Drug holiday coming to an end - Advanced Prostate...

Advanced Prostate Cancer

22,353 members28,110 posts

Drug holiday coming to an end

Thinus profile image
9 Replies

Just a short update on my health. MRI end of October showed no metastasized cancer. Just one lymph node 15.1 mm. Testesterone is coming back into the system. It is now more than 8 months since my last Lucrin injection. But the PSA moved. This week the test showed up from 0.04 to 0.17. My GP freaked out and sent my measurements to the undertaker. Went and saw the oncologist. He said have a nice holiday and we test again first week January 2019. Then we start with Casodex. I keep going with herbs and will stop cheating on my diet.

Written by
Thinus profile image
Thinus
To view profiles and participate in discussions please or .
Read more about...
9 Replies
JimVanHorn profile image
JimVanHorn

When I stopped Lupron after 6 1/2 years I had a strange thing happen. After one month I would get an erection when I urinated. So that hurt really bad and I had to stop urinating and watch TV for about 10 minutes until the erection passed. Then I could urinate some more. This went on for six weeks and then everything was normal. My urologist said it was because I was making testosterone again and the tissues were sensitive to it.

Thinus profile image
Thinus in reply toJimVanHorn

I also get some kind of erection at the most unusual time of the day. But it doesn't hurt. Not yet. Will take it slowly day by day.

JimVanHorn profile image
JimVanHorn in reply toThinus

Hi, the reason it hurt is that you can not urinate with an erection. If I got an erection during the day I had no pain. Welcome to the club.

j-o-h-n profile image
j-o-h-n in reply toJimVanHorn

erection? what's that?

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 12/10/2018 11:18 PM EST

Thinus profile image
Thinus in reply toj-o-h-n

Hi John, have a heart. Smile. T

Captsquid2u profile image
Captsquid2u in reply toJimVanHorn

Why did they stop giving you the Lupron?

JimVanHorn profile image
JimVanHorn in reply toCaptsquid2u

My PSA was 0.000 for 6 1/2 years while I was on Lupron, and my oncologist wanted to see if my PSA would go up without Lupron. I am on active surveillance and see him every 6 months now. Thanks for asking!

Captsquid2u profile image
Captsquid2u in reply toJimVanHorn

Good for you, did your testosterone come back, libido?

JimVanHorn profile image
JimVanHorn in reply toCaptsquid2u

I'll find out about my T level on Dec. 21st. I will find out my PSA and T levels. My libido is non existent at this time. I have no desire to "get off" or get sexual. But who knows, today I had a strong urine stream for the first time in ten years. My heart doctor is keeping me on Coumadin for at least 6 months because of A Fib. The T level takes time to restore. So just keep on truckin'.

Not what you're looking for?

You may also like...

ADT Holiday Coming To An End

After nearly 2 years of undetectable while on ADT holiday my 10/2 PSA result was 0.1. Today, 10/23...
6357axbz profile image

90 day drug holiday

I started the 90 drug free holiday with a PSA of 0.08. Next it went down to 0.06. This week it was...
Thinus profile image

When To End An ADT Holiday

Just had a lengthy conversation with my MD Anderson MO who agrees with my Houston Methodist MO,...
6357axbz profile image

Looks great, but think Xtandi is coming to an end.

Really struggling, teary, worried about my husband. Diagnosed 1 year 3 months ago. PSA 556 and...
joekaty profile image

24 Months of Eligard Comes to an End

I’ve been having Eligard injections every six months for the last two years. In October my...
TottenhamMan profile image

Moderation team

Bethishere profile image
BethishereAdministrator
Number6 profile image
Number6Administrator
Darryl profile image
DarrylPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.