Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,279 members • 26,571 posts

All posts for December 2018

Pain management

Concerned pain meds may be withdrawn due to government pressure, per news article: https://fxn.ws/2GbKzmK I'm not on a lot of pain meds but can see how may...

Concerned pain meds may be withdrawn due to government pressure, per news articl...

Stevemarr

•5 years ago

3 Replies

Stricture

Meant to write Turpin not turn!

Captsquid2u

•5 years ago

6 Replies

Stricture

Anybody ever have a stricture in their uretha, mine is right up by my prostate, whatever’s left of it, I’ve had a Supra pubic catheter draining ny bladder for...

Anybody ever have a stricture in their uretha, mine is right up by my prostate, ...

Captsquid2u

•5 years ago

28 Replies

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The battle is over

After 2.5 years of fight against this terrible disease, my dad passed away on November 29th. He never wanted to leave us behind and kept fighting to survive...

After 2.5 years of fight against this terrible disease, my dad passed away on No...

Shumaf

•5 years ago

74 Replies

Iron and low red cell count

Please tell me whatever you know about supplements like Ferrous Sulfate 325 milligram tablets, or Iron 65mg tablets, and if it helps boost red cell counts. My...

Please tell me whatever you know about supplements like Ferrous Sulfate 325 mill...

abmicro

•5 years ago

7 Replies

I have been taking BIRM for one week now.

It is probably too early to tell but I feel good. I plan on updating this posting once a week and report any changes. Call me crazy but I like the taste of...

It is probably too early to tell but I feel good. I plan on updating this postin...

Urunstoppable

•5 years ago

6 Replies

Zytiga cost

I may start on Zytiga soon. My cost through Kaiser Permanente is $2750 per month (25% of total cost). The castastrophic coverage starts at $5100 per year....

I may start on Zytiga soon. My cost through Kaiser Permanente is $2750 per mon...

Geoff22

•5 years ago

7 Replies

Finding Help for paying for Medications

I have seen a few posts on help with paying for medications and I cannot offer a good detailed bit of advice . If anyone out there is well versed and...

I have seen a few posts on help with paying for medications and I cannot offer a...

redbank

•5 years ago

1 Reply

Two prostate cancer studies that will pay you for your time, and will pay Malecare $100 for referring you.

Here are two prostate cancer studies that will pay you for your time, and will pay Malecare $100 for referring you. If you are interested, please complete the...

Here are two prostate cancer studies that will pay you for your time, and will p...

Darryl

Partner•5 years ago

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NHS

Hi, Can anyone advise of the UK system; I have concerns over my husband's treatment plan and think they should be treating more aggressively. The only person...

Hi, Can anyone advise of the UK system; I have concerns over my husband's treatm...

Fdccs

•5 years ago

9 Replies

Xtandi

My father is prescribed Xtandi and we can't afford it. Does anyone have any of this drug that they won't need any more? Please let me know if you can help....

My father is prescribed Xtandi and we can't afford it. Does anyone have any of t...

Quyen

•5 years ago

25 Replies

New scan results question metastatic staging

Went to MD Anderson for a second opinion and was sent to do more tests. If you read previous posts, my local team didn't come to any strong recommendation for...

Went to MD Anderson for a second opinion and was sent to do more tests. If you r...

henukit

•5 years ago

10 Replies

Combine MCP, IP6, Inositol, Beta-Glucans, Nattokinase?

Any reason not to take all of the above at the same time, away from food? (MCP is modified citrus pectin)

Any reason not to take all of the above at the same time, away from food? (MCP i...

cigafred

•5 years ago

13 Replies

Black Seed Oil

Seeing a lot of information on this stuff,,was wondering if anyone has taken it. im on Zitga and Presidsone,,,with a 6 month shot of Lupron. Sounds good to...

Seeing a lot of information on this stuff,,was wondering if anyone has taken it....

kpw2018

•5 years ago

14 Replies

Pain control

Recently hip and groin pain increased greatly after Xofigo treatment # 3. Have any members of this group seen any literature regarding increase in pain level...

Recently hip and groin pain increased greatly after Xofigo treatment # 3. Have a...

DSEE

•5 years ago

5 Replies

Food, fitness, and fatigue

Going for round 3 of chemo. Pretty positive about it but the few snags I have ran into are: Food. We have been a fast food couple for some time. What we need...

Going for round 3 of chemo. Pretty positive about it but the few snags I have r...

Maleko808

•5 years ago

11 Replies

Thought I was holding it together

I really thought I was scared 11 months ago when hubby was first diagnosed. Now today I sit here terrified. PSA test yesterday was eye boggling 207.1. One...

I really thought I was scared 11 months ago when hubby was first diagnosed. Now ...

Tub111

•5 years ago

47 Replies

Ductal Adenocarcinoma and PSA

I was diagnosed with prostate cancer in March (PSA 5.2 )and had laparoscopic prostatectomy in April. Prior to surgery a full body bone scan and CAT scan of...

I was diagnosed with prostate cancer in March (PSA 5.2 )and had laparoscopic pro...

leach234

•5 years ago

3 Replies

Dr. Dattoli in Sarasota: any feedback?

I am new to this disease and to this site. Was diagnosed about 6 weeks ago with Stage 4 Prostate Cancer. Gleason score 9 and PSA 233. Bone Scan and CT Scan...

I am new to this disease and to this site. Was diagnosed about 6 weeks ago with...

DaveHopes

•5 years ago

6 Replies

Our Dan59 1956 - 2018

It is with great sadness that I let you all know that Our Dan left the earth on December 5, 2018 :'( I.... as I'm sure..... many of you will miss him so...

It is with great sadness that I let you all know that Our Dan left the earth on ...

erjlg3

•5 years ago

71 Replies

Home in Hawaii for HNL marathon

Hung out with family, ate local foods and did the marathon today. Fight on Brothers

Hung out with family, ate local foods and did the marathon today. Fight on Broth...

dockam

•5 years ago

4 Replies

Time With Oncologist

How much time does your oncologist spend with you at each appointment (and how frequent are the appointments)? I get to see the oncologist once a quarter and...

How much time does your oncologist spend with you at each appointment (and how f...

Stegosaurus37

•5 years ago

41 Replies

Drug holiday coming to an end

Just a short update on my health. MRI end of October showed no metastasized cancer. Just one lymph node 15.1 mm. Testesterone is coming back into the system....

Just a short update on my health. MRI end of October showed no metastasized canc...

Thinus

•5 years ago

9 Replies

How fast is fast

Gleason 9 had radical prostatechtomy found in local lymph nodes, surgeon made comment he could see cancer cells flowing into blood stream. Iwant to know how...

Gleason 9 had radical prostatechtomy found in local lymph nodes, surgeon made co...

duckman52

•5 years ago

28 Replies

After 3 weeks on the "BIRM"...STILL FEELING GREAT, but my PSA has bumped up from 0.88 to 1.130

well...I got my first PSA back after using BIRM for just 3 weeks...and feeling MUCH better and more energetic the whole time. But, ALAS, my PSA wasn't feeling...

well...I got my first PSA back after using BIRM for just 3 weeks...and feeling M...

greatjohn

•5 years ago

20 Replies

My first Post. Guidance needed please.

Hi everyone. I’ve been a member of this forum for some months now gathering information posted from some very well informed people who have been kind enough to...

Hi everyone. I’ve been a member of this forum for some months now gathering info...

riichardd

•5 years ago

22 Replies

Ingredients of BIRM

I am currently taking Kalanchoe Pinnata, 2 fl oz, which is dried leaf and stem. No bad taste, 330 mg/1 ml. Dose is 1ml up to 4X/day. Looking for same...

I am currently taking Kalanchoe Pinnata, 2 fl oz, which is dried leaf and stem. ...

arete1105

•5 years ago

12 Replies

My Introduction - elevated psa, unconfirmed prostate cancer

Hi, I'm a 57 year old with unconfirmed prostate cancer. My psa has been elevated for 14 years and recently jumped from 6 to 14 in a 6 month time frame....

Hi, I'm a 57 year old with unconfirmed prostate cancer. My psa has been elevate...

mikehike

•5 years ago

34 Replies

Need Zytiga Tablets

I need to stay on Zytiga for quite some time and the cost is hurting this family. Does anyone in the group have any of this drug that they will never use and...

I need to stay on Zytiga for quite some time and the cost is hurting this family...

Win-Pir

•5 years ago

18 Replies

Incontinence briefs

I’m interested in finding the best incontinence briefs. I’m having robotic prostatectomy on January 11. Any suggestions?

I’m interested in finding the best incontinence briefs. I’m having robotic prost...

BSCS

•5 years ago

36 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for December 2018

Pain management

Stricture

Stricture

The battle is over

Iron and low red cell count

I have been taking BIRM for one week now.

Zytiga cost

Finding Help for paying for Medications

Two prostate cancer studies that will pay you for your time, and will pay Malecare $100 for referring you.

NHS

Xtandi

New scan results question metastatic staging

Combine MCP, IP6, Inositol, Beta-Glucans, Nattokinase?

Black Seed Oil

Pain control

Food, fitness, and fatigue

Thought I was holding it together

Ductal Adenocarcinoma and PSA

Dr. Dattoli in Sarasota: any feedback?

Our Dan59 1956 - 2018

Home in Hawaii for HNL marathon

Time With Oncologist

Drug holiday coming to an end

How fast is fast

After 3 weeks on the "BIRM"...STILL FEELING GREAT, but my PSA has bumped up from 0.88 to 1.130

My first Post. Guidance needed please.

Ingredients of BIRM

My Introduction - elevated psa, unconfirmed prostate cancer

Need Zytiga Tablets

Incontinence briefs

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