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Vitamin B12
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Low active b12 despite loading and monthly si
I’m feeling baffled by these results. Any insights welcomed. Feels like I’m just leaking the b12 out again…. Active b12 June 2021 177 after loading (The out of the top of the range red dot) June 2023 43 with Bi monthly si since June 21 after the loading. March 2024 45.6 after 2 weeks of every
I’m feeling baffled by these results. Any insights welcomed. Feels like I’m just leaking the b12 out again…. Active b12 June 2021 177 after loading (The out of the top of the range red dot) June 2023 43 with Bi monthly si since June 21 after the loading. March 2024 45.6 after 2 weeks of every
Laundretta
in
Pernicious Anaemia Society
6 months ago
B12 orders
Can I just ask, is there is a general concensus on which is the best type of B12 to order if you want to SI. Different people seem to be using different forms and I wondered if there was a general recommendation, do they all do the same thing or is it a case of trial and error to see what works best
Can I just ask, is there is a general concensus on which is the best type of B12 to order if you want to SI. Different people seem to be using different forms and I wondered if there was a general recommendation, do they all do the same thing or is it a case of trial and error to see what works best
Blueoxo
in
Pernicious Anaemia Society
6 months ago
Safe arrival from Verdandapo.
Hi guys just to let you all know my B12 came promptly and safely from Germany. However they weren't packed with any puffed Styrofoam just let loose in the box. I ordered Pasco Hydroxy with a sell hy date of 2026 and two boxes of Panpharma Cyano 04/27 sell by date. I ordered cyano to give it a go as I
Hi guys just to let you all know my B12 came promptly and safely from Germany. However they weren't packed with any puffed Styrofoam just let loose in the box. I ordered Pasco Hydroxy with a sell hy date of 2026 and two boxes of Panpharma Cyano 04/27 sell by date. I ordered cyano to give it a go as I
WorkingProgress
in
Pernicious Anaemia Society
6 months ago
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12 Day Trial
1.5mg methylcobalamin, 1.5mg adenosylcobalamin, 1mg hydroxocobalamin. SC injection 5 times a day including setting an alarm to inject at night. 50 mg B6 in the form of P-5-P or pain from peripheral neuropathy returns. Results of this trial are positive. Much closer to knowing what is most effective
1.5mg methylcobalamin, 1.5mg adenosylcobalamin, 1mg hydroxocobalamin. SC injection 5 times a day including setting an alarm to inject at night. 50 mg B6 in the form of P-5-P or pain from peripheral neuropathy returns. Results of this trial are positive. Much closer to knowing what is most effective
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
B12 Mouth Spray
my partner bought me the B12 mouth spray - apricot flavour! Up to 4 sprays a day. Do you think it will have any effect? Have you tried it?
my partner bought me the B12 mouth spray - apricot flavour! Up to 4 sprays a day. Do you think it will have any effect? Have you tried it?
Porridgeoaties
in
Pernicious Anaemia Society
6 months ago
obtaining B12 injections in Melbourne Aus
recent moved to Melbourne from NZ. I was self injecting, due to next to useless doctors. My test result was 2 points above deficient. I would like to continue them in Australia, anyone got any advice on getting the supplies. I know there was shortages for them recently, so not sure if this has corrected
recent moved to Melbourne from NZ. I was self injecting, due to next to useless doctors. My test result was 2 points above deficient. I would like to continue them in Australia, anyone got any advice on getting the supplies. I know there was shortages for them recently, so not sure if this has corrected
Polkadot02
in
Pernicious Anaemia Society
6 months ago
Placebo effect
I have scoffed at doctors' suggestions that many people feel better when they are injecting B12 due to a placebo effect. That statement seems trite, simplistic, almost a throwaway comment. But it's likely that doctors attributing patient claims of feeling better to placebo are taking into consideration
I have scoffed at doctors' suggestions that many people feel better when they are injecting B12 due to a placebo effect. That statement seems trite, simplistic, almost a throwaway comment. But it's likely that doctors attributing patient claims of feeling better to placebo are taking into consideration
WiscGuy
in
Pernicious Anaemia Society
6 months ago
Neuropathy and RA
I'm being referred for nerve mapping by my consultant due to odd sensations in my middle finger and the side of my ring finger. Has any one else had this done? If neuropathy is diagnosed are there any treatments? I've been tested for diabetes and B12, both fine, so assume RA is the cause, but welcome
I'm being referred for nerve mapping by my consultant due to odd sensations in my middle finger and the side of my ring finger. Has any one else had this done? If neuropathy is diagnosed are there any treatments? I've been tested for diabetes and B12, both fine, so assume RA is the cause, but welcome
Sky42
in
NRAS
6 months ago
b12 injections
Hi I was just wondering if you could sign the below petition to keep b12 injections at my local GP not just for personal gain but for the elderly and people who have to rely on a very unreliable bus service as we are sort of out in the sticks. https://chng.it/pXmnfRSPHQ
Hi I was just wondering if you could sign the below petition to keep b12 injections at my local GP not just for personal gain but for the elderly and people who have to rely on a very unreliable bus service as we are sort of out in the sticks. https://chng.it/pXmnfRSPHQ
Muzzzy27
in
NRAS
6 months ago
beautician B12supplies
Can anyone explain to me how beautician clinics so called are offering B12 injections? Where and how are they able to get supplies when we can’t.Puzzled and angry.
Can anyone explain to me how beautician clinics so called are offering B12 injections? Where and how are they able to get supplies when we can’t.Puzzled and angry.
Mrsannabbott
in
Pernicious Anaemia Society
6 months ago
Should I request an increase in thyroxine?
B12
150 nmol/L (37.5 - 188) 74.8%
Vitamin
D 91.1 nmol/L (50 - 250) 20.5% Ferritin 82.1 ug/L (30 - 150) 43.4%
B12
150 nmol/L (37.5 - 188) 74.8%
Vitamin
D 91.1 nmol/L (50 - 250) 20.5% Ferritin 82.1 ug/L (30 - 150) 43.4%
Amber-sky
in
Thyroid UK
1 year ago
Blood Work
Hello Friends, I asked this question on my original thread but someone suggested I start a new one. I was diagnosed with Autoimmune Atrophic Gastritis 2 weeks ago and have been having a hard time mentally . My family Dr this past Friday sends me the blood tests results and says they cannot comment
Hello Friends, I asked this question on my original thread but someone suggested I start a new one. I was diagnosed with Autoimmune Atrophic Gastritis 2 weeks ago and have been having a hard time mentally . My family Dr this past Friday sends me the blood tests results and says they cannot comment
Canadian77
in
Pernicious Anaemia Society
6 months ago
Many things are romantic by candlelight.
Injecting B12 is not one of those things. 🙂 Power was out I did not just have a desire to inject by candlelight. 🙂
Injecting B12 is not one of those things. 🙂 Power was out I did not just have a desire to inject by candlelight. 🙂
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
Wall Pilates
Hi all, I recently signed up for an app to do a month of wall Pilates to get some exercise and strengthen my core but only did about 18 days. The app I used didn't fit my needs and had standing to floor and then back to standing exercises. Then my B12 and Iron levels got very low and I just didn't
Hi all, I recently signed up for an app to do a month of wall Pilates to get some exercise and strengthen my core but only did about 18 days. The app I used didn't fit my needs and had standing to floor and then back to standing exercises. Then my B12 and Iron levels got very low and I just didn't
Eveie78
in
Ataxia UK
6 months ago
b12 liver stores
Hi everyone, Just a quick question for those of us with PA. When we have b12 loading doses I have read this replenishes liver stores. Can anyone tell me does this b12 always successfully make it into the liver stores? I ask because my body does not reflect this. Loading doses did nothing to alleaviate
Hi everyone, Just a quick question for those of us with PA. When we have b12 loading doses I have read this replenishes liver stores. Can anyone tell me does this b12 always successfully make it into the liver stores? I ask because my body does not reflect this. Loading doses did nothing to alleaviate
brenanddave
in
Pernicious Anaemia Society
6 months ago
Help...how do I get my B12 through customs?
My B12 order has been with UK customs since 05/03. I don't know why as no one has contacted me. The pharmacy, when asked where my order was, said that it's stuck in customs but offered no further info or help. The value was roughly £58. Have there been any import rule changes recently? I'm going
My B12 order has been with UK customs since 05/03. I don't know why as no one has contacted me. The pharmacy, when asked where my order was, said that it's stuck in customs but offered no further info or help. The value was roughly £58. Have there been any import rule changes recently? I'm going
Enuffisenuf
in
Pernicious Anaemia Society
6 months ago
feeling scared
Hi everyone. Im at the really really early stages. Sorry i don’t know all the acronyms yet or what they mean. If there is a glossary can anyone point me in that direction? So far ive had my blood tested while on day 3 of my period & then tested again 7 days prior to my period starting. My first blood
Hi everyone. Im at the really really early stages. Sorry i don’t know all the acronyms yet or what they mean. If there is a glossary can anyone point me in that direction? So far ive had my blood tested while on day 3 of my period & then tested again 7 days prior to my period starting. My first blood
Athena1990
in
Fertility Network UK
6 months ago
New Here - Loading Doses of B12 Stopped Halfway Through - Anyone Else?
Hello! I was recently diagnosed with low B12 and was subsequently put on a loading dose of 6 injections over 2 weeks, followed by a further one injection every 12 weeks. I started this but became incredibly poorly after the first injection. After consulting with a GP, the nurse gave me my 2nd and 3rd
Hello! I was recently diagnosed with low B12 and was subsequently put on a loading dose of 6 injections over 2 weeks, followed by a further one injection every 12 weeks. I started this but became incredibly poorly after the first injection. After consulting with a GP, the nurse gave me my 2nd and 3rd
Hidden
in
Pernicious Anaemia Society
6 months ago
MMH latest bloods
I supplement
Vitamin
D,
B12
, B complex and folate. I know if my NHS GP sees this he'll reduce dose based on TSH result and I've been called in for a thyroid panel blood test. Thanks
I supplement
Vitamin
D,
B12
, B complex and folate. I know if my NHS GP sees this he'll reduce dose based on TSH result and I've been called in for a thyroid panel blood test. Thanks
Sparklingsunshine
in
Thyroid UK
1 year ago
Psychiatric symptoms of PA
Have any of you found a correlation in psychiatric symptoms such as anxiety, depression , ocd etc improving with an increase of B12 injections. These symptoms for me used to come following. Or in conjunction with the nerve pain tingling and so on . Now, I find that although My other physical symptoms
Have any of you found a correlation in psychiatric symptoms such as anxiety, depression , ocd etc improving with an increase of B12 injections. These symptoms for me used to come following. Or in conjunction with the nerve pain tingling and so on . Now, I find that although My other physical symptoms
Jjjmmm
in
Pernicious Anaemia Society
6 months ago
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