JUST ME AND MY ITP
For Rare Disease Day on Friday February 28th, I was lucky enough to be contacted by my local newspaper to talk to them about living with ITP and the challenges that it brings.
The resulting article can be viewed at the link below. In it I am described as brave and remarkable - hardly that I can assure you. Just grateful.
A huge thank you to Genetic Alliance UK and The Reading Chronicle for giving me the opportunity.
I hope that I have done the ITP and Rare Disease Communities justice.
I really do appreciate that my illness is completely managed and I have very little to grumble about compared to so many others who have far greater struggles living with rare illnesses.
I am eternally grateful that my platelet count is now absolutely normal and I thank all the staff at the Royal Berkshire Hospital especially the Haematology Dept - Dr Pratap and Dr Hassan in particular.
Many thanks also to Bella Perrin for writing the article.
Here's the link - readingchronicle.co.uk/news...
Following on from the article I have had plenty of really positive feedback for which I am so grateful.
I am pleased to know that the article has helped other people living with ITP and other rare conditions. That's why I agreed to the article in the first place.
In addition I have been asked if my book about my ITP experiences is still available.
Yes it is - MY PURPLE PATCH - LIVING with ITP either as an e/book or paperback at -