Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,126 members•2,101 posts

All posts for April 2017

Revolade stopped working suddenly

I am from India. I have ITP since 2016 october. Dapsone did not work on me. My doctor suggested Revolade. The platelets used to to increase upto 3 lakhs when I...

I am from India. I have ITP since 2016 october. Dapsone did not work on me. My d...

Divije

•8 years ago

5 Replies

Revolade

Hi! Today I got the first 50 mg of Revolade! I read about the possible side effects can be Rectosigmoid cancer! I'm so scared about this! Did you heard about...

Hi! Today I got the first 50 mg of Revolade! I read about the possible side effe...

Deniss

•8 years ago

7 Replies

exasperated

went to the Dr. today and was told that fatigue is not a sign for ITP well I find it amazing how I only started getting tired like this with low platelet...

went to the Dr. today and was told that fatigue is not a sign for ITP well I fin...

grannygoodwitch

•8 years ago

19 Replies

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After spleen taken out!

My mom is 89 and had her spleen removed 2 weeks ago. We thought this would be the answer to ITP. Her platelets remained high for 8 days but now are rapidly...

My mom is 89 and had her spleen removed 2 weeks ago. We thought this would be th...

beach311

•8 years ago

14 Replies

Itp is curable or not

My name is ashish saxena. My father is suffering from itp from 6 months.At this time his platelets is 8k.He takes revolade tablets but they didn't affect...

My name is ashish saxena. My father is suffering from itp from 6 months.At this ...

ashishsxn08

•8 years ago

21 Replies

Tingling

Has anyone experienced of tingling-pins and needles,while on a course of Nplate.

garyphillz184

•8 years ago

3 Replies

Celiac, ITP and me

Hi All, My ITP was diagnosed 6 yrs ago and after none of the treatments worked, I was off of any blood tests or medicines since 4 yrs. I will have bruises...

Hi All, My ITP was diagnosed 6 yrs ago and after none of the treatments worked, ...

ITPAffecty

•8 years ago

5 Replies

73000

I had my blood tested and went from 34000 to 73000 with no meds. and I hope it lasts. I eat better and am now off of pregabablin and hopefully will be able to...

I had my blood tested and went from 34000 to 73000 with no meds. and I hope it l...

grannygoodwitch

•8 years ago

1 Reply

Other Useful ITP & Medical Sites

Here is a link to some other interesting ITP & Medical sites...https://itpsupport.org.uk/index.php/en/links-medical

Here is a link to some other interesting ITP & Medical sites...https://itpsuppor...

AnthonyHeard

Administrator•8 years ago

1 Reply

Poets sister

Hi l have been on Eltrombag 75mg. for seven months now and at last my 'count' is Notmal. How great is that. My doctor is reducing the dosage to 50mg over the...

Hi l have been on Eltrombag 75mg. for seven months now and at last my 'count' is...

Poetsister

•8 years ago

9 Replies

Safe and fun

So my daughter Leah will be 5 .next week. She hasn't had an easty time lately, her platelet level is in the single figures and she's brushing so easy, she...

So my daughter Leah will be 5 .next week. She hasn't had an easty time lately, h...

nastassja26

•8 years ago

5 Replies

Question!

Please can you tell me if Rituximab (Mabthera) will cause hair fall??? Who tried or have experience with this drug! I read the possible side effects and I was...

Please can you tell me if Rituximab (Mabthera) will cause hair fall??? Who tried...

Deniss

•8 years ago

11 Replies

Expecting a miracle

What to say .. what to expect ... i want a miracle to be happened with my daughter and all people who have ITP. It really does not make any sense to have low...

What to say .. what to expect ... i want a miracle to be happened with my daught...

Toughytoughy

•8 years ago

6 Replies

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Posts - ITP Support Association | HealthUnlocked

ITP Support Association

All posts for April 2017

Revolade stopped working suddenly

Revolade

exasperated

After spleen taken out!

Itp is curable or not

Tingling

Celiac, ITP and me

73000

Other Useful ITP & Medical Sites

Poets sister

Safe and fun

Question!

Expecting a miracle

Search posts

Pinned Posts

Latest poll

ITP TREATMENTS - Which ITP treatment has given you the best outcome in terms of the longest period of remission ?

Topics

Archive