I have AITP and have had several platelet drops over the years where I am hospitalised. I am always started on the high dose prednisolone which never works for me but they always seem to persevere with it putting the dose up and down to follow the platelet count.
I was feeling ok when I was in hospital with no more than the usual side effects of pred but since I have reduced them I have begun to feel unwell. I have some pain in my abdomen and I feel agitated and anxious all the time but the thing that has really got to me and worried me are these awful hot sweats that I experience on and off throughout the day. My skin goes clammy and I feel really uncomfortable until it passes which is usually less than a minute. Anything can bring them on such as eating or drinking or a minor stress can do it. Has anyone else experienced anything similar? I told my care providers about it but all I get is it must be you are menopausal! I have been through the menopause some years ago and yes I have had a few symptoms but I felt well before my platelet crash.