My Final Lupron Injection

[ecm1]

After tolerating 44 IMRT treaments and 21 months of ADT pretty well, I am glad to report that my eighth and final three-month Lupron injection was yesterday. My PSA is still undetectable. Admittedly the ADT has taken a it's toll, leaving me somewhat flabby and tired, although I managed to stay very active for the most part. Hopefully this Spring I can start knocking off a few pounds and getting back to full strength. I think that a celebration this weekend is in order

[timotur]

Congrats EC, great response to your treatment. Can’t wait for my last Lupron shot in 9 months!

[ecm1 in reply to timotur]

Thanks! I've been looking forward to this for a while. I have sympathy for the guys that have been going a lot longer than two years.

[Hidden in reply to ecm1]

Hahaha, those guys? Yep, workin on 5 casterated years myself. Lucky to be here. Good luck💪

[EdBar in reply to Hidden]

I’m coming up on 6 myself.😐

Ed

[Hidden in reply to EdBar]

Hahaha.....what a life EdBar...? My brother was once married to Nevada Bar . She became a murder mystery writer and quite wealthy and divorced my brother . They were both cheating anyway she married his best friend . What a history . Im kicking this rusty can

Til I can’t kick no more . God s will be done.... Enjoy the season Ed! 🎄

[monte1111 in reply to Hidden]

My right hand doesn't even worry if my left hand is cheating anymore.

[Hidden in reply to monte1111]

👌😂😂

[j-o-h-n in reply to monte1111]

Make sure you're wearing rubber gloves for protection, you don't want to end up with a swollen thumbie...

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 12/12/2019 7:19 PM EST

[ecm1]

My treatment is potentially curative so I'm hoping for a long vacation!

[Hidden]

Great job ! Celebrate life!🥳

[Don_1213]

Congratulations indeed. I'm getting my shot for 12-15 months Jan 3rd. I am also discussing with all my MD's the papers that have recently reported that 18 months works as well as 24 months with high-risk (G9) patients who've had curative intent IG/IMRT/ARC (45 treatments, 81 Gy). The author of one paper made a comment at a conference to the effect that "you gain nothing after 18 months, why torment the patient with the side effects.."

Anyway - Indeed congrats! I had blood drawn yesterday and got the fastest report (less than 24 hours) I've ever experienced - PSa is again undetectable. Just hoping it stays that way for a very long time.

I hope your recovery from the Lupron side-effects is fast and sees you in great health again. A celebration this weekend would indeed be in order!

BTW - looked at your profile, I suspect I'm somewhat older, but other than that - we have very similar disease and treatment. I had 1 more radiation treatment than you did - that's probably for the extra Gleason number I also have..

[ecm1 in reply to Don_1213]

I saw that report about 18 months of ADT being as effective as 24 and was tempted to tell my MO that I was done 6 months ago, but I've been tolerating castration pretty well, and I didn't want to have any regrets if it comes back.

[Hidden in reply to ecm1]

I think that was smart.💪

[GARunner1 in reply to Don_1213]

Can you give the sites for the papers you mentioned. Thanks.

[Don_1213 in reply to GARunner1]

renalandurologynews.com/hom... (2013)

healio.com/hematology-oncol... (2017)

ecancer.org/en/news/3859-du... (2013)

Almost all the papers are based on a study by Dr. Abdenour Nabid, MD out of Canada.

[GARunner1 in reply to Don_1213]

Thank you.

[Emmett50]

Congratulations! My husband had his last Lupron shot a week ago. His Casodex will end in late February. I’m glad you’re looking to celebrate. Paul had this last appointment two days after extensive nasal/sinus surgery. Honestly, I think he was still affected by the general anesthesia he had as it didn’t seem to register that he’s done with Lupron. He hadn’t wanted to change the appointment. The MO herself was excited! The doctor said he should feel better almost immediately after last casodex. Hope that’s your experience too! Hooray!

[ecm1 in reply to Emmett50]

Thanks! I spend several months on both Lupron and Casodex and I was an emotional wreck, crying at movies, or Suburu commercials, or finding an old favorite toy of one of my kids in the basement. Getting off the Casodex helped tremendously. I wish your husband good health and a qucik return to his old self.

[Boywonder56 in reply to ecm1]

I was started on csdx ...at drs office upon diagnosis of this aggresive beast ...ductal g9 w/ mets...but my first urologist...didnt even stage me...casodex and lets rip that sucker out...i had the pressence of mind to find the best urologist in houston and he said stop the casodex immiediely...no arg from me as i was feeling preety bad from first dose on...no it was lupron and titan trial......and just had 11th 3mo. Injection....and im working on 375,000 .00 worth of earleada thanks to trial being unblinded and im on the good caca.....merry christmas....happy hanaka...and love to all brothers in arms...start 4th year of what docs said was gauranteed 5yrs...but then i could get hit by a meteorite

...bw

[Istomin]

Congratulations! I've still got 1 1/2 yrs of Lupron left and am looking forward to the end.

[Jimhoy]

Congrats!!!!! Enjoy your extended vacation!! Great attitude!!!

So you don’t share “my” disappointment.....

Just remember, that shit (Lupron) doesn’t just all of a suddenly stop!!

You just had your last 3mo dose so it won’t start weaning out of your body for 3mo’s. They’ll tell you 6 mo’s to feel better but just relax and let it happen. May be more or may be less!!!

Best of luck / life!!!

Jc

[jfoesq]

FANTASTIC!!!

[Wdoug]

Happy day indeed. I began what I thought was a fairly rapid return to "normality" as my 6th 6 month Lupron shot was in April. Lupron results began immediately 3 1/2 years ago but they are slow to leave my system. I am just now noticing some slight changes, so patience is important in our expectations. Best wishes for a speedy return.

[Greatfaith]

Celebration is definitely in order! I have my last next month after a year & can’t wait to have good results. Praying that you’ll be on a long healthy vacation, you & all of us!!

[Hidden in reply to Greatfaith]

🙏

[monte1111]

Great news! I'm lupron for life. Unless........

[j-o-h-n]

Great,since your Engine Control Module is firing on all cylinders now...

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 12/12/2019 7:25 PM EST

[westof]

Hmm... Congrats and please provide us with updates.

In October I had my fifth (accompanied by a fifth of 21 year old scotch)!

According to my MSK RO and MO math, I still have 7 to go!

However, I've been VERY lucky to have few SE's.

After HDR Brachy (April 26th) and 5 weeks IMRT, I still feel great and lost 8 pounds(due to a dietary change, no more 400 calorie daily desserts (do the math). However, I try to exercise daily to maintain muscle mass.

Best

[monte1111 in reply to westof]

Lupron for almost 3 years next month. (Almost every 6 months). A fifth of scotch wouldn't last 21 minutes around here. Enjoy.

[westof in reply to monte1111]

Hmm... Great attitude and encouraging. Thanks!!

Best