Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

22,076 members • 27,704 posts

All posts for May 2022

We have reached castrate resistance...what to do next?

I have been following this forum for a couple of years now, and have learned so much from all of you. But this is my first time to post...I knew this time...

I have been following this forum for a couple of years now, and have learned so ...

Bmvg02

•2 years ago

14 Replies

30 months with PCA - experiences with ADT, Docetaxel, Xtandi / Nubeqa, Provenge and experimental immunotherapy trial.

Hi, I posted for the first time on this forum after my father (59) was diagnosed with stage IV prostate cancer in November of 2019. I want to share our...

Hi, I posted for the first time on this forum after my father (59) was diagnosed...

Namork

•2 years ago

12 Replies

Orgovyx and estradiol?

Howdy all, been following some discussions here about using estradiol patches with ADT and I was wondering if anyone is using estradiol with Orgovyx. I've been...

Howdy all, been following some discussions here about using estradiol patches wi...

NewPotatoCaboose

•2 years ago

4 Replies

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Rank Neutraceuticals / Off-Label Drugs By Most Likely Most Beneficial

I'm curious about the opinions of members here on how they would currently rank Neutraceutical and off-label use drugs in order of highest benefit potential...

I'm curious about the opinions of members here on how they would currently rank ...

jazj

•2 years ago

35 Replies

Pylarify approved by NCCN for Pluvicto

The National Comprehensive Cancer Network (NCCN) and the Society of Nuclear Medicine and Molecular Imaging (SNMMI) have now updated their guidelines to allow...

The National Comprehensive Cancer Network (NCCN) and the Society of Nuclear Medi...

Tall_Allen

•2 years ago

24 Replies

Statin Drugs and Prostate Cancer recurrence

Hello all. A month or so ago, I wrote about my hubby's blood test showing a calcium level of 134. Many of you good folks responded and some suggested that it...

Hello all. A month or so ago, I wrote about my hubby's blood test showing a cal...

User2008

•2 years ago

39 Replies

Recent diagnosis

My husband was diagnosed,a few days ago with Advanced Prostate Cancer. He is 63 and had a RP two years ago with a PSA of 12 and Gleeson score of 7..He now has...

My husband was diagnosed,a few days ago with Advanced Prostate Cancer. He is 63 ...

debbiejayn

•2 years ago

36 Replies

New Medicine for Prostate Cancer

Has anyone tried the medicine Nubeqa?

Bradley73

•2 years ago

8 Replies

Bone scan vs 18F NaF PET

My MO is monitoring my mets in the pelvic area with bone scans about every 3-6 months depending on my reported symptoms. I am wondering why he would choose a...

My MO is monitoring my mets in the pelvic area with bone scans about every 3-6 m...

Kentucky1

•2 years ago

7 Replies

New prostate cancer life expectancy calculator

Renal and Urology News Publish Date May 10, 2022 New Model Improves Life Expectancy Estimates in Prostate Cancer Population Jody A. Charnow Share on...

Renal and Urology News Publish Date May 10, 2022 New Model Improves Life Expecta...

Graham49

•2 years ago

8 Replies

Time for action?

Hi It’s been 4 years since my last contact with this site (though I view it daily). Over that time my PSA has been slowly, but surely, edging up. My history in...

Hi It’s been 4 years since my last contact with this site (though I view it dail...

Birdwood

•2 years ago

22 Replies

Confused about a friend

Update to post: First my apologies for posting such a ridiculous scenario. We don't know details, second hand information, etc. He may be getting...

Update to post: First my apologies for posting such a ridiculous scenario. We...

JWPMP

•2 years ago

38 Replies

Three months of Lupron

I have been on the 3 month Lupron. Aside from my butt hurting for two days I have tolerated it well. Doc offered 6 month but I’m staying with the three months...

I have been on the 3 month Lupron. Aside from my butt hurting for two days I hav...

ShipModeler

•2 years ago

9 Replies

Recommendations for ROs and MOs in Houston

I’d like to request the names of one or more good ROs and MOs in or near Houston, TX (not at MD Anderson). My husband (age 71) was diagnosed with highly...

I’d like to request the names of one or more good ROs and MOs in or near Houston...

Rambo2789

•2 years ago

18 Replies

Intermittent secondary ADT

I'm currently taking Xtandi while waiting to start a CAR-T trial. Due to the way scheduling is working out, I'm starting and stopping Xtandi three times. It...

I'm currently taking Xtandi while waiting to start a CAR-T trial. Due to the way...

Javelin18

•2 years ago

8 Replies

I am starting Provenge soon

Greetings all! I am gong on Provenge at Mt Sinai NYC in the next few weeks. Any experiences, tips, pit falls to share with me?...

Greetings all! I am gong on Provenge at Mt Sinai NYC in the next few weeks. Any...

de-luke

•2 years ago

33 Replies

A decision to be made....

My Uro at my last appointment (Feb. 2022) told me I may have a decision to make on this coming visit (end May 2022) if my numbers continue to be good. I have...

My Uro at my last appointment (Feb. 2022) told me I may have a decision to make ...

MrDon2

•2 years ago

58 Replies

Father’s MRI came back with likely distant spread including to bone — what to expect realistically in 2022?

My 70 year old father has had urinary symptoms for a few years, was monitored with annual urology appointments and PSA tests. His PSA was slightly elevated...

My 70 year old father has had urinary symptoms for a few years, was monitored wi...

nyc_son

•2 years ago

29 Replies

Magnets made by soil bacteria offer hope for breast and prostate cancer

Hello friends, I came across the following news article on a new promising therapy to treat breast and prostate cancer using magnets made by soil bacteria...

Hello friends, I came across the following news article on a new promising the...

Pcnmyy

•2 years ago

10 Replies

Continuing intermittent ADT? or more?

I appreciate having learned much following this site. 74 year old, very active, runner, hiker, retired ER RN, married, sexually active Brief long hx:...

I appreciate having learned much following this site. 74 year old, very active,...

whitebird

•2 years ago

10 Replies

PC treatment question

All, At 52 I was diagnosed with PC, had a RP done, Gleason 9, no mets. Urologist prescribed Eligard every 6 months for 2 years followed by 6 month vacation...

All, At 52 I was diagnosed with PC, had a RP done, Gleason 9, no mets. Urologi...

brokenyoyo

•2 years ago

31 Replies

Lupron question

Hello group, this is my first post. I started following this group in February. My question is this. I switched from Firmagon to Lupron April 20 to benefit...

Hello group, this is my first post. I started following this group in February. ...

16S4

•2 years ago

35 Replies

The Journey continues

Ten months ago after trying Docetaxel, Xtandi and just 2 cycles of Jevtana all since 2019, our oncologist said the only thing left to do was a clinical trial....

Ten months ago after trying Docetaxel, Xtandi and just 2 cycles of Jevtana all s...

Presby

•2 years ago

13 Replies

ORGOVYX timing

I am trying to figure out what is the best time of day/night to take orgovyx . I take mine in the morning, but side effects come on quickly, but get less in...

I am trying to figure out what is the best time of day/night to take orgovyx . I...

watertender

•2 years ago

8 Replies

Hope Y'all Appreciate an Occasional Bit of Humor?

Anyway, this has nothing to do with PCa, but I thought it was funny! A good looking man walked into an agent's office in Hollywood and said "I want to be a...

Anyway, this has nothing to do with PCa, but I thought it was funny! A good lo...

E2-Guy

•2 years ago

8 Replies

Salvage cryotherapy

Has anyone had “salvage” cryotherapy after the radiationn fail?

billy1950

•2 years ago

29 Replies

Is Lutetium available now in US for treatment with the delay in production?

Does anyone know where they have Lutetium 177 now in NY or Florida orPa

Foxewolf

•2 years ago

4 Replies

Happy Mother's Day

I just want to send a note of thanks to all the mothers, wives, partners and friends that support us as we fight for a cure. I wouldn't be able to carry on...

I just want to send a note of thanks to all the mothers, wives, partners and fri...

Javelin18

•2 years ago

7 Replies

Zytiga strength

After 18 months on zytiga firstly 1000gm then reduced to 500gm after 3 months with 5gm prednisone PSA been sitting at < 0.01 for a year I’m this last few...

After 18 months on zytiga firstly 1000gm then reduced to 500gm after 3 months ...

Chrisbaird

•2 years ago

18 Replies

Does this sound like NePCA?

Last ct scan was 6 months ago it was clear but psa was on the rise. Over the next few months psa rose to 7.2 and then back to 6.6 6 weeks ago. My father...

Last ct scan was 6 months ago it was clear but psa was on the rise. Over the nex...

Poppi07

•2 years ago

7 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for May 2022

We have reached castrate resistance...what to do next?

30 months with PCA - experiences with ADT, Docetaxel, Xtandi / Nubeqa, Provenge and experimental immunotherapy trial.

Orgovyx and estradiol?

Rank Neutraceuticals / Off-Label Drugs By Most Likely Most Beneficial

Pylarify approved by NCCN for Pluvicto

Statin Drugs and Prostate Cancer recurrence

Recent diagnosis

New Medicine for Prostate Cancer

Bone scan vs 18F NaF PET

New prostate cancer life expectancy calculator

Time for action?

Confused about a friend

Three months of Lupron

Recommendations for ROs and MOs in Houston

Intermittent secondary ADT

I am starting Provenge soon

A decision to be made....

Father’s MRI came back with likely distant spread including to bone — what to expect realistically in 2022?

Magnets made by soil bacteria offer hope for breast and prostate cancer

Continuing intermittent ADT? or more?

PC treatment question

Lupron question

The Journey continues

ORGOVYX timing

Hope Y'all Appreciate an Occasional Bit of Humor?

Salvage cryotherapy

Is Lutetium available now in US for treatment with the delay in production?

Happy Mother's Day

Zytiga strength

Does this sound like NePCA?

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