Hi, firstly a slight intro - I'm 20 years old (nearly 21) and in my third year of uni studying Psychology and currently doing my dissertation. I have been suffering with Endo for around 6 years. I've been on multiple pills (from combined to progesterone only, last one was Cerezette), Depo injection for 3 months, and finally the Mirena coil, which I've had in for nearly 18 months. In the past I've also used Amitriptyline to help manage the pain. I've been to pain management and currently have and use a Tens machine, self acupuncture, mindfulness meditation, exercise 3 times a week, and stick to the Endo diet (no gluten, dairy, wheat, eggs, alcohol, additives and preservatives, fast food etc. I'm basically vegan but I still eat fish). I also take various painkillers when I need them depending on the pain. Varying from just paracetamol and ibuprofen to prescription co-codamol and mefanmic acid or dihydrocodeine and naproxen when it's really bad. However, it feels like none really touch it, just the stronger the painkiller the more it knocks me out so I can go for a nap and be unconscious so I don't feel the pain.
Despite all of this, I have gained nearly 2 stone in about a year, even though I exercise regularly and eat well, and it won't budge. I've been on the endo diet for just over a month (no bread or dairy being the biggest things) and I have not lost a single pound! My skin is terrible (has been since I started the Mirena but I thought it would settle down) and I get spots constantly, but worst of all, despite the fact that the Mirena stopped my periods and I haven't had them for over a year, I still get constant pain and I'm always so bloated. I know part of this is due to stress from uni but I really feel lost because something must be out there to help the pain? (Forewarning, TMI) On top of this, for about 8 months sex has been super painful. I used to have pain when my boyfriend inserted too deep and it hit my cervix, but now it hurts when he puts it in! No matter how relaxed I am personally, even when we use lube as well, it feels like I am super extremely tight and it hurts so much. I've been with my boyfriend over a year and I'm completely relaxed and stress free in the bedroom with him so it's not that that's the issue, and every time I feel like I'm ready and relaxed my vagina is just clamped up! (Sorry again for TMI)
I've been to pain management and they've done everything they can so I've been discharged. I now feel like the mirena coil isn't doing anything at all for me except not having periods, but mostly I didn't have them on Cerezette. I feel like I would be better trying another contraceptive but I don't know what to try. According to Gynae and Pain Management, apparently my options are Zoladex, Gabapentin or a Superior Hypogastric Block. 2 out of 3 of these cause weight gain, which I really don't want because I have a lot of trouble with my weight and self image anyway (even before endo), and it makes me really down, which worries me that I'll fall back into depression again (which I was treated for 2 years ago with Fluoxetine). I could also ask for another laparoscopy with excision surgery but currently that's not an option until I finish uni!
I know this is a long post/question and I'm sorry but if anyone has any advise, anything I could try, especially contraceptive-wise I would massively appreciate it! I've heard Yasmin is a good pill but it's combined and I've been warned to stay away from them for endo because oestrogen is the last thing we need more of! Any advice please?
Thanks in advance to anyone who responds