Celiac, ITP and me: Hi All, My ITP was... - ITP Support Assoc...

ITP Support Association

4,122 members2,095 posts

Celiac, ITP and me

ITPAffecty profile image
5 Replies

Hi All,

My ITP was diagnosed 6 yrs ago and after none of the treatments worked, I was off of any blood tests or medicines since 4 yrs. I will have bruises every month and some nose bleeds and my count usually stays below 20. From past 2 3 months, am suferring from Stomach issues(Bloating/Flautulence) and doctor suggested I could have gluten/Dairy sensitivity, but the blood tests didnt confirm that though some values slightly lean towards Celiac. Since 10 days am on Gluten free & Dairy free diet which is quite hard for a person like me, but still my stomach issue is same. Does anybody faced same and how long it takes approximately to realize I am not Celiac person. Infact I was happy reading that both ITP & Celiac are auto immune disorders and could be related to each other. When we keep eating Gluten, our immune system will be hyperactive and might start destroying platelets/WBC/RBC which gave a thought like Gluten free diet might help with Platelets too.

I will keep everyone updated if my diet really helps Platelets!!..

(After 21 days)

My stomach problem is still same and Zantac didn't help. Some of the major Allergic tests came negative but yet to get Gluten allergy test result(still eating Gluten). Bruises due to ITP are as usual many but came to know today that my Vitamin-D levels are too low. Read somewhere that, Vit-D and Auto-Immune diseases are related. Now again hoping that D supplements would help Platelets too.

Written by
ITPAffecty profile image
ITPAffecty
To view profiles and participate in discussions please or .
Read more about...
5 Replies
AWSAR profile image
AWSAR

Go for a test H-Pylori

ITPAffecty profile image
ITPAffecty in reply to AWSAR

I had got it done 5 yrs back and it was negative. Now again I asked my doctor and he said H-Pylori symptoms will differ and it might not be that. Will try again to convince him for the test. Thank you..!!

dede7 profile image
dede7

I feel for me it might be related -I am gluten intolerant and have tested positive for both genes for celiac- I have been using many essential oils and eating more fresh greens and more fruit .

ITPAffecty profile image
ITPAffecty in reply to dede7

That's great.. So what is your count now? and how long it took to stabilize with higher count?

dede7 profile image
dede7 in reply to ITPAffecty

Normally I am at 100-110 -

Not what you're looking for?

You may also like...

Blood type “O” and ITP and Gluten Intolerance

It is now thought that only blood type “O” individuals have ITP and/or gluten intolerance due to...

ITP/autoimmune disease

I am 53 now, so you can imagine not much was known when I was 6! I bruised easily and was always...

The Diagnosis of ITP

Thank you everyone who so kindly replied to my query. What I always thought was that ITP is only...

Still battling ITP at 20 years.... and counting....

I have itp for many years & discovered that I am also allergic to juniper/cedar trees after...

I cured myself of ITP!

I was diagnosed with ITP (Idiopathic Thrombocytopenia Purpura) back in 1990 after not being able to...