I have been remission for ITP for 2 years with normal platelet count of 240 to 300. I take no medicine. Can it still come back?

[joecirillo]

I had my first bout of ITP 4 years ago with platets at 1. It took a month to restore normal platelets. I had to have two rounds of IVig and took Promacta. Once my platets returned to nomal I stopped all medication. One and a half years later it mysteriously returned and my platets were at 1. That only required one round of IVig and promacta. Within a week my platets returned to nor mal. I have not had an issue for 2 years without medication. Am I out of the woods? My hematologists can not answer that question. She advises that I take no vaccines....flu, covid, etc etc.

[Anthonyh7]

Yes sadly Joe it can come back at any time. It is as well to get a blood test if you get any symptoms returning like bruising, gum bleeds, fatigue , any bleeding at all. So glad to hear that you are in remission at this time and long may it continue, but sadly ITP can return. Best wishes to you.

[joecirillo in reply to Anthonyh7]

Thanks Anthony. Yes when my gums started bleeding the second time around I got a blood test and ended up in the emergency room with platelets at 1. I am at 26 months and counting. My hemotoligist said I should not get any vaccines which is a little scary since I am 70 and a bad bout of Covid or the Flu could hospitalize me as well. Thanks for the best wishes same to you