Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,371 members • 26,725 posts

All posts for December 2019

latest PSA while on fenben (now mebendazole)

Here are my results: Prior to Nov. 2018: generally between 0.6 and 0.9 following my last HIFU in 2015 Nov. 2018: 0.9 mid-April 2019: 1.8 mid-May 2019: 2.27...

Here are my results: Prior to Nov. 2018: generally between 0.6 and 0.9 followin...

kapakahi

•5 years ago

24 Replies

Golfing Okay?

I was diagnosed with metastatic HSPC with PSA at 109 and have been on ADT for about 8 months. I was lucky (for now) that I was able to get my PSA down to .121....

I was diagnosed with metastatic HSPC with PSA at 109 and have been on ADT for ab...

Danielgreer

•5 years ago

45 Replies

60 days on Xtandi and PSA is rising...

Any help on what's next would be appreciated. 2nd line AR started a couple months ago and it has already stopped working. PSA has bumped from 2.49 to 3.81...

Any help on what's next would be appreciated. 2nd line AR started a couple mon...

Max135

•5 years ago

24 Replies

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Slowly But Surely Rising PSA

Hi All! Things have actually been going well. All things considered! My Dad continues to live life to the fullest with his metastatic prostate cancer. He has...

Hi All! Things have actually been going well. All things considered! My Dad con...

Here4Dad

•5 years ago

9 Replies

Pseudoprogression.

New term to me. New study [1], below. From a recent paper [2]: "Tumor osseous pseudoprogression (PP), defined as an imaging-based transient increase in tumor...

New term to me. New study [1], below. From a recent paper [2]: "Tumor osseous ps...

pjoshea13

•5 years ago

13 Replies

Online resource for checking supplement & drug interactions?

Anyone know of an online tool for checking out side effects/interactions of supplements and Rx meds? Running high blood pressure recently and not sure about...

Anyone know of an online tool for checking out side effects/interactions of supp...

sammamish

•5 years ago

9 Replies

Repy

Thank you. Thar makes sense. Stay the course, we will.

concernedlady

•5 years ago

1 Reply

Hmm... Penis Fish?

I wonder if this could be a viable transplant, given whats left if mine!! https://nypost.com/2019/12/12/thousands-of-penis-fish-wash-onto-california-beach/...

I wonder if this could be a viable transplant, given whats left if mine!! https:...

westof

•5 years ago

95 Replies

Stinging skin, no rash. Ideas?

I have been on Lupron for 10 1/2 months and have tolerated it reasonably well. Obvious testicular atrophy and new belly fat past 2 months. For a few days I...

I have been on Lupron for 10 1/2 months and have tolerated it reasonably well. O...

Milkweed

•5 years ago

1 Reply

PSMA pet scan

Where can I get a PSMA scan that I can send to University of Heidelberg doctord who are treating me with AC-225 and PU-177. I have been there 3 times and Psa...

Where can I get a PSMA scan that I can send to University of Heidelberg doctord...

lewicki

•5 years ago

30 Replies

What should I do? Or do what my MO's decision path is for me!

My office visit with my IU Health Simon Cancer MO is now history, or factual I'll say. Post 90 day Lupron#1 injection facts....

My office visit with my IU Health Simon Cancer MO is now history, or factual I'l...

depotdoug

•5 years ago

26 Replies

H.R.3 - Elijah E. Cummings Lower Drug Costs Now Act

I've spend the larger part of the last two weeks in Washington, DC. (Partially to speak at a major NCCN conference, yesturday, and some industry meetings last...

I've spend the larger part of the last two weeks in Washington, DC. (Partially ...

Darryl

Partner•5 years ago

20 Replies

250 mg Zytiga protocol

Met with my MO yesterday and we agreed to reduce my zytiga from 1000mg to 250 mg w yogurt (surprisingly, he said that some insurance companies were now...

Met with my MO yesterday and we agreed to reduce my zytiga from 1000mg to 250 mg...

PabloK

•5 years ago

14 Replies

AUS ISSUES - or WHY CAN'T RG PEE

11/19 - Husband had AUS surgery - by all accounts it went well 11/20 - Catheter removed, went home. All was well. He felt good (Maybe too good?) 11/29 -...

11/19 - Husband had AUS surgery - by all accounts it went well 11/20 - Catheter ...

COG1

•5 years ago

11 Replies

Personality Changes as PC Discovered and Progresses HIPAA Issues

Husband goes from family man to playboy Jekyll and Hyde over the course of PC discovery and treatment. After 36years of marriage and sharing the love,...

Husband goes from family man to playboy Jekyll and Hyde over the course of PC di...

Zxpl

•5 years ago

84 Replies

Could Use Some Advice As Change May Be Afoot

I was DX 7+ years ago with metPC. I had mets in 2 vertebre, my left acetablum (hip), one lymph node and possibly 2 ribs. I was treated with Lupron and Zytiga...

I was DX 7+ years ago with metPC. I had mets in 2 vertebre, my left acetablum (h...

jfoesq

•5 years ago

11 Replies

Observation after zytiga fail??

Hello everyone.This is my first post here.My dad was diagnosed with metastatic prostate cancer in 2013.The cancer was in his pelvis ,ribs and vertebre.However,...

Hello everyone.This is my first post here.My dad was diagnosed with metastatic p...

Vsahay

•5 years ago

21 Replies

Beware the Undetectable

For the past 2 plus years my PSA has been undetectable. I have been on Zytiga, Eligard and prednisone. I was told not to worry...things were at a standstill....

For the past 2 plus years my PSA has been undetectable. I have been on Zytiga, E...

Mkeman

•5 years ago

22 Replies

Berberine experiences for non diabetics

Hello, I would appreciate it if some of you share your experiences with Berberine for non diabetic and none pre diabetic in terms of lowering psa and...

Hello, I would appreciate it if some of you share your experiences with Berberi...

Ahk1

•5 years ago

8 Replies

Oligometastatic PC and Radiation

Hello all. My 68 year old husband had a routine physical about six months ago that showed a PSA of 77. His PSA had not been tested for seven years prior (which...

Hello all. My 68 year old husband had a routine physical about six months ago th...

Dett

•5 years ago

53 Replies

Nozinan

Can anyone tell me is it normal to use this in men with prostate cancer spread bones .

Can anyone tell me is it normal to use this in men with prostate cancer spread b...

G2779

•5 years ago

3 Replies

My Final Lupron Injection

After tolerating 44 IMRT treaments and 21 months of ADT pretty well, I am glad to report that my eighth and final three-month Lupron injection was yesterday....

After tolerating 44 IMRT treaments and 21 months of ADT pretty well, I am glad t...

ecm1

•5 years ago

30 Replies

Big mess in Homburg Lutetium treatment

Hello friends, My husband has just been informed that due to "big capacity problems" that his scheduled third treatment with lutetium 177 on January 8 has just...

Hello friends, My husband has just been informed that due to "big capacity probl...

blueCello

•5 years ago

24 Replies

Antitumor Activity Seen With Keytruda in mCRPC

In case you didn't see....

snoraste

•5 years ago

2 Replies

Nephrostomy/bilateral

Kidney impairment from mass on bladder, admitted, to ER and discovered there while waiting weeks for tests. They did a bilateral nephrostomy before he'd even...

Kidney impairment from mass on bladder, admitted, to ER and discovered there wh...

Spagnoli12

•5 years ago

19 Replies

Nubeqa

Does anyone have any knowledge as to wether Nubeqa will work after Xtandi has stopped working.

Does anyone have any knowledge as to wether Nubeqa will work after Xtandi has st...

rhome502

•5 years ago

9 Replies

Vitamin K2 - powerhouse for cancer and heart disease

For newer members of this site, I thought this would be something worth considering in your diet/supplement plan. I have coronary artery disease and stents so...

For newer members of this site, I thought this would be something worth consider...

GeorgeGlass

•5 years ago

5 Replies

Onvansertib Helps Overcome Resistance to Zytiga in mCRPC Patients, Interim Phase 2 Data Show

This seems small to be published. I wonder if it means anything. I look at it and think Janssen makes Zytiga and this will prolong their ability to sell a...

This seems small to be published. I wonder if it means anything. I look at it an...

Philly13

•5 years ago

2 Replies

Anyone out there on Proxiludamide (GT0918) Trials

Anyone out there know anything about how its working or happen to participate in "An Extended- Phase 2 Multi-Center, Open-Label Study to Evaluate the...

Anyone out there know anything about how its working or happen to participate i...

tgrec

•5 years ago

2 Replies

Any one hear of this

Turning Merck's COPD drug against resistant prostate cancer | FierceBiotech...

Bob10

•5 years ago

10 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for December 2019

latest PSA while on fenben (now mebendazole)

Golfing Okay?

60 days on Xtandi and PSA is rising...

Slowly But Surely Rising PSA

Pseudoprogression.

Online resource for checking supplement & drug interactions?

Repy

Hmm... Penis Fish?

Stinging skin, no rash. Ideas?

PSMA pet scan

What should I do? Or do what my MO's decision path is for me!

H.R.3 - Elijah E. Cummings Lower Drug Costs Now Act

250 mg Zytiga protocol

AUS ISSUES - or WHY CAN'T RG PEE

Personality Changes as PC Discovered and Progresses HIPAA Issues

Could Use Some Advice As Change May Be Afoot

Observation after zytiga fail??

Beware the Undetectable

Berberine experiences for non diabetics

Oligometastatic PC and Radiation

Nozinan

My Final Lupron Injection

Big mess in Homburg Lutetium treatment

Antitumor Activity Seen With Keytruda in mCRPC

Nephrostomy/bilateral

Nubeqa

Vitamin K2 - powerhouse for cancer and heart disease

Onvansertib Helps Overcome Resistance to Zytiga in mCRPC Patients, Interim Phase 2 Data Show

Anyone out there on Proxiludamide (GT0918) Trials

Any one hear of this

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