Has anyone had the mirena coil and still experiencing endo pain?

[AnnabelM]

Hi Ladies,

I'm searching to see if there are any other ladies out there that is going through a similar situation I am going through.

I was diagnosed with endometriosis in 2014. I always had endo pain which was bearable with pain relief at first but got worse so I had an laparoscopy in 2015. Last year July I was fitted with a Mirena Coil as my pain was getting worse and was instructed by my gynaecologist to take 2 cerezettes a day for 3 months and decrease to 1 for another 3 months and then stop it completely. I followed the instructions and finally came off the cerezette, for a whole month everyday I had period pain, the following month I had a serious endo flair up and started bleeding. The pain was so bad I was hospitalised so that they could manage the pain. I had 2 more flair ups over the next couple of months, I was referred to my gynaecologist. Once I had my gynae appointment they felt it wasn't the coil and was unsure why I was having these flair ups. They agreed for me to go back onto the cerezette, to have a MRI scan and another laparoscopy which won't be until next year because of it's long waiting list. So I've been on cerezette for 3 months now and still have the mirena coil but still experiencing pain and having a period every month. I wanted to know if anyone else is having the same or similar problem and whether anyone has any advice?.....I'm trying not to stress but I can't help but wonder what is happening as my gynae was confident that I wouldn't be going through all this pain.

[Harley9]

Hi, I can’t really help on this topic other than to say that I was exactly the same! I overlapped cerazette and the Mirena gradually to be just on the Mirena for a year. I’ve just had my first laparoscopy and they excised endometriosis and a cyst.

It could be anything from a cyst to further growth, so worth a second opinion xx

[AnnabelM in reply to Harley9]

Thank you for sharing Harley9 I'm definitely going to try and get a second opinion it will be interesting to know whether I have a cyst too. Thanks again for responding to my post x

[Harley9 in reply to AnnabelM]

Best of luck 💛x

[Poppy1973]

I have had the mirena coil for 20 years (on my fifth one), still have endo symptoms including period pain, back pain, urinary problems and endo is still actively growing.

[AnnabelM in reply to Poppy1973]

Thanks for sharing Poppy1973, I'm experiencing all that you have mentioned aswell. I really thought that with the mirena coil I wouldn't still experience this, but I suppose it doesn't work like that for everyone.

[emmaquinny]

Hi, I had the coil which helped with bleeding, not pain, then I had excisions through laparoscopy and still in pain. I’m on my second month of prostap and I feel like a new woman, not as tired (and I did used to get exhausted) barely any pain-life changing. Xxx

[AnnabelM]

Hi Emmaquinny,

Thank you for responding to my post, My endo nurse did suggest the prostrap injection to me but wants me to have a laparoscopy and the scan first before to see what comes back. I'm going to do some research into it and maybe it's something I can discuss with her in my next appointment. That's amazing that you have no more problems I will definitely look into it. I desperately need something to work I'm tired of the pain and bleeding. Thanks again for your message I feel there is still hope for me xx