Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

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All posts for March 2019

Exceptional Response to 177-Lutetium PSMA in Prostate Cancer Harboring DNA Repair Defects

Looks like very good news for specifically qualified patients. Hopefully all men harboring this genetic defect will be aware that there is hope for them! Jim...

Looks like very good news for specifically qualified patients. Hopefully all men...

Moespy

•5 years ago

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Having a hard time on ADT

dx in December 2018 prostate removed in April PSA after the prostate removal was 0.3 had 33 sessions of radiation and coming up on my fourth shot of Zoladex...

dx in December 2018 prostate removed in April PSA after the prostate removal was...

zbobjacobs

•5 years ago

6 Replies

New to this ‘stage’

Hi there, While avoiding Dr Google I stumbled across this forum, which seems to be full of lovely supportive and informative people. My dad was diagnosed with...

Hi there, While avoiding Dr Google I stumbled across this forum, which seems to...

Mish80

•5 years ago

22 Replies

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Where can my husband get a PSMA scan in the US without having had chemo?

We live in GA and prefer close if possible. I would like a PSMA scan to verify the results of a recent Axumin scan. I think that might be easier on him then a...

We live in GA and prefer close if possible. I would like a PSMA scan to verify t...

Grumpyswife

•5 years ago

11 Replies

Trying a high dose testosterone clinical trial

Zytiga has failed me and my PSA is taking off again. Instead of rolling to the next ‘standard of care’ I opted to participate in a high dose testosterone...

Zytiga has failed me and my PSA is taking off again. Instead of rolling to the ...

Chugach

•5 years ago

14 Replies

Names of targeted therapies ...mab and ...ib

Chuck Maack found this web page and posted the link to it in another prostate cancer forum. I think it gives a really clear and useful explanation of names...

Chuck Maack found this web page and posted the link to it in another prostate ca...

AlanMeyer

•5 years ago

2 Replies

Lurpron side effects

Well my dad is feeling the effects of lupron I think. He's tired all the time and doesn't feel well in general. No appetite and occasional nausea as well. Will...

Well my dad is feeling the effects of lupron I think. He's tired all the time an...

Daisygreen

•5 years ago

14 Replies

SsgCulldelight says

Just following back up with ya, howz hubby doin, I hope you took my advice cuo to the mountains, the sea wherever you can get away from that crazy phone and...

Just following back up with ya, howz hubby doin, I hope you took my advice cuo ...

SsgCulldelight

•5 years ago

5 Replies

Prostate Cancer

I am recently diagnosed as having Gleason 8 Prostate Cancer and scheduled to commence a Hormone Treatment programme in advance of receiving 7-8 weeks of...

I am recently diagnosed as having Gleason 8 Prostate Cancer and scheduled to com...

Kilmorna

•5 years ago

10 Replies

Sleep helpful hints and suggestions

Please reply with your helpful hints and suggestions for 1. Difficulty falling asleep and 2. Difficulty falling back asleep after getting up to pee or drink or...

Please reply with your helpful hints and suggestions for 1. Difficulty falling a...

Darryl

Partner•5 years ago

79 Replies

Is Zytiga working for my Significant other?

Diagnosed in late October 2018. Lymph nodes and mets on many areas of his bone, Gleason 8. 82 years young. First shot was firmagon than it was 3 months...

Diagnosed in late October 2018. Lymph nodes and mets on many areas of his bone, ...

Hidden

•5 years ago

14 Replies

Lutitium availability here and abroad

Except through trials can Lutitium be obtained in the US for treatment ? If so , how expensive is it , does a recognized cancer center procure it and do we...

Except through trials can Lutitium be obtained in the US for treatment ? If so ,...

Win-Pir

•5 years ago

9 Replies

Abiraterone reduced cost?

I recently found this article and I am intrigued by what the author is saying:...

I recently found this article and I am intrigued by what the author is saying:....

Macscot

•5 years ago

5 Replies

Sulforaphane

trying to follow the suggestion of several guys here and take Sulforaphane. I couldnt find any sulforaphane supplement with myrosinase except Jarrow's...

trying to follow the suggestion of several guys here and take Sulforaphane. I co...

dorke

•5 years ago

33 Replies

SUV in relation to PSMA pet scans

Anyone able to offer simple explanation of significance of fluctuation and rising SUV....standard uptake values .....of tumour sites as detailed on 3 separate...

Anyone able to offer simple explanation of significance of fluctuation and risin...

Miguelnumerouno

•5 years ago

6 Replies

Sudden Insomnia, no sleep for 72 hours...

I was sleeping "relatively" fine, but the only change was initially got a 6 month Eligard shot, recently got a 3 month Lupron shot, maybe this had an adverse...

I was sleeping "relatively" fine, but the only change was initially got a 6 mont...

Hidden

•5 years ago

97 Replies

Appx 2 Months on Concentrated (7x) BIRM and 8 months on Xtandi....Xtandi side effects starting to win (again).

well...when I started Xtandi the first few months were okay..then came the leg pains and muscle aches and extreme fatigue...THEN, along came BIRM (regular...

well...when I started Xtandi the first few months were okay..then came the leg p...

greatjohn

•5 years ago

39 Replies

5 years after Cyberknife and doctor wants to TURP: transurethral resection of the prostate. Anybody been there?

I've been having small blood clots come out when I urinate for several months now. Occasionally a little blood in urine. I've been thoroughly CT scanned and...

I've been having small blood clots come out when I urinate for several months no...

Tak-Druk

•5 years ago

20 Replies

Cancer immunotherapy

My husband almost done with his chemo treatment (two more rounds) his oncologist both local and at MD Anderson want to start him on Immunotherapy after chemo...

My husband almost done with his chemo treatment (two more rounds) his oncologist...

Lagovista2018

•5 years ago

36 Replies

For those with bone metastasis: what are (were) your ALP numbers or bone-ALP?

Not sure if really sensitive, but after 2 PSMA PET CT, 1 biopsy and now a very detailed mri (waiting results, very long inside mri for about 1,5 hours), doctor...

Not sure if really sensitive, but after 2 PSMA PET CT, 1 biopsy and now a very d...

Hidden

•5 years ago

46 Replies

Biologic Understandings of Bone Metastasis in mCRPC

Good video and text for those that want deep understanding of bone metastasis, it's difference in mechanism from visceral mets and the importance of treatment...

Good video and text for those that want deep understanding of bone metastasis, i...

Moespy

•5 years ago

5 Replies

Mico satellite instability

Anyone on here knows anything about this

Bob10

•5 years ago

3 Replies

San Diego Kaiser

Does anyone have experience with San Diego (or Orange County) Kaiser in regards to advanced prostate cancer... specifically an oncologist referral?

Does anyone have experience with San Diego (or Orange County) Kaiser in regards ...

RVTravel

•5 years ago

8 Replies

XTANDI worries

My 86 year old Father has been advised to begin taking XTANDI. At 62 his Prostate was removed, been in treatment since. Currently PSA is 5, Lupron injections...

My 86 year old Father has been advised to begin taking XTANDI. At 62 his Prosta...

Advocatedaughter

•5 years ago

27 Replies

Doctor Charles drake anyone seeing him

Please Tell me about your experience with doctor Charles Drake if anyone seeing him

Please Tell me about your experience with doctor Charles Drake if anyone seeing...

Bob10

•5 years ago

13 Replies

Just stared casodex now new doc says stop

Dx in Florida , Gleason 10 doc prescribed casodex to start until we can get back to Canada after the scan tomorrow. So he has taken 2 pills and our uro in...

Dx in Florida , Gleason 10 doc prescribed casodex to start until we can get back...

Rmurchu

•5 years ago

1 Reply

XTANDI beginning to fail

Hello my brothers, So I am 10 years into my battle and have been so very lucky as compared to many. My cancer was caught early. I have no bone mets, and the...

Hello my brothers, So I am 10 years into my battle and have been so very lucky a...

zenbee13

•5 years ago

11 Replies

Not rising psa

I have read this article (below)and wondering if men with genitics mutations who have prostate cancer and also men with visceral metastasis don’t experience...

I have read this article (below)and wondering if men with genitics mutations who...

Annie1373

•5 years ago

3 Replies

Veteran looking for some correct guidance and help !

Hello, I had Prostate Surgery in 2015 at my local VA Hospital. Gleason score of 3+ 4 =7. However, they said all of the Prostate was not removed because of...

Hello, I had Prostate Surgery in 2015 at my local VA Hospital. Gleason score of ...

Coleman53

•5 years ago

4 Replies

Severe weakness and imbalance

Hi ,Thanks for your answers. My dad has advanced prostate cancer with current psa of 37 and metastasis to bones .he was diagnosed on May 10th 2018, he didn’t...

Hi ,Thanks for your answers. My dad has advanced prostate cancer with current ps...

Annie1373

•5 years ago

4 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for March 2019

Exceptional Response to 177-Lutetium PSMA in Prostate Cancer Harboring DNA Repair Defects

Having a hard time on ADT

New to this ‘stage’

Where can my husband get a PSMA scan in the US without having had chemo?

Trying a high dose testosterone clinical trial

Names of targeted therapies ...mab and ...ib

Lurpron side effects

SsgCulldelight says

Prostate Cancer

Sleep helpful hints and suggestions

Is Zytiga working for my Significant other?

Lutitium availability here and abroad

Abiraterone reduced cost?

Sulforaphane

SUV in relation to PSMA pet scans

Sudden Insomnia, no sleep for 72 hours...

Appx 2 Months on Concentrated (7x) BIRM and 8 months on Xtandi....Xtandi side effects starting to win (again).

5 years after Cyberknife and doctor wants to TURP: transurethral resection of the prostate. Anybody been there?

Cancer immunotherapy

For those with bone metastasis: what are (were) your ALP numbers or bone-ALP?

Biologic Understandings of Bone Metastasis in mCRPC

Mico satellite instability

San Diego Kaiser

XTANDI worries

Doctor Charles drake anyone seeing him

Just stared casodex now new doc says stop

XTANDI beginning to fail

Not rising psa

Veteran looking for some correct guidance and help !

Severe weakness and imbalance

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