Hi I was diagnosed a year ago with ITP and not responded to Steriods, MMF and Rituxamab, only treatment that raises my plaltelets is IVIG temporarily. I have now been referred to Oxford and they are trialing a new drug called Fostamatinib - I had never heard of this but they would like me to start trialing it and I have two weeks to make a decision. Has anyone had any experience of this drug? It has apparantly had good success with ITP patients already and the side effects are not too bad, mainly upset tummy and nausea. I know they are a few more treatments I could have that have been around a while - Nplate and eltromobag but at the moment they do not think these are suitable for me as I do not bleed with my ITP just bruise heavily. Any advice would be great as really not sure I want to be a guinea pig for this new treamemts but it could work and help others in the process! Thanks
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