My Endo has gradually got worse and worse over the last 3 years. I used to be ill for maximum 3 days at a time and now I'm basically always in some kind of pain, not to mention horrible hormonal headaches! I've been on Cerazette for a good 18 months now and it just isn't doing anything; I get bleed throughs most months and even when I don't I'm still in pain. No drugs seem to work, despite being on a concoction of Dihydrocodeine, Paracetamol, and Ibuprofen (Unfortunately I'm on Prozac so I can't take stronger NSAIDs). This means I sometimes have to miss Uni and catch up on lectures and get continuous extensions on work because I'm just in too much pain and on too many drugs to be able to function. I am worried I'm going to have to drop out of Uni.
Secondly, sex has always hurt for me, which at the start when I was 16 I put down to being new to it and I didn't put it down to endo the first few times, but 2 years down the line and I'm still hurting I realised something wasn't right. I've had all the tests and all is clear, but still pain, so it has to be the endo! I've also started bleeding for a couple days after sex, and then it goes away again, obviously not good! Not to mention it's only getting more painful for me. This isn't great, not just for me but for my partner too because he doesn't want to hurt me and I can't help saying ouch every time, so it's putting some strain between us. I feel so guilty for not being able to do what he wants without having to stop him because I'm in too much pain because of this stupid disease!
Basically what I'm getting at is what do you ladies do if sex is so painful you can barely stand it?
And also, I don't really want the Mirena coil, so I'm looking into the Depo Provera injection, has anyone had any experiences with this? Good or Bad? Any advice at all is appreciated!
Thanks!
Just don't know what to do!!! 
Really suffering and just don't know what to do 😟
I really don't know what to do next, not sure if I can cope with this. Any advice?
Bowel problems, upcoming hospital appointment & don't know what to do.
Hi hun
im in the same place i have constant pain everyday some days "just" acheing pain throughout the whole day that isn't actually " just " its very painful and theres the really intense stretching pain like someone is tugging at your insides and i constantly get one of the two, im always feeling dizzy and light headed/ weak. I was also on cerazette a few years ago and that made me feel terrible hormones went out of control i was stressing all the time, periods went none existent after i stopped taking it , once every year i had to have ovarian drilling to get them to every 3 months but i do also have poly cystic ovaries.
Sounds similar to my pain, everyday starts with 'just' an ache, as you say it's still painful! but I usually have a stabbing pain, literally like someone has stabbed a knife in me and is twisting it round. Similar too with the weakness and light headedness, I always get that and recently I've started blacking out some days, I don't know if that's weakness or the pain or both but either way needs sorting! Cerazette hasn't been too bad for me, I just don't think it's helping me and I need something that will! What are you on now?
im not on nothing at the moment because im seeing a fertility specialist so really its just the pain killers tramadol when the pains really bad and other times naproxen and codydramol. i have endometriosis stage 4, polycystic ovaries and adenomyosis. I have blacked out before aswel i went shopping with my mum and my eyes just went all blurr and i could hardly see the people just walking past me and i blacked out. I know the knife twisting around feeling to you get a mixture of the pains but no matter what its always that constant ache throughout.
Ah I see, good luck, it's a shame this disease causes so much trouble in fertility too! They suspect I have Adenomyosis too, I want to try to get an MRI to see if that shows anything, but having to go private for it otherwise it'll be another 9 months down the line! Another cocktail of drugs that make you zombie like, I hate them! Yes, that's exactly what happens to me too, it's awful! I hate this disease with a passion! thank you for your input, it's really helped knowing someone is very similar to me, even though I know how awful it is! All the best to you though
No problem i know its awful! every time you take the pills they get harder to swallow. It makes me feel like a druggie. x