Well tomorrow I am back to my local GP after my first run of Prednisone for 2 weeks and down to 1 pill a day and already I can feel everything going back to pain pain, pain. Hate the fact I now have thick ankles with it and very stiff feet plus breathing issues so need to review and think.
However on a good note celebrating the fact I have been with my company a year I was walking past the pond into the centre and noticed 2 chicks and realised I knew they were not moorhens. I watched them on their own and fellow work mate walked by so asked and they were coot chicks. However as I was learning more about hem later I then got told the Mum coot is a fierce Mum. She tells her chicks off and when she gets on a real flap with pushing them under the water she sometimes lands up killing them......for some reason I felt there was an RA story in this (if the steroids don't get you the side effects will).
Happy days I am off tomorrow and I need it so so much shattered and over tired so cant sleep.
Sorry to hear you are back to pain pain pain. It's so challenging when you have felt improvement. You are so right to go back to medics. What a lovely picture, very uplifting. Don't know what job you do but it seems very interesting. Hope you have a restfull day off. Take care. ☺
It’s not easy but you will get there I’m. Not there yet but feel hopeful.
It the little things that make us happy like your little coot 🐣 chicks 🐥
I have had to take Prednisone for 7 long months everyday as high as 20mg for months! Finally Down to 10mg and I can feel the pain creeping back in both my wrists, shoulders & neck!
I have been trying so hard to get off completely because of the bad side effects it has done to me but every time I go lower than 10mg... forget about it!
The reason I have been on for so long is DR just cannot find the correct RA medication!! Searching for almost 3 years! Three years!!
Currently taking IV Infusion Acterma for past 2 months & nothing is changing with these awful flares!
So tired of the whole "hurry up & wait & see what happens" game with medications!
Good luck with your own search for relief! Hope you have better luck than I am having!
Hi I am now down to 7mgs of this Dreaded Drug and will probably be on this level for life. I also have the swollen ankles, stiff legs and walk like a zombie!
I am now on pregablin for the pain, which has also meant I have put loads of wegith back on. I definitely am not as elegant as a duck
Back from Docs and went thro side effects and he looked at me and went ' Dee there will always be a bad side effect with steroids and its weighing up the pro and cons so what do you want to do'.
So staying on Pred till mid August but max at 6mg per day if I can cope with pain then try to reduce till I get to 14th August ready for Rheumy appointment. He said take it up or down depending on how I feel. I know based on fact I am on 2mg everything is hurting I will need to be on 5mg a day and be a tad hyper.
Plus Pregablin staying on/co codamol stay on and tumeric and anti acid pills and Vit D.
We discussed B12 but said hold this one till I see Rheumy re memory moments or he will send me to a memory clinic for a few tests. Then discussed hubby who was with me and still not corectly diagnosed and now pushing to get consultant to see him privately for one appointment to try and reduce my stress about him......
Fish fruit and fibre is diet of the day and when I want some choc I am having it but making sure we dont have any HUGE bars in the house in case the steroid kicks in and want to INHALE the bar!
Work tomorrow and lets see how that goes as today is vegetable on sofa day.
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Sorry to hear you are in pain again. I'm also in pain every day constantly. I just wish I could get a break. 
My excellent Rheumatologist 
Callback by RA Team today- 
Off topic- you only get one Mum
Feeling down today.
Blood tests don't show a flare
