You could live five or even 10 years.
I know a guy, he said, who’s still at it after 17 years.
You’ll live life on your terms.
Enjoying the things you enjoy.
Don’t worry about the pain.
We've got you covered.
You can count on us.
We’ll take care of you.
The next day I call him, because I’m starting to hurt.
He’s skiing in Vail.
And the doctor said the side effects of the drugs aren’t so bad! Yeah, not bad for the doctor!
Be ready to hear everyone is different a lot. The key is how well you respond to treatments.
And then he won’t call you back when he returns .... he ll be busy
He’s needs fresh powder .😂
Sad but true. By and large.
Thanks, Cisco99.
Hey whatsinaname! How you been? I've been reading "Being Mortal" recently, it's a good book, thanks for the recommendation.
Glad you liked it, Tom.
I had been to Thailand (Bangkok, Pattaya and Hua Hin) with my wife for 15 days in late November, early December and had a fantastic time. Superb relaxing massages every day, brilliant river views on the Chao Phraya, fantastic food (including steaks, pork belly, etc, etc) and the luxury of Thailand's top hotels like The Peninsula, The Sheraton and the Hilton. Lived it up as it could just be my last time.
All the very best to to you, Tom. I read your posts whenever I can.
Very glad to hear you're still getting out and enjoying life!
p.s., I should have mentioned that many of the places mentioned in "Being Mortal" are in Massachusetts, and on a global scale are right in my back yard.
Ha-ha! Good and true. Thanks for posting.
Why we loved Dr. Myers. He was going through the same thing. However, after 16 years and diagnosed with a 5+4 nine, I am still going skiing myself....Thank you Dr. Myers
5 to 10 years is what my surgeon told me. That was 27 years ago. Don't let anyone tell you how much time you have.
Magnus- What was your original dx? That is amazing for metPC and a high Gleason. Is that what you had?
I was stage 4, with a Gleason score of 9. At the time I was 42 years old. The surgeon could not remove my prostate so I had the orchiectomy.
One of the reasons for my longevity I believe is that I became a vegetarian days after getting home from the surgery.
I drink lots of green tea and take 5000 i.u.'s of vitamin D3 daily.
Over the years I have gone through many drugs and treatments. I surpass all expectations for ADT drugs, 3 to 5 years for each.
I have taken a long list of supplements over the years.
I've read your comments before, but I always am inspired by your story. I was 46 years old at dx, gleason 9, 4 visible mets and surgery was not an option. I went vegan by my own choice exactly one year ago. I feel good aside from some aching ribs, (where I have 2 mets) and I exercise almost daily. My latest PSA is undetectable and I've had 5 1/2 weeks of radiation to my prostate and hip, followed by 5 zaps to my other mets. Lupron for a year and Zytiga, then switched to Xtanti to keep my liver in check. I just did a 5K with my daughter and was my best time yet. I know we have some on here who are spiritual, or believers, etc... and others who are not, so I'm not trying to start any debate on the matter, but I do thank God for every day and for answering prayers for me.
I was told 13 months ago, I have around 44 months from his experience of this level of advance. I did respond very well to combined Chemo and ADT and MO said he couldn't of hoped for such a good turn around, so I'm feeling a little more confident these days. Reading about people here beating the odds is inspiring and uplifting as well.
I've come to terms with my fate, put it behind me and living my life as best I can. I struggle with pain, walking is hard these days. We should have our new house ready in the new year, bigger and warmer, looking forward to that, and a warm Spring lol The old house is 100 years old (very small) only got Double Glazing 5 years ago, it's been known to be as cold as -37C here. I used to work outside everyday, all day, not as tough as I used to be.
I finished 8 cycles chemo middle of August 2017. That winter I would have blankets on me to watch TV. With the central heat and gas fireplace, many times it was almost as hot as hell in here. I wore my coat constantly. Then I would get a hot flash. Coat off, coat on, coat off, coat on. The worst winter of my life. Winter of 2018 I was better. Winter of 2019-2020 is way much better. Don't need the blankets and etc. Still don't like the cold (but never did). I think it has something to do with the chemo and it slowly passes with time. I wish you well. Enjoy that new house!
37 below -- Jeepers! I'm in Minnesota, where are you, Little America?
Just south of Finland with Russian border next to us. It only did it once normally it's between -10 and -15C. The cold never bothered me before but now it's hell on my legs
Estonia -- you are in the news here, with our president enabling the Russians.My wife suffers from chilblains, which I thought was just a funny old words -- a damp cold around the feet. I have frostbite from wearing thin socks last winter -- minor. My son has Reynaud's disease -- inability to generate warmth in the extremities. I'm sorry you are cold. Sometimes I forget this is an international waystation.
Change your ID to ZEroBeLOW....
Good Luck, Good Health and Good Humor.
j-o-h-n Tuesday 12/17/2019 6:03 PM EST
The standing Joke is "Did you have a nice Summer"? "Don't know, I was working both those days" lol.
Cold didn't bother me before PC. 3 years ago I worked on a building project in Finland. We built a house, barn and Sauna on an island, the day started with 40min walk across sea ice, (a 10min Hovercraft ride when it worked) 12hr working day outside and walk back over the ice to mainland, average temp was -20C, we did 10 days on and 5 day breaks. Very good money as he couldn't get anyone to do the job that time of year, 5 of us finished the whole project in 4 months, no heavy machinery or cranes on this tiny island. At least with our new house it's 85% complete, so inside work on downstairs to complete. Bathroom, staircase, kitchen, living room. We had a delay where the Geothermal heating pipes broke and had to dig the concrete floor up, lay new pipes and concrete floor, otherwise we would have finished by now
People in Minnesota ask: So what did you do all summer?... the response is "I watched the Fourth of July parade".....
And I thought I was crazy...
youtube.com/watch?v=UFatVn1...
Good Luck, Good Health and Good Humor.
j-o-h-n Wednesday 12/18/2019 4:59 PM EST
Guess who is back in the cockpit......its Sky King and Penny (woof)
youtube.com/watch?v=eVQHDF0...
Congrats and thanks for letting me know. In that case I'll stick to Greyhound buses👀
youtube.com/watch?v=eVQHDF0...
Good Luck, Good Health and Good Humor.
j-o-h-n Sunday 12/22/2019 1:36 PM EST
I wonder why walking keeps getting harder. For a long time I thought it was something separate from my PCa
Maybe he'll break a leg.
Or more likely "Sheing in Jail"...........
Good Luck, Good Health and Good Humor.
j-o-h-n Tuesday 12/17/2019 6:05 PM EST
Doctors are always optimistic. There's always new blood ready to replace his failures.
of course, the doc is doing his 'joy'... we have to find it .. right.. no matter what... and we are covered, no matter what it seems like it 'life's' weird way...
Doctor Recommendations
doctor has changed ( abiraterone + prednisolone) to ( Xtandi). How justified and productive is this substitution?
The only way is up !
The battle is over
