for more information please visit our website www.nras.org.uk/groups NRAS...

Dear All Please find details of the NRAS Group meetings taking place next week, ...

Kim-NRAS

NRAS•5 years ago

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Just wanted to say... THANK YOU

Just wanted to say THANK YOU to all of you for supporting me and for your kind words and advice with my newly RA diagnosis! I feel very lucky to have this...

Just wanted to say THANK YOU to all of you for supporting me and for your kind w...

regina79

•5 years ago

2 Replies

Want to Stop Taking Methotrexate with Simponi (Golimumab)

Has anybody stopped taking Methotrexate when they are also on Simponi? I am currently on 25mg Methotrexate and for 2 days after I take it I feel terrible. I...

Has anybody stopped taking Methotrexate when they are also on Simponi? I am curr...

Dingaan

•5 years ago

9 Replies

Left in limbo, I don't know how my appointments are going to work.

Hi, it's my first time on here so please be gentle. I was diagnosed with RA in February this year by my rheumatologist. I also have non alcoholic fatty liver...

Hi, it's my first time on here so please be gentle. I was diagnosed with RA in F...

Hidden

•5 years ago

30 Replies

Beautiful Norway-off topic

In Norweigian Fjords on a cruise. It's the most beautiful place I've ever seen. Did too much and had a bit of an 'episode' yesterday but having the time of my...

In Norweigian Fjords on a cruise. It's the most beautiful place I've ever seen. ...

HappykindaGal

•5 years ago

19 Replies

Itchy hand and fingers

Hi everyone Im taking weekly mtx 15mg injections and this is the third time in four months my left hand has been red blothy and itchy all over. It seems to be...

Hi everyone Im taking weekly mtx 15mg injections and this is the third time in f...

Frankiefocus

•5 years ago

11 Replies

My thought today as I lay prone on sofa aching like hell

I was not planning to do much at work today but that plan went out of window....this message made me smile as I don't want to work tomorrow but in I go...

I was not planning to do much at work today but that plan went out of window.......

Hidden

•5 years ago

4 Replies

Storing methotrexate in this heat.

Hi can anyone advise re storing MXT in this weather please. I knew it was ok upto 25c but then yesterday when the coolest room in the house reached 27c I put...

Hi can anyone advise re storing MXT in this weather please. I knew it was ok upt...

Dobcross1

•5 years ago

13 Replies

Cough

Hi I am taking Benepali which is another name for etanercept or Embrel I have a cough fir a while now n and it gets worse the day I take my injection I also...

Hi I am taking Benepali which is another name for etanercept or Embrel I have ...

patricia_210

•5 years ago

13 Replies

new knee

I should be having a new knee op in about six months time but I,ve just received a letter to go to the hospital next month for a pre op assessment,has anyone...

I should be having a new knee op in about six months time but I,ve just received...

gradyjackjacob

•5 years ago

8 Replies

Inflammation found on hand US

Hi guys, I went for my US yesterday and he was only able to do upper body, so he did hands and wrists. He did find a lot of inflammation but more on the left...

Hi guys, I went for my US yesterday and he was only able to do upper body, so he...

regina79

•5 years ago

12 Replies

Implants for Dentures

I am asking if the implants would become loose because of the effect of having RA Having read that RA effects the gums & oral health

I am asking if the implants would become loose because of the effect of having ...

Asheen

•5 years ago

3 Replies

Time to Work Event | 18 September | London

The National Rheumatoid Arthritis Society is holding an event on 18th September in The Maynard Theatre at the King's Fund between 2pm-4:30pm. Time to Work is...

The National Rheumatoid Arthritis Society is holding an event on 18th September ...

Hidden

•5 years ago

5 Replies

Celebrations

I don’t usually drink very much alcohol but am going to a special celebration tonight and it’s the day I take my methotrexate. I have never had an alcoholic...

I don’t usually drink very much alcohol but am going to a special celebration to...

JoolesJB

•5 years ago

9 Replies

Stress & flare up

Good morning, as we are going through a particularly stressful house move, I find this morning that both my hands & wrists, while always being painful are...

Good morning, as we are going through a particularly stressful house move, I f...

Juliachoo

•5 years ago

15 Replies

Starting Leflunomide

Hi all.I have RA,DDD,OA .After being on and off Methatrexate for RA for the last year ( now stopped completely)which badly affected liver blood readings, I...

Hi all.I have RA,DDD,OA .After being on and off Methatrexate for RA for the las...

Funswim

•5 years ago

4 Replies

Hip replacement with RA - update

Thank you all who replied to me. What a lovely and supportive group we all have. I took your collective advice to take control and rang the hospital. I now...

Thank you all who replied to me. What a lovely and supportive group we all have....

LesBev

•5 years ago

3 Replies

Staying hydrated

Because of the meds we take it's obviously a good idea to keep well hydrated, but I must confess I often simply forget. In this hot weather, it's even more...

Because of the meds we take it's obviously a good idea to keep well hydrated, bu...

MissMinto

•5 years ago

6 Replies

Skullduggery

I finally received the PIP assessement appointment letter. The made the appointment for 9am in the morning on the other side of London. There is no way I...

I finally received the PIP assessement appointment letter. The made the appoint...

Paisley58

•5 years ago

35 Replies

Ultrasound on painful joints today

Hey All, I'm finally going for an US on my painful joints.. (lots of them!) this afternoon. I wonder if they'll see any synovial activity or not. Anxious. What...

Hey All, I'm finally going for an US on my painful joints.. (lots of them!) this...

regina79

•5 years ago

16 Replies

Itchy shins. Hand pain. Related?

My hand has been hurting for months. My back as well. I noticed uncontrollable itchy shins after. Can these be related?

My hand has been hurting for months. My back as well. I noticed uncontrollable i...

Hidden

•5 years ago

2 Replies

Biologicals have weakened my immune system and now have a fungus (aspergillus) growing in my sinuses - now need SURGERY to Scrap it out!

Biologicals have caused me to have a fungus (aspergillus) growing in my sinuses! I have to have sinus surgery next Tuesday in the hospital under general...

Biologicals have caused me to have a fungus (aspergillus) growing in my sinuses!...

Troygirl

•5 years ago

11 Replies

Trendelenburg Gait

Hi just been told that my hip limp is trendelenburg gait and I’m awaiting a physio appointment. Wondering if anyone here has developed this after a total hip...

Hi just been told that my hip limp is trendelenburg gait and I’m awaiting a phy...

Hidden

•5 years ago

4 Replies

Learnt today

Well tomorrow I am back to my local GP after my first run of Prednisone for 2 weeks and down to 1 pill a day and already I can feel everything going back to...

Well tomorrow I am back to my local GP after my first run of Prednisone for 2 we...

Hidden

•5 years ago

9 Replies

Appointment at last

Just seen the registrar🥳🥳🤩 My disease is very active ( really been trying to see someone since March)I know it’s not his fault . He has decided to up my...

Just seen the registrar🥳🥳🤩 My disease is very active ( really been trying to ...

Hidden

•5 years ago

9 Replies

Advice on increasing MXT Dose please...

Hi can anyone who is on MXT help please? I'm currently on 15mg (have been for 5 months) but may need to be increased when I see Rheumatologist next week - I...

Hi can anyone who is on MXT help please? I'm currently on 15mg (have been for 5...

Dobcross1

•5 years ago

30 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for July 2019

GOODBYE DLA

Newbie here :)

Hello - I’m new here!

What are the side effects of Methrotexate?

NRAS Group Meetings Next Week

Just wanted to say... THANK YOU

Want to Stop Taking Methotrexate with Simponi (Golimumab)

Left in limbo, I don't know how my appointments are going to work.

Beautiful Norway-off topic

Itchy hand and fingers

My thought today as I lay prone on sofa aching like hell

Storing methotrexate in this heat.

Cough

new knee

Inflammation found on hand US

Implants for Dentures

Time to Work Event | 18 September | London

Celebrations

Stress & flare up

Starting Leflunomide

Hip replacement with RA - update

Staying hydrated

Skullduggery

Ultrasound on painful joints today

Itchy shins. Hand pain. Related?

Biologicals have weakened my immune system and now have a fungus (aspergillus) growing in my sinuses - now need SURGERY to Scrap it out!

Trendelenburg Gait

Learnt today

Appointment at last

Advice on increasing MXT Dose please...

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