I had my annual meeting with my AMN/ALD doctor a couple of weeks ago. Not a lot to say to be fair, and clearly there isn't an awful lot they can say about prognosis, etc, but I did get a good piece of news about my condition. I was diagnosed a year ago and at the same time I had an adrenal sufficiency test. This showed that my adrenals were fine. This time, I asked if I'd need to have the test again. The answer was "no" ... apparently if you have had symptoms of AMN for say 5 years (>10 years for me), and you don't have adrenal insufficiency then it is very unlikely that you will ever develop adrenal insufficiency. My doctor then said, of course, that nothing was impossible, but it's nice to know that most likely I have one less thing to worry about.
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