Tens unit

[Pine_Knot]

I can tell a difference after one session with the tens unit in my spasticity. Thanks for your information. 

[monkeybus]

Like I said, TENS is good. Crank up the voltage and watch your muscles undulate, Anything that gets those tight, spastic muscles moving has to be good.

I uses to wear mine 8 hours a day, every day. I loved it.

amazon.co.uk/Conductive-Gel...

Like I said, plenty of gel. You'll regret it if you don't.

Pine_Knot, what is the name of the Morphine you take for your pain? What is your dose? Does it work? How long have you been taking it?

Before you moved onto Opiates, did you run through other painkillers? I expect you did.

Can you let us know?

Lately, I have been feeling bad. Like every pore in my body aches. Not pain, but it is pain, If you know what I mean. It is all part of my old enemy Fatigue.

I asked a neurologist and he said that while the spasticity is mainly in my legs, it is also all over my body, to a lesser but plainly noticeable extent.

Gabapentin for me. If I still drank the booze, then a couple of bottles of vino would sort it out as well. I don't really mind taking all the drugs I take. Allows me to function, do my job, be a father, and all that. My main worry is my brain. All those chemicals hitting my brain. I am damned either way.

I gave my mum some Gabapentin for her shocking back pain. Knocked her right out. Out like a light. She refused to take any more.

I am going to get into the laser therapy on my legs next up, seeing as I Cannot do TENS any more.

Deengo put me onto it.

healthunlocked.com/amneasie...

At first I thought it was complete and utter claptrap, but no. An extremely credible, non-invasive, drug-free treatment for pain and nerve regeneration.

ebay.com/bhp/cold-laser-the...

I'll grab a budget one from the above link and if it is efficacious I'll spend some proper money on one.

This is never ending. Why doesn't somebody invent a cure

[Pine_Knot in reply to monkeybus]

I take morphine sulfate 30mg three times a day. Some days it helps and some days it doesn't. Any relief is worth the chance. I also take gabapenten. I feel like I couldn't make it without it. I've tried all kinds of other drugs and nothing works like the morphine for me. I also take perceset (not sure the spelling is correct)10mg three times a day to give the morphine a break. I have been taking it three years.

[monkeybus in reply to Pine_Knot]

Morphine, Gabapentin and Percoset. What a cocktail. Do you get stoned off of that?

What is your Gabapentin dose? I am prescribed the maximum, 3600mg per day.

Don't always take it, but it really gets me out of my head. So what? on my list of problems getting stoned on free meds doesn't even register.

Lyrica more so. Have you tried Lyrica?

What is your dose?

Usually I am chock-full of advice and opinions on this disease, but pain, I have nothing to add.

Can you function on all of that? Have you tried smoking dope?

What is your healthcare like where you live? Is your insurance good? What kind of neurologist do you see? does he/she know her/his stuff? Do you have to pay?

A lot of questions there, sorry about that.

I'll say this, with my daily intake of;

Antioxidants and vitamins

Vitamin B5

Vitamin B3 (Niacin)

Coenzyme Q10

Pyridoxine (B6)

Vitamin C

CDP Choline

Phosphatidylserine

ALCAR

L-Tyrosine

Lion's Mane

PEA

Hordenine

Centrophenoxine

NAC

NALT

Alpha Lipoic Acid

Astragalus

Reishi

DHA

Biotin

Idebenone

DHEA

I feel great on all of that, ALCAR especially, I upped my dose to 1 gram, 3-5 times per day. Great stuff. Second only to Modafinil as a fatigue buster. A poor second, but short of Cocaine, I don't think much could beat Modafinil.

I'll type up my latest thoughts on ALCAR before the weekend is out, but the MS people really rate it for fatigue. That was good enought for me. Gives me diarrhea though, but that's better than being constipated in my book.

4-AP as well. I have my little traveling bag that I cannot leave the house without. Only one time did I forget (4-AP), big panic. Had to grit my teeth and hang onto walls.

I'll talk to you later, Pine_Knot.

[Pine_Knot]

I don't get stoned unfortunately. I have an extremely high tolerance for any kind of medicine. I take 800 mg of gabapenten three times a day. I have tried dope and it doesn't help the pain. ..

Tried Lyrica but my feet and legs were still on fire! They upped my dose to the max and still no relief.

I have gone to the "best" neurologists in Mississippi and none of those Drs had ever had one patient with this disease. The first one was very nice but said he didn't want to treat such a rare disease with such bizarre side effects. The second guy looked at us and very rudely said "you are above my pay grade. Good bye".. The third said that most of my problems were " within your own mind". Seriously. So as of this moment I have no neurologist.

My insurance is great and pays for everything dr and hospital wise except medical equipment. Five prescriptions a month free. Beyond that is up to me.

My wife loves all things "natural" and has studied this disease from the text book side immensely. She is the one that is wanting me to try to find something to take that does add chemicals to my body.

The main concern for now is the pain, constant fatigue and being able to be active without putting myself in the hospital.

Thanks so much for the list of meds.

Thanks for chatting. So glad to know there is more out there than what we have gotten from the Drs here. ! I've learned more in the last few days than we have in a year of dr visits.

[Pine_Knot]

Doesn't add*