Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,428 members • 26,834 posts

All posts for December 2019

The Doctor Is Optimistic

You could live five or even 10 years. I know a guy, he said, who’s still at it after 17 years. You’ll live life on your terms. Enjoying the things you enjoy....

You could live five or even 10 years. I know a guy, he said, who’s still at it ...

Cisco99

•5 years ago

29 Replies

Impact of progression at baseline ... on-treatment progression ...

Interesting new study below [1]. "There is a discussion about the optimal timing to initiate or switch treatment in metastatic castration-resistant prostate...

Interesting new study below [1]. "There is a discussion about the optimal timing...

pjoshea13

•5 years ago

1 Reply

One step....the Camino De Santiago/a walk around the block

The Camino De Santiago/The Appalachian Trail/A Walk Around the Block~~ What do these three things have in common? Well, having just watched "A Walk in the...

The Camino De Santiago/The Appalachian Trail/A Walk Around the Block~~ What do t...

greatjohn

•5 years ago

22 Replies

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Doctor asked to stop arbiterone due to constant uti+fever +side pain

Since last 2 months my father got uti 3 times along with severe right side pain near stomach and lower back pain. And fever keeps coming back I believe due to...

Since last 2 months my father got uti 3 times along with severe right side pain ...

Kshiprakapoor

•5 years ago

19 Replies

Is ADT killing me?

Is ADT killing me through the side effects? Therefore are the DR's or am I kidding myself. ADT or not?

Is ADT killing me through the side effects? Therefore are the DR's or am I kiddi...

alangeorge

•5 years ago

83 Replies

Sleeping more...

Just wondering... my husband was dx in 2017. His psa was almost 1600. Has been .2 for a year after chemo in 2017 and then went to .3 in October 2019. Didn't...

Just wondering... my husband was dx in 2017. His psa was almost 1600. Has been...

Brbnbrn

•5 years ago

15 Replies

Psa 10 months on

Hi there, My dad just had his oncologist appointment and three monthly shot of Zoladex. His psa remains at 0.1 which it has been since he commenced ADT in Feb...

Hi there, My dad just had his oncologist appointment and three monthly shot of Z...

Mish80

•5 years ago

3 Replies

Netfotmin and Mebendazole

Just became aware of taking Mebendazole a drug for hook worms etc..Also Metformin. Should these drugs be taken and advise your doctor that this is what you are...

Just became aware of taking Mebendazole a drug for hook worms etc..Also Metformi...

lewicki

•5 years ago

19 Replies

Severe joint pain while on Zytiga + dexamethasone + temazepam (for insomnia from dexamethasone) along with xofigo and xgeva

Has anyone else experienced odd severe joint pain that moves around, comes/goes and doesn't respond to OTC NSAIDs or Tylenol? Fast acting OXY 5s help, but...

Has anyone else experienced odd severe joint pain that moves around, comes/goes ...

JLS1

•5 years ago

22 Replies

Another stricken with PCa

D*mn PCa https://www.espn.com/boxing/story/_/id/28295840/leon-spinks-showing-small-signs-improvement

D*mn PCa https://www.espn.com/boxing/story/_/id/28295840/leon-spinks-showing-sm...

dockam

•5 years ago

3 Replies

Why Lutetium-177-PSMA treatment sometimes may not help, and may even harm

It's prudent to get an FDG PET/CT at around the same time as the PSMA PET/CT. https://pcnrv.blogspot.com/2019/12/why-lutetium-177-psma-treatment.html

It's prudent to get an FDG PET/CT at around the same time as the PSMA PET/CT. ht...

Tall_Allen

•5 years ago

48 Replies

Lupron and hot weather

So my sweetie has been on lupron now for 5 years plus. He had his shot on Tuesday and we are taking a vacation in Hawaii. He is miserable in the hot weather....

So my sweetie has been on lupron now for 5 years plus. He had his shot on Tuesda...

NWLiving

•5 years ago

23 Replies

20 years on continuous Lupron started with PSA of 30 and I have been below 1.0 for about 6 years now.

On December 23 of this year I will experience my 20 th year of continuous Lupron. Side effects have waned some but are all still there. Exercise exercise...

On December 23 of this year I will experience my 20 th year of continuous Lupron...

ShenStone

•5 years ago

13 Replies

mass like appearance

Despite Mike being diagnosed with PC and having several subsequent scan this is the first time a "mass" like appearance has ever been noted on his CT scan....

Despite Mike being diagnosed with PC and having several subsequent scan this is ...

Blair77

•5 years ago

1 Reply

T levels don't matter!

Scotland UK. Recent meet (my 3rd 3 monthly visit) with my RO and he advised that latest bloods show PSA now steady at <0.1. I asked what my T levels were and...

Scotland UK. Recent meet (my 3rd 3 monthly visit) with my RO and he advised tha...

StuartS

•5 years ago

56 Replies

How To Post A PDF File

Hello, Can someone tell me how to post a PDF file? I have a two page article detailing an aggressive approach to resolving incontinence after radical...

Hello, Can someone tell me how to post a PDF file? I have a two page article de...

Fox2018

•5 years ago

3 Replies

Rising creatinine with zoledronic acid infusions...

My dad has been receiveing zoledronic acid for past 2 months after a rise in his psa.(on abiraterone for past 1 year and psa started rising this june.doc has...

My dad has been receiveing zoledronic acid for past 2 months after a rise in his...

Vsahay

•5 years ago

18 Replies

Asteroid Bearing the Name of Superstar Ted Nugent Makes Its Way Toward Earth

At various points in my disease I have coldly contemplated taking my life. You know what I'm talking about -- when it gets really bad, maybe you can limp to a...

At various points in my disease I have coldly contemplated taking my life. You k...

Cisco99

•5 years ago

32 Replies

Fermigon injection sites

Does anyone know whether you can give the fermigon injection in another site other than your stomach thanks

Does anyone know whether you can give the fermigon injection in another site oth...

johnscats

•5 years ago

12 Replies

Blood Test Question

I have a question for the biochemists on this forum. Since I was first diagnosed in Jan of 2018, my alkaline phosphate numbers have always been a little...

I have a question for the biochemists on this forum. Since I was first diagnose...

Murph256

•5 years ago

27 Replies

Fenbendazole for Glioblastoma IV

My 16 year old daughter is now fighting a recurrence of GBM4 after proton radiation and Temozolomide failed to control it. We are about to start Fenbendazole...

My 16 year old daughter is now fighting a recurrence of GBM4 after proton radiat...

Barrymart

•5 years ago

28 Replies

PSA increase after zytiga and steroid switch

Exactly 2 months ago, PSA was 2.26 switched from prednisone to dexamethasone. Today’s results are 2.68. In May psa was 0.1. Go to see oncologist next week....

Exactly 2 months ago, PSA was 2.26 switched from prednisone to dexamethasone. To...

Peterd110

•5 years ago

12 Replies

Fish Naked

In the third floor clinic in the Wangenstein Building at the university, a woman with Parkinson's is raising her foot a few inches and slamming it down, over...

In the third floor clinic in the Wangenstein Building at the university, a woma...

Cisco99

•5 years ago

49 Replies

In the Waiting Room

A couple in their thirties look for two chairs together, waiting to be called for her infusion. She is the one with the cancer -- you can tell by her brightly...

A couple in their thirties look for two chairs together, waiting to be called f...

Cisco99

•5 years ago

25 Replies

Has Anyone Heard of Any Alternatives To PC in Marrow?

I know its not cureable but is it treatable? Looking for alternatives. A hospitalist came in and said my husband needs hospice . His blood is up and down,...

I know its not cureable but is it treatable? Looking for alternatives. A hospita...

Sapmiami

•5 years ago

31 Replies

Paul Thorn sings "I'm Still Here" 2:30 minutes

https://www.youtube.com/watch?v=zvUmlAIYJac

Bentot

•5 years ago

4 Replies

Uti and back and side pain

This is the third time uti infection every 20-30 days its coming back with severe side and lower back pain. All the tests seems normal just uti. Doctor has...

This is the third time uti infection every 20-30 days its coming back with sever...

Kshiprakapoor

•5 years ago

28 Replies

Abiraterone acetate (1) 250mg tab with food same as 4 without food?

Today late breaking news::::::: My ONC pharmacies pharmacist told me (1) 250mg ABIRATERONE Acetate tab with food(meal) is as effective as (4) 250mg ingested...

Today late breaking news::::::: My ONC pharmacies pharmacist told me (1) 250mg ...

depotdoug

•5 years ago

12 Replies

lupron

Going to be starting lupron soon if i do not go for clinical immune therapy route . Just wondering from my pc brothers about the side effects of this. thank...

Going to be starting lupron soon if i do not go for clinical immune therapy rout...

nextphase

•5 years ago

60 Replies

It's your turn -- for USA members

Malecare is the only prostate cancer focused nonprofit actively advocating for passage of the H.R. 3, the “Lower Drugs Costs Now” Act. We won in the House, a...

Malecare is the only prostate cancer focused nonprofit actively advocating for p...

Darryl

Partner•5 years ago

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Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for December 2019

The Doctor Is Optimistic

Impact of progression at baseline ... on-treatment progression ...

One step....the Camino De Santiago/a walk around the block

Doctor asked to stop arbiterone due to constant uti+fever +side pain

Is ADT killing me?

Sleeping more...

Psa 10 months on

Netfotmin and Mebendazole

Severe joint pain while on Zytiga + dexamethasone + temazepam (for insomnia from dexamethasone) along with xofigo and xgeva

Another stricken with PCa

Why Lutetium-177-PSMA treatment sometimes may not help, and may even harm

Lupron and hot weather

20 years on continuous Lupron started with PSA of 30 and I have been below 1.0 for about 6 years now.

mass like appearance

T levels don't matter!

How To Post A PDF File

Rising creatinine with zoledronic acid infusions...

Asteroid Bearing the Name of Superstar Ted Nugent Makes Its Way Toward Earth

Fermigon injection sites

Blood Test Question

Fenbendazole for Glioblastoma IV

PSA increase after zytiga and steroid switch

Fish Naked

In the Waiting Room

Has Anyone Heard of Any Alternatives To PC in Marrow?

Paul Thorn sings "I'm Still Here" 2:30 minutes

Uti and back and side pain

Abiraterone acetate (1) 250mg tab with food same as 4 without food?

lupron

It's your turn -- for USA members

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